Mortality Toolkit PDF
Mortality Toolkit PDF
for Improvement
Introduction
This toolkit is based on the Royal College of We would like to thank the members of the mortality review steering groups who have engaged with the regional
Physicians’ National Mortality Case Record programmes and enabled us to put this toolkit together.
Review Programme and the regional work
carried out by the Academic Health Science Yorkshire & Humber AHSN:
Networks (AHSN) in Yorkshire and Humber Acute Trusts: Airedale NHS Foundation Trust, Barnsley Hospital NHS Foundation Trust, Bradford Teaching Hospitals
and in the West of England.
NHS Foundation Trust, Calderdale and Huddersfield NHS Foundation Trust, Doncaster and Bassetlaw Teaching
Hospitals NHS Foundation Trust, Harrogate and District NHS Foundation Trust (national pilot site), Hull and East
Yorkshire Hospitals NHS Foundation Trust, Leeds Teaching Hospitals NHS Trust, Mid-Yorkshire Hospitals NHS Trust,
North Lincolnshire and Goole NHS Foundation Trust, Rotherham NHS Foundation Trust, Sheffield Teaching Hospitals
NHS Foundation Trust, York Teaching Hospital NHS Foundation Trust (national pilot site).
Mental Health Trusts: Bradford District Care NHS Foundation Trust, Humber NHS Foundation Trust, Leeds and
York Partnership NHS Foundation Trust, South West Yorkshire Partnership NHS Foundation Trust
1
Aim Licence
This toolkit aims to support the This toolkit was created in collaboration with the Royal College of Physicians, Yorkshire & Humber AHSN
implementation of the Structured Judgement Improvement Academy, and the West of England AHSN.
Review (SJR) process to effectively review the
The toolkit template is © West of England AHSN 2018, and provided under licence for use under the following
care received by patients who have died. This
terms:
will in turn allow learning and support the
development of quality improvement initiatives • Attribution — You must give appropriate credit, provide a link to the licence, and indicate if changes
when problems in care are identified. were made. You may do so in any reasonable manner, but not in any way that suggests the licensor
endorses you or your use.
This toolkit also provides information and links
to resources on change management and • Non Commercial — You may not use the material for commercial purposes.
quality improvement methodologies.
• Share Alike — If you remix, transform, or build upon the material, you must distribute your contributions
under the same licence as the original.
Who will benefit from this
• No additional restrictions — You may not apply legal terms or technological measures that legally
document?
restrict others from doing anything the licence permits.
This document is for those wishing to
implement the SJR process at a regional or
local level, with specific reference to clinicians,
managers, commissioners and trainers in
secondary and tertiary care. It should also This document is version 1.3 June 2018
be useful as a reference for community and
primary care providers.
2
Glossary Contents
AHSN Academic Health Science Network Introduction.................................................................................................................................................. 1
National picture............................................................................................................................................ 6
EOL End of Life
Structured Judgement Reviews: an overview................................................................................................. 7
HSMR Hospital Standardised Mortality Ratio
Structured Judgement Reviews: the component parts................................................................................... 8
LD Learning Disability
Undertaking a Structured Judgement Review................................................................................................ 9
LFD Learning from Deaths
Operational process.................................................................................................................................... 10
NHSE NHS England
Case study of a Structured Judgement Review............................................................................................ 11
NHSI NHS Improvement
Where do Structured Judgement Review outcomes fit?............................................................................... 15
NMCRR National Mortality Case Record Review How to embed SJR into your organisation................................................................................................... 19
PPI Patient and Public Involvement Spreading SJR within your organisation....................................................................................................... 18
RCP Royal College of Physicians Known challenges....................................................................................................................................... 22
SMHI Summary Hospital-level Mortality Yorkshire & Humber AHSN Improvement Academy Experience.................................................................... 29
Indicator Learning and Quality Improvement............................................................................................................. 30
TEP Treatment Escalation Plan Authors ..................................................................................................................................................... 36
Resources................................................................................................................................................... 37
3
About Academic Health Science Networks (AHSNs)
What is the role of AHSNs? partnership body that bring together all partners
across a regional health economy to improve the
As the only bodies that connect NHS and
health of local communities. We have a remit
academic organisations, local authorities, the third
from NHS England to occupy a unique space
sector and industry, we are catalysts that create
outside of the usual NHS service contract and
the right conditions to facilitate change across
performance management structures. This enables
whole health and social care economies, with a
us to foster collaborative solutions. We use our
clear focus on improving outcomes for patients.
