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Disability, Handicap & Society, Vol. 1, No. 2, 1986 121
Public Support for Rehabilitation
Programs: the analysis of U.S.
disability policy
HARLAN HAHN
Department of Political Science, University of Southern California, University Park,
Los Angeles, California 90089-0044, USA
ABSTRACT Although political scientists have displayed relatively little interest in research on
disability thus far, a brief review of major issues in rehabilitation in the United States indicates
the contribution that policy analysts can make to the study of this subject. This opportunity is
enhanced by a recent shift in the definition of disability from a medical orientation, which
emphasizes functional impairments, and from an economic approach, which stresses vocational
limitations, to a socio-political perspective, which regards disability as the product of interac-
tions between individuals and the environment, The latter definition has become the founda-
tion for a new ‘minority-group’ model of disability that is challenging the traditional
functional-limitations’ paradigm and that might profitably be utilized in future research.
The development of rehabilitation, like all other professions, reflects a process of
dynamic evolution. In recent years, many of the major tenets of this field have been
challenged by a growing international movement of disabled persons and by an
increasing emphasis on legal rights. Much of the confusion created by these trends
probably has been exacerbated by a tendency of rehabilitation practicioners to focus
on the needs of individual clients and by the relative neglect of broad issues in
disability policy. By concentrating on policy research, therefore, important progress
might be made in gaining an improved understanding of some of the major
controversies confronting the study of rehabilitation.
Despite the vast range of political issues that have received major research
attention, relatively little prior interest has been devoted to the study of disability
and rehabilitation policy. The subject of disability has emerged as a major focus of
research in psychology (Shontz, 1975; McDaniel, 1976, Vash, 1981), sociology
(Safilios-Rothschild, 1970; Albrecht, 1976), and economics (Berkowitz, Johnson &
Murphy, 1976), as well as in several recent anthologies which combine the
perspectives of various disciplines (Stubbins, 1977; Berkowitz, 1979; Spiegel &
Podair, 1981; Rubin & La Porte, 1982; Eisenberg, Griggins & Duval, 1982). Yet,
although political scientists are beginning to display a concern with disability policy
(Stone, 1984; see also, however, Hahn, 1985b), the literature produced by resear-122 H. Hahn
chers in this discipline interested in policy analysis has been virtually overshadowed
by contributions from other fields.
The relative neglect of this subject cannot be easily reconciled with the
magnitude of the issue. According to Bowe (1978: 17), the “most widely quoted
estimate” of the number of disabled persons in the United States is 36 million.
Perhaps even more significantly, expenditures which seek to address the needs of
this segment of the population comprise a substantial—and largely unrecognized—-
portion of government budgets. Although researchers such as Erlanger & Roth
(1985: 320) have cautioned about the “danger... that the cost figure will be... erro-
neously judged too high on its face,” Berkowitz & Rubin (1977: 1) have calculated
that the total amount of money spent for disability policies in the United States in
1975 was approximately $114 billion. (Federal appropriations provided about half
of this amount, and state or local governments contributed another 12 percent).
Unfortunately, “differing institutional arrangements and statistical difficulties”
(Kohl, 1981: 320) seem to preclude the comparative analysis of variations in
spending for similar purposes in other countries. Yet, there appears to be little
doubt that efforts to cope with the problems of disability may require relatively
large—and growing—governmental allocations throughout the world. In fact, Bowe
(1980: ix-xvii) has proposed that attempts to resolve these problems are inextri-
cably linked to the solution of other prominent social issues such as inflation,
poverty, aging, and seemingly “uncontrollable” government costs. With advances in
medical technology and increasing longevity, he has even predicted that the
proportions of disabled and nondisabled persons in America could begin to approach
equivalence by the year 2000. The subject of disability and rehabilitation policy
cannot be neglected indefinitely.
There are also important theoretical reasons for an increased emphasis on the
study of disability policy. The prevalence of disability is, of course, closely related
to the rising expense of health care and income-maintenance programs which has led
some observers to fear for the future of the welfare state. In fact, Wilensky (1975:
xiv) began his classic comparative study of public expenditures with the erroneous
observation that a Swedish controversy over subway access to persons in wheel-
chairs probably could not have happened in American cities. As policy analysts
become more familiar with the widespread ramifications of disability, they may
begin to recognize the centrality of this issue to research on many social welfare
programs. Similarly, the examination of disability policy might help to illuminate the
focus on the concept of risks (Aharoni, 1981; Douglas & Wildavsky, 1982) by
suggesting the potential costs that could be incurred when governments fail to
provide adequate protection against harm. Furthermore, the investigation of rehabil-
itation and disability may provide an appropriate basis for approaching the evalua-
tion of public investments in human resources as an instrument of economic policy.
