AFBS
A Foundation Building Strength for Nemaline Myopathy
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WATCH OUR STORY!
In 2008, a diagnosis of Nemaline Myopathy (NM) led one family to ask a critical question: "What can we do to help?" That question led to establishing A Found...
REGISTER: VIRTUAL KIDS GATHERING (12 & UNDER) - SAT. JANUARY 3RD
REGISTER: VIRTUAL KIDS GATHERING (12 & UNDER) - SAT. JANUARY 3RD
Welcome! You are invited to join a meeting: AFBS Virtual Kids Gathering. After registering, you will receive a confirmation email about joining the meeting.
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DONATE NOW!
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RECIPIENT OF THE AFBS STRENGTH IN ACTION AWARD - KAITLYN SCHARA
RECIPIENT OF THE AFBS STRENGTH IN ACTION AWARD - KAITLYN SCHARA
Meet Kaitlyn Schara, inaugural recipient of the AFBS Strength in Action Award. Discover how she and her son Jackson are driving vital research for Nemaline Myopathy.
CITIZEN HEALTH'S GREAT UNLOCK: ENTER TO WIN $5000 IN PRIZES!
CITIZEN HEALTH'S GREAT UNLOCK: ENTER TO WIN $5000 IN PRIZES!
LATEST NEWS! - AFBS BLOG
LATEST NEWS! - AFBS BLOG
Our blog shares the latest in Nemaline Myopathy research, celebrates members of our community, features special events and important news.
RESEARCH
LATEST RESEARCH UPDATES
LATEST RESEARCH UPDATES
Explore the latest advancements in NM therapies, including gene therapy, mouse models, and robotic garments. Discover promising research progress.
AFBS 2024 IMPACT REPORT
AFBS 2024 IMPACT REPORT
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PARTNER WITH US!
PARTNER WITH US!
oin AFBS in the fight against Nemaline Myopathy. Your support funds critical research, provides essential resources, and connects families impacted by NM. Partner with us today and make a transformative difference.
COMMUNITY RESOURCES
NEMALINE MYOPATHY (NM) PERSPECTIVES & PRIORITIES SURVEY
NEMALINE MYOPATHY (NM) PERSPECTIVES & PRIORITIES SURVEY
CONNECT WITH US: FILL OUT THE NM COMMUNITY CONTACT SURVEY!
CONNECT WITH US: FILL OUT THE NM COMMUNITY CONTACT SURVEY!
At AFBS we value our NM community more than anything else. We are in the process of updating our contact list and invite you to complete this survey with your information.
ASSISTANCE REQUEST FORM - GENETIC TESTING, BIOBANK, AND/OR CMDIR REGISTRATION
ASSISTANCE REQUEST FORM - GENETIC TESTING, BIOBANK, AND/OR CMDIR REGISTRATION
If you are interested in genetic testing to confirm the type of Nemaline Myopathy that you or your child has and would like personalized guidance from the AFBS team, or would like to participate in the Beggs Lab Biobanking Program, please complete this short form and we'll reach out to you!
DOWNLOAD THE NM RESOURCE KIT!
DOWNLOAD THE NM RESOURCE KIT!
KIT DE RECURSOS PARA MIOPATÍA NEMALINA: YA DISPONIBLE EN ESPAÑOL! (NM RESOURCE KIT NOW AVAILABLE IN SPANISH!)
KIT DE RECURSOS PARA MIOPATÍA NEMALINA: YA DISPONIBLE EN ESPAÑOL! (NM RESOURCE KIT NOW AVAILABLE IN SPANISH!)
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WEBINARS
NM COMMUNITY: CONNECT & TAKE ACTION | 2025 SCIFAM CONFERENCE
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
ACCESSIBLE ADVENTURES - TRAVEL Q&A WEBINAR WITH CORY LEE
ACCESSIBLE ADVENTURES - TRAVEL Q&A WEBINAR WITH CORY LEE
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