local knowledge and harness the influence of
This means we are uniquely placed to identify and
our partners to drive change on the ground and Yorkshire & Humber
spread health innovation at pace and scale; driving
integrate research into health improvement. We
the adoption and spread of innovative ideas and
are as interested in seeing healthcare businesses
technologies across large populations. Although
thrive and grow, creating jobs and bringing in
small organisations – which ensures we remain
investment to the UK, as we are in seeing the
flexible and responsive to emerging opportunities
healthcare system improve.
and challenges – we lead large regional networks.
Hence our impact rests in our ability to bring Patient Safety Collaboratives
people, resources and organisations together
Each AHSN hosts a Patient Safety Collaborative
quickly, delivering benefits that could not be
(PSC) which is commissioned by NHS
achieved alone.
Improvement. PSCs work with organisations
How are AHSNs different and nationally and regionally to help support and
distinct? encourage a culture of safety, continuous learning West of
England
and improvement.
Everything AHSNs do is driven by two imperatives:
improving health and generating economic
growth in our regions. We are the only
4
Background
The National Mortality Case Record • NHS Highland (Scotland) The programme is enabling closer work between
Review programme • York Teaching Hospital NHS Foundation Trust AHSNs and healthcare colleagues to address
• Harrogate and District NHS Foundation Trust deficiencies in patient care that are identified,
Most Acute Trusts have systems in place to ensure
• University Hospital of South Manchester NHS through continuous quality improvement, and
patient safety and quality of care. Many of these
Foundation Trust sharing of best practice.
include ways of reviewing hospital deaths, often
• St George’s University Hospitals NHS
by detailed review of the case notes, to identify
Foundation Trust
areas that could be improved and areas of good
• West of England AHSN.
practice that could be expanded. However, it
has been noted that there is often variability Mortality reviews
in such review processes and the extent from
Aim
which learning is gathered and utilised to inform
practice. The NMCRR programme’s aim is to improve Themes
understanding and learning about problems
In order to standardise mortality reviews across
and processes in healthcare associated with
the country the National Mortality Case Record
mortality, and also to share best practice. It Quality improvement initiatives
Review (NMCRR) programme was commissioned
helps healthcare professionals to identify
by Healthcare Quality Improvement Partnership
themes and address deficiencies in processes
(HQIP) and funded by NHS Improvement in 2016.
and patient care.
This programme is being delivered across England
and Scotland by the Royal College of Physicians in The programme aims to introduce the
partnership with the Yorkshire and Humber AHSN standardised and evidence based Structured
Improvement Academy and DATIX. Judgement Review (SJR) methodology for
reviewing case records of adult patients who have
This programme is based on the Yorkshire and
died in acute general hospitals. The primary goal is
Humber mortality review programme set up by
to improve healthcare quality through qualitative
the YHAHSN Improvement Academy in 2014.
analysis of mortality data using a standardised,
The NMCRR pilot phase ran from July 2016 to validated approach linked to quality improvement
January 2017 and the pilot sites were: activity.