Far from being peripheral to the concerns of political and social scientists, the study
of disability policy seems to be an essential component of the analysis of major
government programs.
In addition, research on disability policy represents a significant contribution to
the coverage of policy issues. Disability policies comprise a large, growing, andU.S. Disability Policy 123
previously unrecognized facet of government activities; and an analysis of the values
implicit in these policies could yield new approaches to needed improvements.
Although there seems to be increasing acceptance of Nagi’s (1979: 3; 1981: 36)
definition of disability as ‘a form of inability or limitation in performing roles and
tasks expected of an individual within a social environment,” efforts to formulate
policy in this field have been surrounded by an unusual amount of fragmentation
and confusion. Perhaps this lack of conceptual clarity has been one consequence of
the tendency by political scientists and policy researchers to avoid this issue.
The purpose of this paper, therefore, is to examine the issue of public support
for disability and rehabilitation programs as a basis for the development of a
subfield or specialty focusing on disability politics and policy. The discussion
concentrates primarily on disability and rehabilitation policy in the United States.
The first section of the paper describes the gradual evolution of disability policy as a
prelude to an assessment of rehabilitation programs. Finally, several major concep-
tual issues in this field are examined; and an attempt is made to indicate the value of
the perspective that policy analysts can contribute to research on disability and
rehabilitation.
The Development of Disability Policy
One of the first groups to receive direct government assistance consisted of disabled
veterans. In America, a law enacted by the Continenal Congress in 1776 sought to
provide a lifetime pension for soldiers disabled in the Revolutionary War; but, like
many later policies, the fulfillment of this purpose was impeded by financial
instability (Obermann, 1965: 137-139). Another major source of disability policy
stemmed from the movement to secure worker’s compensation laws that emerged in
many industrialized countries around the turn of the century. The widespread
adoption of veterans’ benefits and worker’s compensation programs might even be
interpreted as reflecting an implicit assumption that persons who become disabled in
service to the military or economic interests of the state were more worthy
beneficiaries of government assistance than people who acquired a disability in other
activities. The general responsibility of governments toward persons with disabili-
ties, regardless of the cause of the impairment, apparently had not been established
in many countries by the early part of the twentieth century.
Although disabled people often are perceived as part of the ‘deserving poor’
who have experienced major losses through no fault of their own, there have been
continuing struggles over issues concerning both the extent to which they should be
provided with public benefits and the types of assistance that they ought to receive.
Like many areas of social welfare policy, the United States has lagged behind other
advanced industrialized nations in granting support to this segment of the popula-
tion. The Social Security Act of 1935, which was the major fountainhead of welfare
legislation in America, did not include major assistance to most disabled persons or
any provision for disability insurance. Perhaps even more reflective of American
attitudes toward disability in the first half of the twentieth century was the124 H. Hahn
Randolph-Shepard Act of 1936 which provided blind persons with jobs at vending
stands in public buildings.
Income support or maintenance programs currently comprise the bulk of public
expenditures for disability policies. In general, these government efforts tend to
place disabled people in a dependent status rather than encouraging them to become
independent or productive citizens; and they overshadow the size of rehabilitation
policies designed to prepare disabled persons for employment. As Bowe (1980: 4)
has pointed out, “America is spending ten dollars on dependence among disabled
people for every dollar it expends upon programs helping them to become indepen-
dent”. Public expenditures for income maintenance programs often are regarded as
fixed, ‘uncontrollable’, and irreversible costs that are almost certain to grow
continuously. Although inflation probably has accounted for most of the mounting
expense of these policies, medical improvements are just as likely to result in an
increase rather than a decline in the incidence of disability in the future (Berkowitz,
Johnson & Murphy, 1976: 17). As a result, rising expenditures have imposed an
increasing strain on government budgets throughout the world, which has prompted
a search for new approaches to the problems of disability (Smith & Gebert, 1981;
Noble, 1982).
In the 1970s, government officials began to view the barriers facing disabled
citizens as the consequences of discrimination; and increased efforts were made to
gain legal or constitutional rights for this segment of the population (Scotch, 1984).
Although the trend also emerged in many other countries, perhaps the most
extensive policy changes based on this perspective occurred in the United States. In
addition to numerous bills that sought to expand the civil rights of disabled
Americans in education, transportation, and public accommodations, Congress
enacted the Rehabilitation Act of 1973. This legislation created the Architectural
and Transportation Barriers Compliance Board to promote the removal of artificial
barriers which have prevented disabled citizens from participating in public life. In
addition, affirmative action requirements for the hiring of disabled workers were
extended to the more than 2 million companies which received more than $2,500 in
grants or contracts with the federal government. Perhaps the most significant
provision in this legislation, however, was Section 504 which stated simply:
No otherwise qualified handicapped individual in the United States ...
shall, solely by reason of his handicap, be excluded from the participation
in, be denied the benefits of, or be subjected to discrimination under any
program or activity receiving Federal financial assistance.
