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Annotated Bibliography

This annotated bibliography contains summaries of 5 sources related to amyotrophic lateral sclerosis (ALS) and caretaking for those with ALS. The sources discuss the progression and symptoms of ALS, tips for caretaking, how ALS affects quality of life and life expectancy, and the toll that caretaking can take on families. Notably, one source profiles Stephen Hawking and his unusually long survival with ALS. Overall, the sources provide information on understanding and caring for those suffering from ALS.

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0% found this document useful (0 votes)
196 views6 pages

Annotated Bibliography

This annotated bibliography contains summaries of 5 sources related to amyotrophic lateral sclerosis (ALS) and caretaking for those with ALS. The sources discuss the progression and symptoms of ALS, tips for caretaking, how ALS affects quality of life and life expectancy, and the toll that caretaking can take on families. Notably, one source profiles Stephen Hawking and his unusually long survival with ALS. Overall, the sources provide information on understanding and caring for those suffering from ALS.

Uploaded by

api-355711522
Copyright
© © All Rights Reserved
We take content rights seriously. If you suspect this is your content, claim it here.
Available Formats
Download as DOCX, PDF, TXT or read online on Scribd
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Mitchell 1

Glenn Mitchell

UWRT 1104

Professor Jizi

29 March 2017

Annotated Bibliography

"Asked and Answered Canadian Virtual Hospice." Asked and Answered Canadian Virtual

Hospice. N.p., n.d. Web. 08 Apr. 2017.

This source is a web article that first talks about the early stages of ALS and how

it can be slow to notice someone that has it. It also says in the early stages of being

diagnosed they may give you specialized team of different doctors that will help you

along the way. This source also goes into detail on how ALS affects eating and breathing

and they give tips on how to get around those difficulties such as feeding tubes or

breathing machines.

This article is relevant to my inquiry project because it gave me more information

on how ALS affects the body such as eating and breathing. It also raised the question to

me of how long do people with ALS normally live so Im going to use that to help me

find another article about it.

This is a valid source because it comes from Virtual Hospice which has a lot of

professionals in many fields that work for them and they provide information on the

topics. The website has a lot of testimonials from people about the information they have

received and how it has helped and Virtual Hospice keeps adding professionals to their

team as they keep growing larger.


Mitchell 2

Bartels, EJ. "Amyotrophic Lateral Sclerosis. Helping the Patient with Lou Gehrig's Disease." Rn.

42.12 (1979): 48-50. Print.

In this source Bartel was first discussing how when he was trying to help his

patient Joe with ALS he must first research what ALS is so that there is no confusion.

Bartel was saying the definition of what ALS is and what parts of the body it can affect

and how it can affect it. After that he goes into depth of how you can actually help

someone with ALS and he breaks it down based on which part of the body is affected.

He also gives tips on how to help someone with ALS when they are eating such as

keeping their head in a certain position. Bartel states that while working with someone

with ALS you should be there for them but also check on yourself so you dont stop

paying attention to yourself.

This article is relevant to my inquiry project because I am trying to find ways in

which I can help someone with ALS and be a better caretaker for that person. It also has

helped me think about where to go next in my sources as I need to research more into

ALS to figure out what exactly it is because I know what it is but it would be better to go

into more detail. The article also fits into my project because it gave me real life tips on

how I can help someone and it gives me hope to help more people and be more

successful when helping someone.

This is a valid and credible source because it was a journal that EJ Bartel wrote

about his personal findings while working with those with ALS and he also used research

and data to back up his points. Since the information given was from his journal it is

credible because he did research about ALS and has written plenty of other journals about
Mitchell 3

ALS. It was also reviewed by someone to make sure the information was correct but the

name of who reviewed it was not given.

Mark Stibich, PhD - Reviewed by a Board-certified Physician. "What Is the Life Expectancy of a

Person With ALS?" Verywell. N.p., n.d. Web. 08 Apr. 2017.

This source starts off by giving a brief explanation of what ALS is which is a

neurodegenerative disease that affects nerve cells in the brain and spinal cord. It then

goes into giving some fact about the average life expectancy of someone that has ALS.