5
National picture
1
Care Quality Commission. Learning, candour and www.england.nhs.uk/south/publications/ind-invest- 5
National Quality Board. National Guidance on
accountability. A review of the way NHS trusts review reports/wessex/southern-health/ Learning from Death: A Framework for NHS Trusts
and investigate the deaths of patients in England. 2016. and NHS Foundation Trusts on identifying, reporting,
www.cqc.org.uk/sites/default/files/20161213-learning- 3
Report of the Mid Staffordshire NHS Foundation Trust investigating and learning from deaths in care.
candour-accountability-full-report.pdf Public Inquiry (“Francis report”). February 2013. March 2017. www.england.nhs.uk/wp-content/
www.midstaffspublicinquiry.com/ uploads/2017/03/nqb-national-guidance-learning-from-
2
Independent review of deaths of people with a deaths.pdf
Learning Disability or Mental Health problem in contact 4
Report of the Morecambe Bay Investgation (“Kirkup
with Southern Health NHS Foundation Trust April 2011 report”). 2015. www.gov.uk/government/organisations/
to March 2015. December 2015. morecambe-bay-investigation
6
Structured Judgement Reviews: an overview
1
Hutchinson A, Coster JE, Cooper KL, Pearson M, Bradford, The Yorkshire and the Humber Improvement March 2017. www.england.nhs.uk/wp-content/
McIntosh A, Bath PA. A structured judgement method Academy. www.improvementacademy.org/documents/ uploads/2017/03/nqb-national-guidance-learning-from-
to enhance mortality case note review: development Projects/mortality_review/IA%20SJR%20Report-%20 deaths.pdf
and evaluation. BMJ Quality and Safety 2013;22:1032– 2015.pdf
1040. DOI: 10.1136/bmjqs-2013-001839 4
Royal College of Physicians. Using the Structured
3
National Quality Board. National Guidance on Judgement Review method - A guide for reviewers.
2
Hutchinson A, McCooe M & Ryland E. 2015. A Learning from Death: A Framework for NHS Trusts London: RCP, 2017. www.rcplondon.ac.uk/sites/
guide to safety, quality and mortality review using and NHS Foundation Trusts on identifying, reporting, default/files/media/Documents/NMCRR%20guide%20
the structured judgement case note review method. investigating and learning from deaths in care. England_0.pdf
7
Structured Judgement Reviews: the component parts
Explicit Judgement Comments It is recommended that explicit statements use Phase of care scores
judgement words and phrases e.g. ‘good’,
Here the reviewer makes explicit judgement Once explicit judgement comments are made, the
‘unsatisfactory’, ‘failure’ or ‘best practice’.
comments on the phase/overall care reviewed reviewer then applies a phase of care/overall care
which allows the reviewer to concisely describe RCP examples of explicit judgement comments: score.1
and assess the safety and quality of care provided.
Very good care – rapid triage and Only one score is given per phase of care and is
Judgement comments can be made on anything identification of diabetic ketoacidosis with not required for each judgement statement.
the reviewer thinks is pertinent to a particular appropriate treatment.
This allows the reviewer to come to a rounded
case, including technical aspects of care such as
Overall, a fundamental failure to recognise judgement on the phase of care being reviewed,
management plans, whether care meets good
the severity of the patient’s respiratory which is particularly useful when there is a mix of
practice and the interventions undertaken. More
failure. good and poor elements of care.
holistic aspects of care such as end-of-life decision
making and involvement of families are also Therefore a phase of care could identify elements
reviewed. of poor care and still be rated a positive score
overall if there were also elements of care that
were very good.
1
Royal College of Physicians. Using the Structured
Judgement Review method - Data collection form.
London: RCP, 2017 https://www.rcplondon.ac.uk/
file/5065/download?token=ad_j5n6M
8
Undertaking a Structured Judgement Review
9
Operational process
10
Case study of a Structured Judgement Review
Patient treated for LRTI. Increased confusion Case meets automatic inclusion criteria outlined
noted in morning 29/09/2017 – NEWS 2 – HR in Figure 1 – as family concerns had been raised.
99, Sp02 – 95% on air. Further deterioration in Case therefore subject to an SJR. Due to overall
condition noted in evening 29/09/2017 – NEWS care score and no problems in care identified not
5 – BP 102/70, HR – 110, Temp 38.3, Sp02 – for further review.
92% on air. Sepsis bundle started, consolidation
on chest x-ray – IV Tazocin commenced.