While this sweeping language was widely hailed as a crucial extension of the rights
of disabled Americans, policymakers began to display an increasing reluctance to
implement the law.
The major stumbling block, as usual, seemed to involve money. The first
administrative rules concerning this section were not issued until 1977 when
demonstrations by disabled protestors finally compelled the Secretary of Health,
Education, and Welfare to sign the regulations which carried a price tag of $2.4
billion, In view of the substantial expense of income support or maintenanceU.S. Disability Policy 125
programs, many critics apparently felt that the added costs of making the changes
necessary to permit disabled individuals to become full participants in society were
excessive or unnecessary. Whereas few political leaders were prepared to admit their
opposition to such expenditures publicly, the issue of government spending has
seemed to become a major device that allowed public officials to confine their
activities on behalf of disabled persons to abstract expressions of sympathy and
support while failing to provide the appropriations necessary to carry out their
promises.
The increased emphasis on legal or civil rights, however, has led to a growing
recognition that physically disabled people comprise a minority group with many of
the same problems as other disadvantaged segment of the population (Klienfield,
1979; Gliedman & Roth, 1980; Hahn, 1985a). Disabled persons not only form a
sizeable portion of welfare recipients (Bowe, 1978: 28), but they also have one of
the highest unemployment rates in the United States (Bowe, 1978: 27, 164; Bowe,
1980: 8-11). Disabled citizens have confronted barriers in architecture, transporta-
tion, and public accommodations that have excluded them from common social,
economic, and political activities even more effectively than the segregationist
policies of racist governments. Most disabled children in America have been
assigned to ‘special’ or separate schools, and many have not received any education
whatsoever (Bowe, 1978: 143-151; Gliedman & Roth, 1980: 196-237; Levine &
Wexler, 1981). Disabled individuals have been subjected not only to stereotyping,
but also to stigmatizing that has made them the targets of aversion and ostracism
(Goffman, 1963). Studies of public attitudes have revealed extensive intolerance of
disabled persons that is related to indicators of discrimination against other minority
groups (English, 1977). Like other minorities, the problems of disabled persons can
be viewed as raising the fundamental issue of the extent to which a society is willing
to take compensatory action for the discrimination and inequality it has imposed
upon portions of the population that have become the objects of widespread
prejudice.
In many respects, the struggle of disabled persons to gain an increased share of
public resources seems to be essentially similar to the strivings of other deprived
and disadvantaged minorities. Disabled workers frequently have been the victims of
economic exploitation especially in so-called ‘sheltered workshops’ which violate
organizational purposes by retaining the most productive employees at sub-standand
wages (Nelson, 1971); but, for most of recorded history, disabled people did not
appear to be sufficiently numerous or threatening to pose a threat to the social and
economic status of nondisabled members of society. In fact, some speculation has
suggested that widespread aversion toward disabled individuals may be the product
both of an ‘aesthetic’ anxiety, which narcissistically rejects marked deviations from
‘normal’ physical appearances, and of an ‘existential’ anxiety, which may find an
implicit or projected danger of dehabilitating disability even more terrifying than the
inevitability of death (Hahn, 1983). If additional support is found for these
propositions, efforts to improve the status of disabled citizens might require a
revolutionary change in social perceptions and behavior rather than mere economic
or political tinkering.126 H. Hahn
The problems created by disabilities present a critical challenge to modern
governments. What are the most effective means of coping with these problems?
The Assessment of Rehabilitation
Although issues posed by disability have broader implications than most policymak-
ers have been willing to acknowledge, perhaps the major political response to the
problem is reflected by rehabilitation policies that are primarily designed to return
disabled persons to productive employment. The United States passed a Rehabilita~
tion Act in 1920, shaped by the Smith-Hughes Act of 1917 for vocational education
and by the Soldier Rehabilitation Act of 1918, which seemed to be a means of
promoting economic growth (Obermann, 1965: 223-224, 250, 265). Many individu-
als with serious disabilities were judged infeasible for employment or training, and
the federal coordinating office of the program (quoted in Berkowitz, 1979: 44)
admitted candidly that “the justification of vocational rehabilitation is based on its
economic return”.
‘The rehabilitation program developed in the United States differs from coun-
terparts elsewhere in several crucial respects. Unlike most European countries in
which a person is determined eligible for rehabilitation initially and certified for
disability or income maintenance programs only if rehabilitation proves to be
unsuccessful, the process in America is reversed so that rehabilitation cannot be
undertaken until a finding of disability is made (Smith & Gebert, 1981). Since the
definition of disability also is linked to an inability to engage in “substantial gainful
activity,” the American practice injects ambiguity and confusion into public policy.
