IFPA International Federation of Psoriasis Associations

Our Executive Director, Frida Dunger was recently featured on Practical Dermatology's podcast, DWTV Extra, where she talked about IFPA’s advocacy efforts for people living with psoriasis and attending the UN General Assembly this autumn. 🗣️ The key message: people living with psoriatic disease are experts in their own experiences and should be included in policymaking decisions about them. 👉 Watch the full video and learn more about how IFPA is driving change on a global scale: https://lnkd.in/dnMMzVWz

New key resources – Playbook and Roadmap for implementation in the Americas – launched! Patient organizations, advocacy groups, healthcare professionals, and stakeholders across the Americas—this is your opportunity to turn insights into action. Together, we can ensure that psoriatic disease remains visible on the political agenda, from national health plans to the global debate on non-communicable diseases. In April 2025, the IFPA Forum Americas brought together the psoriatic community in Bogotá to promote regional action and define a path forward. With the Forum setting the course, it is now up to organizations and advocates in every country to implement its learnings, to help improve the lives of an estimated over 8 million people living with psoriasis across the Americas. To support the next steps, IFPA has published two key resources, available in English, Spanish, and Portuguese: ✔️Roadmap for improving the lives of people living with psoriatic disease – outlines advocacy priorities and practical strategies to improve psoriatic care, from raising awareness of disease burden to influencing national and regional policies. ✔️Americas Action Playbook – a practical guide designed to help advocates and patient organizations implement the Roadmap’s recommendations. It provides inspiration, ready-to-use tools and actionable advocacy tips. For IFPA Member organizations, the IFPA Forum Fund offers a unique opportunity to turn these recommendations into tangible results. Whether your focus is on improving access to care, raising awareness, influencing policy, or strengthening patient support networks, the Forum Fund is here to help bring your ideas to life. 🗓️ Forum Fund Application deadline: December 15, 2025 Visit our website to download the Roadmap and the Playbook for Americas and to apply for the IFPA Forum Fund: https://lnkd.in/dWpNMgRJ

Our latest episode of Beyond The Flare is now live, with a focus on early intervention in psoriatic disease. Hear how timely intervention can reduce the risk of comorbidities, improve quality of life, and lower long-term costs for society and healthcare systems. Spotify: https://lnkd.in/dkfU4jys Apple Podcasts: https://lnkd.in/diYF2YHs #StopTheDominoEffect #PsoriaticDisease

It's World Diabetes Day today 🌍 Did you know that people with psoriatic disease are twice as likely to develop type-2 diabetes? The odds increase with the severity of psoriatic disease. Early screening and prevention can: ✔️Ease the burden of managing multiple chronic conditions ✔️Reduce healthcare costs and missed workdays ✔️Improve overall health and even the outcomes of the psoriatic disease itself 👉 Read the report: https://lnkd.in/d3P8B6Cq #WorldDiabetesDay #StopTheDominoEffect

We’re proud to share that our IFPA Ambassador, Kathleen Gallant, delivered a powerful presentation at ACR Convergence 2025, held in late October in Chicago, Illinois. The event gathered rheumatologists from around the world to discuss advances in rheumatic and musculoskeletal diseases. Kathleen shared her personal journey of living with psoriatic arthritis and her long-standing commitment to advocating for others living with the disease. In her talk, she introduced the GoodCare for psoriatic arthritis — a project that turns real patient experiences into practical tools for healthcare professionals. It connects what people with psoriatic arthritis experience every day with how care is delivered, helping patients and clinicians better understand each other. Through this initiative, IFPA and its partners co-created educational materials, podcasts, and a patient checklist designed to support treatment planning, available in nine languages. The team also hosted an engaging webinar with a rheumatologist exploring how treatment guidelines can be used as tools for patient education. The project has reached thousands worldwide. Kathleen’s story and her message clearly resonated with the audience, showing that collaboration between patients and healthcare professionals can do more than improve health outcomes — it can changes lives. A heartfelt thank you to Kathleen for representing the patient voice, to ACR Convergence for providing this platform, and to Board Member Helen Crawford and our Scientific Officer Sicily Mburu – for facilitating the event, as well as to our partners in this project Zsófia Bakonyi at UCB, for making this event possible. 👉 Read more about the GoodCare project here: https://lnkd.in/dhCjZNhE

Too many people and communities remain underrepresented in psoriatic disease research. This lack of diversity limits understanding, slows innovation, and leaves people without equal access to care. IFPA’s new global initiative, Breaking Barriers in Psoriatic Disease, aims to identify the obstacles that prevent diverse communities from participating in clinical research and inspire action to overcome them. Working together with people living with psoriatic disease, healthcare professionals and institutes, researchers and advocacy organizations around the world, the project explores how stigma, culture, geography and socioeconomic factors influence participation and develops practical tools to foster inclusion and equity in research. Together, we can build fairer pathways to care and ensure every voice is represented in psoriatic disease research. 👉 Learn more and join the project: https://lnkd.in/dDHVabka #BreakingBarriers #Psoriasis

Did you know psoriatic disease can be associated with many comorbidities, including emotional and psychological ones? Consultant Dermatologist, Maria Angeliki Gkini sheds light on the psychological impact of psoriatic disease, as well as how we can address this in our first episode of Beyond The Flare. Tune in now: https://lnkd.in/deFeQb8a #WPD2025 #StopTheDominoEffect #PsoriaticDisease

People with psoriatic disease are at a higher risk for cardiovascular disease (CVD), and the risk increases with disease severity. ✔️Hypertension is more common in those with psoriatic disease, adding to CVD risk. ✔️Mild psoriatic disease increases the risk of major cardiovascular events by 28% and raises the likelihood of CVD-related mortality by 16%. ✔️With severe psoriatic disease, the risk of major cardiovascular events jumps by 62%, while CVD-related mortality rises by 75%. ✔️Younger people are especially vulnerable to these risks. Find out more in the report: https://lnkd.in/dW_F7G5Y #WPD2025 #PsoriaticDiseaseComorbidities #StopTheDominoEffect

People with psoriatic disease are more likely to have obesity, and the risk increases with disease severity. This can also impact treatment. Some medications may be less effective if a person has obesity. Weight reduction may help reduce disease severity and improve treatment response. Explore more in the report: https://lnkd.in/dC2K253N #WPD2025 #PsoriaticDiseaseComorbidities #StopTheDominoEffect

People with psoriatic disease are twice as likely to develop type-2 diabetes. The odds increase with the severity of psoriatic disease. Early screening and prevention can: ✔️Ease the burden of managing multiple chronic conditions ✔️Reduce healthcare costs and missed workdays ✔️Improve overall health and even psoriatic disease itself 👉 Learn more in the report: https://lnkd.in/dUrFXeSv #WPD2025 #PsoriaticDiseaseComorbidities #StopTheDominoEffect