Catheterised to monitor fluid output – although
recording accuracy limited (6 hours without urine
output measure)
11
Phase of care: Admission and initial Phase of care: Ongoing care Phase of care: Care during a procedure
management (approximately the first 24 hours)
Please record your explicit judgements about the Please record your explicit judgements about the
Please record your explicit judgements about the quality of care the patient received and whether quality of care the patient received and whether
quality of care the patient received and whether it was in accordance with current good practice it was in accordance with current good practice
it was in accordance with current good practice (for example, your professional standards or your (for example, your professional standards or your
(for example, your professional standards or your professional perspective). If there is any other professional perspective). If there is any other
professional perspective). If there is any other information you think is important or relevant that information you think is important or relevant that
information you think is important or relevant that you wish to comment on then please do so. you wish to comment on then please do so.
you wish to comment on then please do so.
• Despite increased confusion, medical Not applicable, no procedures performed.
• Thorough admission clerking, with clear team not specifically asked to
Please rate the care received by the patient during
and concise notes and management review patient. Patient only seen by
this phase. Please circle only one score.
plan. junior staff on ward round which is
• Good background history obtained inadequate. 1. Very poor care 2. Poor care 3. Adequate care
from patient and wife. • Good escalation of concerns when 4. Good care 5. Excellent care
• Early senior review on Acute Medical NEWS increased, with senior registrar
Unit with prompt and effective review who commenced sepsis bundle
handover of care to Care of the Elderly as per guidelines, resulting in prompt
ward. administration of IV antibiotics and IV
• Handover from ambulance documented fluids.
no community DNACPR or TEP in • Patient catheterised which was
place, however unfortunately no early adequately documented and clinically
discussion with patient and family indicated for accurate fluid output.
documented regarding escalation However accuracy of fluid output
plans despite patient being an elderly recording in nursing notes was poor.
gentleman with co-morbidities. This is • Relatively timely review requested
suboptimal practice. from ITU.
Please rate the care received by the patient during Please rate the care received by the patient during
this phase. Please circle only one score. this phase. Please circle only one score.
1. Very poor care 2. Poor care 3. Adequate care 1. Very poor care 2. Poor care 3. Adequate care
4. Good care 5. Excellent care 4. Good care 5. Excellent care
12
Phase of care: Perioperative care Phase of care: End of Life Care Phase of care: Overall assessment
Please record your explicit judgements about the Please record your explicit judgements about the Please record your explicit judgements about the
quality of care the patient received and whether quality of care the patient received and whether quality of care the patient received and whether
it was in accordance with current good practice it was in accordance with current good practice it was in accordance with current good practice
(for example, your professional standards or your (for example, your professional standards or your (for example, your professional standards or your
professional perspective). If there is any other professional perspective). If there is any other professional perspective). If there is any other
information you think is important or relevant that information you think is important or relevant that information you think is important or relevant that
you wish to comment on then please do so. you wish to comment on then please do so. you wish to comment on then please do so.
Not applicable, no procedures performed. • It was noted that there was a delay • Patient received generally good
in identifying patient was reaching care during inpatient stay, which
Please rate the care received by the patient during
end of life (EOL), resulting in a delay involved good quality initial clerking
this phase. Please circle only one score.
in DNACPR being signed. Due to delay and deterioration identification and
1. Very poor care 2. Poor care 3. Adequate care patient was unnecessarily cannulated treatment.
4. Good care 5. Excellent care on day of death. • However opportunities were missed
• Whilst family were informed of to discuss treatment escalation plans
decision made by senior medic, they early which resulted in a delay in
were not involved in discussions which patient commencing an EOL pathway.
was inappropriate. Additionally the patient’s family were
• Once patient was identified as EOL a not appropriately involved in this
symptom trigger was commenced which discussion.
was regularly completed resulting in
Please rate the care received by the patient during
patient receiving appropriate EOL care
this overall phase. Please circle only one score.
with symptom control.