The American attitude toward the problem of unemployment has never seemed to
reflect the emphasis on the value of human resources that has characterized policies
in many European countries; and, unlike several of these nations, the United States
also has not devised quotas to require employers to hire disabled workers (Hahn,
1984). Perhaps the most distinctive American contribution to rehabilitation policy,
however, is the extensive role of professional rehabilitation counselors who tend to
place more emphasis on therapy and counseling than upon the enforcement of legal
rights in their efforts to prepare disabled clients for employment (Carnes, 1979).
This approach may reflect the influence of the ‘clinical model’ and of a ‘romanti-
cized individualism’ that has long permeated American culture and traditions
(Stubbins, 1982). In almost all industrialized nations, however, disability and
rehabilitation policy seems to reflect an implicit presumption that a person’s
capacity to work is determined largely by his or her individual capabilities. While
this assumption may have been appropriate to an economy founded upon manual
labor, its relevance to an economy based primarily upon the provision of services or
advanced technology might be subjected to increased scrutiny. In fact, the failure of
disability and rehabilitation policies to reflect major social and economic changes
may be the principal source of the fiscal problems that these programs have seemed
to create.
In many countries of the world, disability policies have imposed mounting
strains on government budgets that seem to threaten the capacity of the state toU.S. Disability Policy 127
cope with other welfare issues. While definitional variations and discrepancies in the
specific features of these laws are so diverse that they appear to preclude meaningful
comparative analysis, most of the policies seem to be plagued by a common
difficulty. Studies in the United States (Howards, Brehm & Nagi, 1980) and
elsewhere (Smith & Gebert, 1981; Noble, 1982) have indicated that applications for
disability or rehabilitation benefits, participation in these programs, and the costs of
the policies are closely related to prevalent economic trends. In general, as economic
conditions worsen and as employment declines, the demand for disability payments
increases, the number of eligible recipients expands, and governmental costs climb
at a time when declining revenues may create conditions of financial stringency.
There are obviously several ways of interpreting these findings. Perhaps many
disability and rehabilitation policies have subtly become an extension of public
strategies for dealing with unemployment that have enabled many workers to find a
relatively acceptable excuse for their joblessness and for the receipt of welfare
benefits. These pressures seem to exert a burden on rehabilitation programs that
may reduce the resources available to severely disabled persons. Alternatively, the
effectiveness of vocational rehabilitation may be shaped more by social and eco-
nomic circumstances than by the physical capacities or the occupational skills of
individuals with various types of disabilities.
The latter perspective seems to contain important implications for the develop-
ment of appropriate means of coping with the issue of disability. As long as the
ability to work is assumed to be a function of personal or physical capacities, income
maintenance payments to disabled beneficiaries may continue to be regarded as
fixed or ‘uncontrollable’ costs; and policymakers may display increasing resistance to
the appropriation of additional sums for rehabilitation programs. On the other hand,
if unemployment among disabled persons and the need for vocational rehabilitation
are determined primarily by social and economic conditions rather than by indivi-
dual characteristics, major problem associated with disability may not be insoluble.
What many researchers appear to overlook is the fact that in the United States
during World War II, when an exceptional demand for labor arose, there was a
significant increase in the employment of disabled workers who compiled impressive
records of productivity. Hence, many income support programs seem to be based on
a faulty—or at least highly questionable—understanding of the relationship between
disability and employability.
Despite such considerations, rehabilitation activities that might potentially
reduce the costs of income maintenance policies for disabled persons seldom have
been granted substantial increases in government appropriations. The federal-state
rehabilitation program in the United States has amassed an enviable ‘success ratio”
in placing disabled clients in competitive employment; and there has been increasing
agreement among rehabilitation professionals that, for every dollar spent in this
effort, nine or more dollars are returned to the federal treasury through taxes on the
incomes of rehabilitation workers (Bowe, 1978: 164, Bowe, 1980: 116). In 1981,
Congress managed to defeat an effort by the Reagan administration to subsume the
rehabilitation program within a general ‘block grant’ to the states where it would
have had to compete with other interests for limited resources. Yet, while federal128 H. Hahn
expenditures for rehabilitation now amount to approximately $1 billion annually,
the program has not been greeted with intense political approval.
This skepticism appears to be related to cost-benefit studies of rehabilitation
programs that have yielded highly favorable results. Research on policies ranging
from the federal-state program (Conley, 1965) to the Beneficiary Rehabilitation
Program of Social Security Disability Insurance (Berkowitz, Horning, McConnell,
Rubin & Worrall, 1982) has disclosed that rehabilitation expenses are substantially
exceeded by the economic returns to the government and the economy yielded by
expenditures for this purpose. Many of these studies have been sharply criticized by
Levitan & Taggart (1977) for their failure to include control groups and for other
methodological deficiencies. Yet, a careful review by Kiser (1973: 395) of eight
major cost-benefit analyses of rehabilitation programs concluded:
Even if we grant a wide margin of error to the results and arbitrarily
reduce the ratios by one-half, the average returns to an investment in
vocational rehabilitation are phenomenal. Investors should be rushing
captial into this field, for there are few other areas where returns are so
high.
