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September Community Chat Series Sign Up

Sign up for Sibtalks

2025 CCDS Virtual Conference

Dr. Chin-Yi Chen Q&A

Community Chat Series: Supports and Communication in Education

Race for A Cure

Behind-the Scenes at UCLA

Bell Ringing Ceremony with Jeff Allen

GIRLS IN CTD RESEARCH

Aleksander Bogoniewski Q&A

Team Crosby In The News

Tesla Peretti in the Walia Lab - Western Blotting

Ace Line Plant - Walk Sponsor

Brighton Park Capital - Walk Sponsor

Alzchem - Walk Sponsor

Tesla Peretti in the Walia Lab - Protein Extracton

GAMT Sibling study

Donate Now | 10th Annual Walk for Strength by Association for Creatine Deficiencies

Hope For Oscar

Newborn Screening

Virtual Conference Registration

Dr. Steven Baker - CTD Study

Join Momentum League

Race for the Cure - Acceleration Grants

PatientINFO 2024 Registry Report

National Academies: Report Release Webinar

Jeff Allen - Access Hollywood Interview

Register for Walk for Strength

Changes in Newborn Screening - TIME mag

Take Action! Sign to save the newborn screening system

Watch the April Community Chat

Read the March Newsletter

Frontiers Article: How a patient-led advocacy organization supports the road to diagnosis and treatment of Creatine Transporter Deficiency

Follow Jeff's Journey on Youtube

Two Disabled Dudes Podcast - Guest, ACD's Heidi Wallis

The Iced Coffee Hour - Jeff's in-depth interview

Warwickshire World - Mum opens up about son's rare disease

Ruck 4 Rare fundraiser

News Release: Ruck 4 Rare. 365-mile journey for CCDS awareness

News Release - Beast Games Champ! ACD Vice Chair Jeff Allen wins $10 million prize

News Release - 2025 Research Fellowship grants and Young Investigator award!

The Columbus Dispatch - Jeff's Beast Games Story

CERES BRAIN Therapeutics - phase 1 trail

Getting on BeastGames - Jeff Allen's Story

CCDS Community Chat Series: Go to Boston and participate in research!

Fertility Rates by State - Newborn screening

Watch December's community chat - Drug development process

Ty & Paige's Story

Team Lucas!

"Samantha and Louis’s Journey: Why Early Detection Is the Key to a Healthier Life" | EP Magazine

Support Young Investigator Draft 2025

The Allen Family - Sonoma train town railroad

Give to Team Elisabeth!

Give to Team Josh!

Rare As One Network Cycle 1 Impact Report

Sign Up for a Holiday Heroes 2024 Fundraiser

CCDS Community Chat: Staying Healthy While Caring for Your Child

ACD Shop

Subscriber to the ACD newsletter

Association for Creatine Deficiencies Website