Over 50% live over 3 years, 20% live over 5 years, 10% over 10 years and 5% over 20

years. It then goes into details about ways you can increase your life expectancy such as

medication, noninvasive ventilation, and percutaneous endoscopic gastronomy. Right

now, the only medication approved by the FDA is Riluzole which helps prolong life

expectancy for a few months but there is other medication that will help their quality of

life. Noninvasive ventilation helps increase life expectancy 7-11 months and it uses a

tube and a mask to help you breath. Percutaneous endoscopic gastronomy is a tube thats

placed in the stomach and it helps keep body weight stable.

This article is relevant to my inquiry project because knowing ways to increase

life expectancy is something people helping those with ALS should know. Knowing

what medication may help increase life expectancy and also make their quality of life

good is something important to know because already having the disease is bad. This

source raised the question of if there is someone who has lived for a long time while
Mitchell 4

having ALS. It will be interesting to see how they have survived and maybe how people

can use what they did to increase their survival time.

This is a valid source because it is written by Mark Stibich who has a PhD from

Johns Hopkins School of Public Health. He is the founder and Chief Scientific Officer

for Xenex Healthcare Services which is a company that uses a disinfection system they

made to make patient care areas safer. This source is also valid because it is reviewed by

a board-certified physician and the source Stibich used were from the ALS website.

McCoy, Terrence. "How Stephen Hawking, Diagnosed with ALS Decades Ago, Is Still

Alive." The Washington Post. WP Company, 24 Feb. 2015. Web. 09 Apr. 2017.

This article is about Stephen Hawking who Is a man that was diagnosed with ALS

and he has been living with ALS for so long. The article talks about how Hawking

shouldnt be able to do what he can now because of the ALS. The article also talks about

how the average lifespan of someone with ALS is 2-5 years and how Hawking has passed

the two-decade mark twice which leads people to wonder how is he still alive. It talks

about how Hawking got ALS when he was 22 which is a young age to have ALS and that

can be one of the reasons why he has lived longer.

This article is relevant to my inquiry project because Stephen Hawking is

someone who has ALS and while researching about ALS in my project his name came up

a lot. Also, it is relevant because they go into depth to see how Stephen Hawking has

lived so long and that information can help when helping someone with ALS. This

article didnt bring up any new questions for my project but it answered questions I had

made during my inquiry project.


Mitchell 5

This source is valid because it is an article in The Washington Post which is a well

respected newspaper that a lot of people read. It is written by Terrence McCoy who is a

writer for the Washington Post and he writes a lot of articles about different topics such as

solutions to social problems, poverty, social justice and more. He is a well respected

writer and he has been with the Washington Post for a long time as well which shows that

he is very reliable.

02, 2015 Linda Matchan Globe Staff January. "Caring for ALS Patient Takes Toll on

Extraordinary Family - The Boston Globe." BostonGlobe.com. N.p., 02 Jan. 2015. Web. 09 Apr.

2017.

This article is about how helping someone with ALS can have an effect on the

person helping them and the patients family. In this article they interviewed a family in

which the mother Joanne has ALS and John, Melissa, and Melissas father Michael

Rocha are taking care of her. Joanne has been in the hospital and ALS has taken over her

body but she said she wants to stay alive for as long as she can and it influences the

family. The family must go every day to the hospital and they help take care of her and

they havent gone on vacation in over 12 years because they are constantly always

worried about her. They all admit to how hard the process is of helping Joanne is and

they have their own health problems themselves but they cant focus on them since they

are focused on her.

This article is relevant to my inquiry project because I wanted to learn about

helping someone with ALS and this helps talk about helping someone with ALS and the

affects it can have on your life. I think it is important to know about these things before

you start helping someone because your life is important also. It is also very relevant to
Mitchell 6

my inquiry project because it is an interview of a family that is affected by ALS and

hearing the information they share personally can really help me learn about being a

caretaker and making sure I still watch my life also.

This is a valid source because it is from the Boston Globe and it was an interview

that was done of a family that is affected by ALS. The information shared in the

interview is all shared first hand by the family which helps the validity and also with it

being the Boston Globe which is a reputable source helps increase the validity even more.

The Boston Globe has been around for a long time and people all across the United States

read it.

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