Perhaps part of the difficulty with cost-benefit analyses results from conflicting
normative assumptions.
In addition, however, there seems to be an implicit and frequently unstated
tension between the theoretical orientation of cost-benefit research and studies
concerning the legal rights of citizens with disabilities. If the major problems of
disabled persons stem from discrimination and from the denial of civil rights in
employment as well as other areas of life, government programs based on favorable
cost-benefit calculations might even be perceived as somewhat irrelevant to the
resolution of their principal difficulties. By contrast, many traditional economic
analyses do not appear to reflect an awareness that bias and prejudice may play a
fundamental role in the extraordinarily high rates of unemployment found among
people with disabilities. Some attempts to reach a compromise between these
positions may be reflected in legal regulations, which are strongly influenced by
economic considerations, requiring employers to make “reasonable accommoda-
tions” to the needs of disabled workers (Scotch, 1984). Yet the underlying conflict
between the perspectives seems apt to provoke a continuing strain among econom-
ists and political scientists or lawyers who engage in the analysis of rehabilitation
policies.
Surveys of the opinions of the American public and of political leaders also
have indicated widespread support for additional government programs to improve
the social and economic status of disabled people (Bowe, 1980: 12-16). Although
there is evidence that sentiments about these programs are beginning to mirror the
partisan divisions permeating most political issues (Kamieniecki, 1985), policies for
disabled citizens still enjoy more extensive public approval than most other legisla-
tive proposals. Since budgetary decisions often are guided by public attitudes, the
explanation for the absence of a strong and concerted political movement to reduceU.S. Disability Policy 129
the expense of income maintenance or support programs for persons with disabili-
ties by increasing allocations for rehabilitation must be sought in other sources.
Part of the problem may be related to specific features of disability and
rehabilitation policies. Traditionally, the successful placement of a disabled client in
a rehabilitation program has been defined by a so-called ‘closure’, in which
employment is secured for only a short period of time. Since the number of eligible
applicants has almost always exceeded the number of persons admitted to rehabilita-
tion programs, counselors have been vulnerable to the charge of ‘creaming’, or
inflating their success rates by selecting cooperative clients who can be readily
rehabilitated. Many rehabilitation counselors fear that the Rehabilitation Act of
1973, which requires them to assign the highest priority to severely disabled persons,
will result in declining placement ratios which might, in turn, jeopardize the chances
of continued government funding. In addition, disability policies have been plagued
by the problems of “disincentives” (Berkowitz, 1981), which may encourage many
recipients of disability benefits who are vulnerable to catastrophic medical costs to
refrain from seeking employment due to the fear of losing health care protection,
and of rehabilitation training that often prepares disabled persons only for positions
in the secondary labor market that provides few opportunities for upward mobility
(Feagin, 1975: 85-86).
Perhaps the basic issue, however, is the assumption, contained in most disabil-
ity policies, that the ability to work is determined principally by physical or other
individual capacities. Rehabilitation programs generally are designed to achieve a
modification of the disabled individual rather than an alteration of the environment
—or the worksite—in which (s)he may be located. This approach may reflect some
fundamental economic misconceptions. As Roth (1981: 200) has pointed out:
A handicap is expressive of a contingent relationship between a different
body and a given society. That relationship can be altered by changing the
body or by adjusting to the conditions of the society. On the other hand
the relationship can be changed by altering society. The same holds true
for work as a central part of the society: One can change the person or
change the work. But usually the handicapped person cannot be substan-
tially changed... The other way would be to change the organization of
production, a theoretical possiblity even if it is thought in practice to be
too expensive; indeed, it may be the least expensive alternative in the long
run.
This analysis could be construed as suggesting that the mere spending of money
might be a somewhat misleading issue in the development of disability and
rehabilitation policy. Governments have been willing to allocate vast amounts for
income support programs that have preserved the dependent status of disabled
people, but they have been reluctant to increase appropirations for rehabilitation
programs that could reduce public expenditures by granting disabled citizens
enhanced independence. Perhaps more fundamental financial interests are at stake
here. Although many social and economic roles are apparently planned for a
mythical individual who has not experienced any decline in personal faculties, the130 H. Hahn
prospect of making environmental modifications to accommodate people who
represent a marked departure from conventional physical or behavioral character-
istics may involve a threat to values that have a complex rather than a simple
relationship to economic motives.
