iConquerMS

Every sample in the ACP Repository represents a person who chose to contribute to the future of MS research. In the latest issue of Accelerate, ACP’s newsletter, Dr. Unsong Oh discusses the responsibility of helping steward a resource built through the contributions of more than 3,200 participants. As a member of ACP’s Scientific Steering Committee, he helps guide how samples and data are used to support meaningful research. The story also highlights one of the Repository’s most unique features: researchers return their findings to the database, allowing the resource to grow with every study. Read the full story and subscribe to Accelerate for research updates, participant stories, and insights from across the MS research community: https://lnkd.in/gAeXyqXG #MultipleSclerosis #MSResearch #PatientPoweredResearch #BiomedicalResearch Accelerated Cure Project for Multiple Sclerosis

We’re sharing a powerful story from Can Do MS this Pride Month. After being diagnosed with MS in her 20s, Sarah Locke spent years navigating not only the challenges of the disease, but also questions about identity, belonging, and what it means to be fully yourself. In her article, Sarah reflects on living with MS as a queer person, the importance of affirming healthcare, and why feeling seen can make such a difference when facing a chronic illness. Her story is a reminder that every person brings their own experiences, identities, and perspectives to life with MS—and that our community is stronger when all voices are welcomed and valued. Read her story: https://lnkd.in/gEKW7jFU #MultipleSclerosis #PrideMonth #MS

The @National Multiple Sclerosis Society just released the Voice of the Patient Report, and the Accelerated Cure Project, the organization behind iConquerMS, is proud to have been a partner in bringing it to life. iConquerMS community members were among the nearly 3,000 people living with MS and care partners who contributed. The report is a formal record of what people living with MS need, submitted directly to the FDA to help shape the future of MS drug development. Key findings: fatigue, walking, cognitive function, spasticity, and bladder control topped the list of symptoms people want better treatments for. More than 40% of respondents experienced symptom worsening in the past year unrelated to a relapse. This is what it looks like when the MS community's voice reaches the people who shape research, develop treatments, and make regulatory decisions. Read the full report: https://lnkd.in/e5eWsseU National MS Society Accelerated Cure Project for Multiple Sclerosis

Every six months, iConquerMS members complete REAL-MS surveys that help researchers understand what life with MS is really like from the people who know it best. Follow-up surveys are open now and close on July 6. Not a member yet? There's no better time to join, and new members can start the survey anytime. iconquerms.org #MultipleSclerosis #MS #MSresearch Accelerated Cure Project for Multiple Sclerosis

MS researchers and clinicians fill the halls at the Consortium of Multiple Sclerosis Centers annual meeting every year. This time, we brought an iConquerMS community member with us. Nora Gutierrez, who lives with MS and serves on the iConquerMS RIDE Council (Research Inclusion, Diversity and Equity Council), shares her experience from the inside. iConquerMS, a program of Accelerated Cure Project for MS, is a people-powered research network where more than 10,000 members help shape the MS research agenda. Your experience belongs in these halls and in these conversations. Join us at iconquerms.org. #MultipleSclerosis #MS #MSresearch #CMSC2026 Accelerated Cure Project for Multiple Sclerosis CMSC

Fundraising for MS doesn't have to be complicated. Sometimes it's as simple as taking something you love and getting a little creative. For Emily Shire and her mother, Bev, it started with a mahjong and canasta tournament at a local restaurant in Wellesley, Mass., a game they love, played in honor of a friend living with MS. Through their organization, Canasta Connection, what began at the game table turned into meaningful dollars for MS research through Accelerated Cure Project for MS, the nonprofit behind iConquerMS.. There are as many ways to support this work as there are people who care about it. Whether you're a card shark, baker, runner, or just someone with a good idea and a willing group of friends, ACP has a starter kit to help you make it happen: https://lnkd.in/g83Rfkjh #MS #MSresearch #PeoplePoweredResearch Accelerated Cure Project for Multiple Sclerosis

For 25 years, the Accelerated Cure Project for Multiple Sclerosis has partnered with the MS community to drive research forward. Today, iConquerMS, ACP's people-powered research network, is more than 10,000 members strong. We've made progress, but we're not done. This World MS Day, donate and help us finish what we started. Donate now: https://lnkd.in/geAJCjYt #MSWorldMSDay #MultipleSclerosis #MSresearch

Are you interested in shaping the future of MS research? The RIDE Council, iConquerMS's Research Inclusion, Diversity and Equity Council, is now accepting applications for a limited number of openings on both our Hispanic and Emerging Voices sub-councils. We are especially looking to hear from members of the Hispanic and Latino community, individuals who have been recently diagnosed with MS, those living in rural areas, veterans, and LGBTQ+ members. If you or someone you know brings one of these perspectives and wants to help make MS research more inclusive and representative, we'd love to connect. Reach out to Jordan Caines at Jcaines@acceleratedcure.org to learn more or submit your interest. #MultipleSclerosis #MSResearch #HealthEquity

iConquerMS community: Thank you for saying yes. Yes to filling out surveys when you could have been watching your favorite show. Yes to submitting the questions you actually want researchers to answer. Yes to showing up for that online trial when you had a hundred other things to do. Yes to raising your hand, again and again, because you know it matters. Every member of the iConquerMS community is part of something bigger than any single trial. You're helping build the foundation for what comes next. Clinical trials are how we get closer to answers. And on May 20th, Clinical Trials Day, we honor everyone who has ever been part of that process, including you. Not yet a member? There's a place for you here. Join iConquerMS today and help steer the science that shapes the future of MS. And if you know someone living with MS, share this with them. Their voice belongs here too. 🔗 Join iConquerMS: https://lnkd.in/g8rfYKrF #ClinicalTrialsDay #MSResearch #MultipleSclerosis Accelerated Cure Project for Multiple Sclerosis

Traditionally, researchers decide which questions MS research should pursue. But no one understands life with MS better than the people living it every day. That’s the idea behind iConquerMS. We believe people affected by MS should help drive the research meant to change their lives. iConquer members help identify the questions research should pursue, shape research priorities, share real-world experiences and data, and participate in studies and clinical trials—much of it from the comfort of home. Their insights help researchers better understand what life with MS actually looks like day to day and ensure research stays connected to the people it is meant to serve. Because research should start with the people most affected by MS and stay connected to them through every stage of discovery. In this clip from RealTalk MS, ACP CEO Sara Loud discusses what it means to move beyond participation and toward true research partnership. Listen to the full conversation: https://lnkd.in/e4Y_GmFe #MultipleSclerosis #MSCommunity #MSResearch #AcceleratedCureProject #PeopleCenteredResearch Accelerated Cure Project for Multiple Sclerosis