One possible interpretation not only of the failure to expand government
spending for rehabilitation programs to reduce the costs of disability but also of the
relative neglect of this issue is suggested by the concept of paternalism, which has
generally been ignored in the study of policy issues. In a fundamental sense,
paternalism reflects a relationship of superiority and inferiority between segments of
society occupying parental and child-like roles that are simultaneously benevolent
and exploitive (Bennett, 1968). In fact, paternalistic relationships may mark a
crucial stage in the struggle of deprived and disadvantaged minorities to fulfill their
political goals. As noted elsewhere (Hahn, 1982):
Paternalism enables the dominant elements of a society to express pro-
found and sincere sympathy for the members of a minority group while, at
the same time, keeping them in a position of social and economic
subordination. It has allowed the nondisabled to act as the protectors,
guides, leaders, role-models, and intermediaries for disabled individuals
who, like children, are often assumed to be helpless, dependent, asexual,
economically unproductive, physically limited, emotionally immature, and
acceptable only when they are unobstrusive ... Politically, disabled people
usually have been neither seen nor heard. Paternalistic attitudes, therefore,
may be primarily responsible both for the ironic invisiblity of disabled
persons and for the prior tendency to ignore this important area of public
policy.
Prior analyses apparently have not been sufficient to dislodge the attitudes and
assumptions underlying an allocation of resources that has perpetuated the subservi-
ant status of disabled persons. The problem appears to extend beyond simple
budgetary considerations. To gain an adequate understanding of the issue of public
support for disability and rehabilitation policy, there is a major need to reconceptu-
alize the issue
Conceptual Issues
Perhaps the principal barrier to the evaluation of rehabilitation policy is the absence
of extensive agreement about the nature and meaning of disability. At least three
different definitions have been utilized in government plans for disabled individuals
in the United States. Each of these perspectives encompasses diverse policy
implications as well as distinctive approaches to the allocation of public resources.
Popular understandings of disability usually reflect a stictly medical definition
that stresses functional limitations. From this vantage point, disabilities are treated
as distinct diagnostic categories, and little attempt is made to focus on their common.
problems. In the formulation of most disability policy, the diagnosis of the origins of
a bodily condition may have limited social, economic, or political significance.U.S. Disability Policy 131
Nonetheless, in disability and rehabilitation programs, a medical determination
usually is an essential prerequisite for participation. As research has indicated
(Stone, 1984), the difficulty of extrapolating vocational potential from medical
diagnosis, and of weighing the many social and economic influences that may
impinge upon a person’s capacity to gain productive employment, has been a major
source of the problems confounding the administration of disability policies in the
United States.
The pervasiveness of a medical orientation to disability might be one facet of
what Illich (1976) has termed “the medicalization of life”. This definition not only
appears to impose an assumption of biological inferiority upon disabled individuals;
but it also impedes a realization of the structural sources of disability. From a
medical perspective, problems seem to arise primarily from deficiencies within a
person’s body rather than from defects or flaws in an unadaptive society; and
solutions must be pursued through individual rather than collective effort. Under
the aegis of the health professions, important issues about disability are “depoliti-
cized”. However, as Gliedman & Roth (1980: 301) have pointed out, assumptions
about the functional limitations imposed by disability may ultimately prove to be
little more than a “cultural invention”.
Another definition of disability, widely adopted by government officials, fo-
cuses almost exclusively on the economic problem of employment. This approach
implies that a disability means a “health-related inability” or limitation on the
amount or kind of work that can be performed (Berkowitz, Johnson & Murphy,
1976: 7-8). By suggesting that unemployment may stem from flaws in the economy
rather than solely from the deficiencies of a disabled worker, research has moved
toward indicating the connection between individual and social aspects of disability;
but physical, behavioral, and vocational limitations are still viewed as the primary
problems that prevent disabled men and women from gaining jobs. Policies based on
this definition are usually controlled by officials and by counselors who do not
question prevalent assumptions about disability and employability. In some situa-
tions, disabled individuals who successfully secure employment may be classified as
nondisabled; and, in other circumstances, unemployed nondisabled workers might be
treated as disabled because there is no longer a demand for their skills. While the
implications of an economic definition of disability seem to indicate a need for
additional support for vocational rehabilitation, this perspective contains pitfalls
that represent an incomplete solution to the problem.
Policies founded on an economic understanding of disability also include
features that are disadvantageous to disabled men and women. Many rehabilitation
programs seem to assign an exaggerated stress on training for entry-level jobs and
on manual labor. Not only is this focus incompatible with the demands of post-
industrial economies; but it has also seemed to prevent disabled workers from
upgrading their skills. Rehabilitation practices ofen have diverted attention from
employer attitudes and bias or discrimination as a significant obstacle to employ-
ment. The economic definition represents an essentially one-dimensional approach
to the problems of disability. Many disabled people contend that it has transformed
them into an economically managed but politically vulnerable segment of society.132 H. Hahn
Both medical and economic conceptualizations are being increasingly challenged,
however, by a new socio-political definition of disability. This trend reflects a steady
progression from an inclination to identify disabled persons as a ‘deprived’ (Gellman,
1959) or a ‘disadvantaged’ group (Jordan, 1963), through an equivocal status (Safillios-
Rothchild, 1970: 114~115), and ultimately to accord them the designation of a
‘minority’ (Kleinfield, 1979; Gliedman & Roth, 1980; Hahn, 1985a). Perhaps the major
contribution of this approach, which has provided the foundation for a new emphases
on legal and civil rights, is the recognition that improvements in the status of disabled
people require changes primarily in the external environment rather than in their
physical or economic skills. Fundamentally, the socio-political model implies that
disability stems from the failure of a structured social environment to adjust to the
needs and aspirations of citizens with disabilities rather than from the inability of a
disabled individual to adapt to the demands of society.
In part, the socio-political perspective on disability is drawn from sociological
theories of stigmatizing (Goffman, 1963) and labeling (Bogdan & Biklen, 1981).
Emphasis is directed at the consequences of perceptions that are formed on the basis
of visible and permanent physical or behavioral characteristics. As a result, the
socio-political definition is sufficiently expansive to encompass persons with mental
as well as physical disabilities. Although precise distinctions between mental,
physical, emotional, and learning impairments have not been drawn as yet, disabili-
ties may eventually be regarded as similar to other personal attributes such as skin
color, gender, or aging that have been employed as a means of differentiation and
discrimination for centuries. Such traits have been used in much of recorded history
to categorize individuals primarily on the basis of their appearance. In contrast to
the definitions that reflect professional evaluations, this new perspective seeks to
embody the social meaning of disability that is derived primarily from the lived
experience of disabled men and women.
The socio-political definition has become the foundation for a new ‘minority
group’ paradigm that is currently competing with the traditional ‘functional limita-
tions’ model in the study of disability (Hahn, 1985a). Unlike prior theories that
have evolved primarily from the fields of education, psychology, medicine, and
economics, the socio-political approach and the minority group model represent an
effort to increase the congruence between the conceptualizations used in research on
disability and the perceptions of disabled people themselves. The latter perspective
is based on an explicit acknowledgement of the fact that many persons with
disabilities identify discriminatory attitudes rather than functional impairments as
the principal problem that they confront. The most prominent proponents of the
minority group paradigm in the United States also have tended to be disabled
researchers who have employed both personal experience with disability and acade-
mic training in the development of their approach to the study of this subject.
Hence, studies founded on a socio-political orientation reflect a significant attempt
to bridge the gap between disability as a social construct, or the relatively abstract
concepts guiding research and disability as a social creation, or the actual experi-
ences of disabled citizens, which has been conspicously absent in most previous
investigations of the issue.U.S. Disability Policy 133
The socio-political perspective also provides an important means of examining
the linkage between governmental responses to disability and dominant modes of
production. In many respects, it may seem relatively obvious and simple to argue
that people with disabilities comprise an industrial reserve that is ordinarily
excluded from the labor force, except in war-time or other emergencies, on the
assumption that functional limitations interfere with productivity. While there
appears to be little doubt that the massive joblessness of disabled adults has
effectively reduced the social pressures of unemployment on governments and that
disabilities often have been utilized by employers to eliminate workers who are
presumed to possess less vitality than their nondisabled counterparts, this interpre-
tation fails to take adequate account of the discrimination that has been imposed
upon disabled people and other minorities because of visible differences in their
appearance. A more sophisticated explanation of the relationship between industrial-
ization and the prevalent unemployment of persons with disabilities in the United
States might also include an examination of the rise of an economy of consumption,
the extraordinary promotion of products designed to reshape personal appearance,
the prevalence of advertising and other visual messages subtly indicating the human
attributes that may be devalued in the labor market or elsewhere as well as the
almost unattainable standards that consumers are expected to approximate, and the
continuous reinforcement of these images by the mass media. From this perspective,
the presence of a disability may be viewed in the same manner as skin color, gender,
or aging as a basis for excluding persons with such characteristics from competition
for positions in the work force and in other social activities. Hence, the prejudice
evoked by visible physical or behavioral differences is not irrelevant to an interpre-
tation of the role of people with disabilities in a capitalistic economy. Moreover, the
effort to reduce discrimination by legislation or other official means may not
necessarily be a futile or self-defeating endeavor. On the contrary, the adoption of
anti-discrimination policies might represent an essential stage in a process that could
lead to the emergence of new values to replace the narissistic symbols of the
dominant majority that permeate modern society. In a fundamental sense, the
ultimate origins of the problems facing disabled citizens probably can be traced to
the nature of economic systems such as capitalism, but this viewpoint need not deter
active participation in the struggle to expand the civil rights of this segment of the
population.
Ideally, solutions to the problems identified by the socio-political approach seem
to require a revolutionary change in thinking that would enable human beings to
evaluate others on the basis of characteristics that are not overshadowed by the visible
and salient manifestations of a disability. Yet, significant progress can be accomplished
through efforts that are designed to alter laws, institutions, and behavior. To cite only a
few examples, the removal of architectural barriers, the ‘mainstreaming’ or integration
of disabled students in regular classrooms, and attempts to eliminate discrimination in
transportation, housing, and public accommodations could provide disabled and
nondisabled citizens with increasing opportunities to interact as equals. On the basis of
such experiences, both groups might gain valuable insights about tolerance, acceptance,
and the dignity and worth of human beings.134. H. Hahn
There is probably no area of public policy that is untouched by the problem of
disability; and the task of creating the conditions that would permit disabled persons
to achieve true equality and freedom may comprise a much more imposing political
agenda than government officials currently realize. While the costs of such an effort
are largely unknown, they must be weighed in relation both to ethical considerations
and to present expenditures for government programs that have kept most disabled
persons in a dependent and subservient position. In the long run, the price of
equality may be much lower than is commonly supposed.
In the past, disabled citizens have seemingly been smothered by a form of
paternalism that has made it difficult for them to protest their social, economic, and
political oppression. Public leaders have usually appeared to be sympathetic to their
plight; but policy decisions regarding this segment of the population have been
dominated by professionals. Traditionally, disabled citizens have been consigned to
the role of passive onlookers in the political process. Although abstract promises
frequently have not been followed by effective implementation, issues regarding
disability and rehabilitation policy seldom have provoked extensive conflict. If
political activation among disabled citizens requires both a positive self-image and a
realistic recognition of the negative views that are projected on them by society
(Anspach, 1979), the customarily dormant political status of this segment of the
population may be readily understandable. The recent emergency of a socio-political
orientation founded on an experiential understanding of disability might produce a
radical transformation of this position. Perhaps most importantly, political leaders
may find it increasingly difficult to raise financial arguments as a defense against the
failure to fulfill the goals of disabled people. Prior policies seem to have been based
on major misconceptions about the nature of disability that have imposed serious
burdens on government budgets. While the precise costs of programs reflecting a
new approach to the problem cannot be determined as yet, they could prove to be
less expensive and more beneficial than their predecessors. Moreover, disability and
rehabilitation policy might represent a field in which it is necessary to spend money
in order to save. As a realistic point of departure for the serious exploration of this
alternative, Bowe (1980) has proposed a ten-year program of $22 billion a year to
reduce the effects of disability by expanding research and development; removing
architectural, transportation, and communication barriers; training disabled persons;
and reforming dependence-oriented programs.
Perhaps much of the prior cost of disability policy resulted from an indequate
appreciation of the many dimensions of the problem. While a medical definition of
disability seemed to prompt a demand for increasing expenditures for health care, an
economic perspective appeared to contribute to growing allocations for income
maintenance programs. In large measure, therefore, appropriations to expand the
civil rights of disabled persons through the removal of educational, architectural,
transportation, and other barriers need not be regarded as an additional expense.
Instead, the development of policies based upon a socio-political definition of
disability reflects an alternative approach that has a significant potential of reducing
the costs of earlier measures. What appears to have been overlooked in the analysis
of disability and rehabilitation programs is that the definition of disability isUS. Disability Policy 135
fundamentally a policy question. In seeking appropriate and effective means of
ameliorating this problem, government decision makers are not required to accept
the theoretical orientations and assumptions that have guided prior efforts. On the
contrary, the ability to escape the constricting influence of the past may be essential
to the formulation of innovative policies.
In this assessment of support for disability and rehabilitation programs, an
attempt has been made to indicate the usefulness of policy analysis for the
clarification of political alternatives. By probing the assumptions and values that
have formed the foundations of these policies, some important insights may be
gained concerning the allocation of public resources. Perhaps more importantly, an
effort has been made to correct the prior neglect of a significant area of public
policy. While major progress is being made in the development of an economics of
disability, a psychology of disability, and a sociology of disability, similar move-
ments have not yet emerged in the study of politics. Hopefully, some of the
considerations contained in this paper might serve as a basis for stimulating the
formation of a comparable field in political science.
NOTE
This is a revised version of a paper presented at the International Political Science Association
meetings, Rio de Janiero, Brazil. The revisions were prepared in part during a time when the author
received support from National Science Foundation Grant No. CEE 83-0364 and a fellowship from
the National Institute of Handicapped Research. However, any opinions, findings, conclusions, and/or
recommendations are those of the author and do not necessarily reflect the views of the granting
agencies.
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