1. Very poor care 2. Poor care 3. Adequate care
Please rate the care received by the patient during
4. Good care 5. Excellent care
this phase. Please circle only one score.
Please rate the quality of the patient record.
1. Very poor care 2. Poor care 3. Adequate care
Please circle only one score.
4. Good care 5. Excellent care
1. Very poor 2. Poor 3. Adequate
4. Good 5. Excellent
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Assessment of problems with healthcare Problem related to treatment and 6. Problem in resuscitation following a cardiac or
management plan (including prevention of respiratory arrest (including cardiopulmonary
In this section, the reviewer is asked to comment
pressure ulcers, falls, VTE) resuscitation (CPR))
on whether one or more specific types of
problem(s) were identified and, if so, to indicate Yes No Yes No
whether any led to harm.
Did the problem lead to harm? Did the problem lead to harm?
Were there any problems with the care of the No Uncertain Yes No Uncertain Yes
patient? (Please tick)
3. Problem with infection management 7. Problem of any other type not fitting the
No (please stop here) categories above
Yes No
Yes No
Yes (please continue below) Did the problem lead to harm?
No Uncertain Yes Did the problem lead to harm?
If you did identify problems, please identify which
problem type(s) from the selection below and 4. Problem related to operative/ invasive No Uncertain Yes
indicate whether it led to any harm. Please tick all procedure (other than infection control)
that relate to the case. Adapted from Hogan H, Zipfel R, Neuberger J,
Yes No
Hutchings A, Darzi A, Black N. Avoidability of hospital
Problem types
Did the problem lead to harm? deaths and association with hospital-wide mortality
1. Problem in assessment, investigation or No Uncertain Yes ratios: retrospective case record review and regression
diagnosis (including assessment of pressure analysis. BMJ 2015;351:h3239/ DOI: 10.1136/bmj.
5. Problem in clinical monitoring (including
ulcer risk, venous thromboembolism (VTE) h3239
failure to plan, to undertake, or to recognise
risk, history of falls)
and respond to changes)
Yes No
Yes No
Did the problem lead to harm?
Did the problem lead to harm?
No Uncertain Yes
No Uncertain Yes
2. Problem with medication / IV fluids/
electrolytes/ oxygen (other than anaesthetic)
Yes No
14
Where do Structured Judgement Review outcomes fit?
Reviews, SJR and Case Investigations It is important to recognise that neither the
review nor the SJR methodology can generate
The terms review, structured judgement
an outcome which describes if the care that
review or just SJR and case investigation that
was observed was more likely than not to have
appear in this document have clear definitions.
contributed to the death of the patient.
A review of the case notes, which is also in some
Investigations into the quality of care received by
cases referred to as a screening of the case notes
patients’ is therefore a fundamentally different
is any non-validated, variously structured and
process from the retrospective case note reviews
usually relatively brief review of the case notes.
described. An investigation is a formal process
As such these reviews are variable in quality and
where an opinion is formed, usually by a group
cannot create a validated care score. Some simple
of clinicians and clinical governance experts,
reviews of this type may be lengthy and complex
on the standard of care delivered and crucially,
but still do not generate a validated care score.
in the context of this document, whether the
The SJR is a validated research methodology care received was more likely than not to have
which is able to create an overall care score. The contributed to the death of the patient. The
methodology used is explained in more depth investigation will usually draw on evidence
elsewhere in this toolkit. from a variety of sources which will in many
circumstances include the outcome of the
Both simple reviews and the SJR are retrospective validated SJR.
analyses of case notes and both have the ability to
generate comment on the quality of care that is
delivered. In addition, the SJR methodology allows
the reviewer to comment as to whether harm
had occurred. Both methods can be used to “flag
up” poor care and trigger further inquiry into that
quality of care.
15
Serious incident reporting framework Data collection and reporting
and Duty of Candour
A key part of the NMCRR programme has been
As part of the SJR methodology reviewers make to develop and build an on-line platform to
an assessment of problems in healthcare which enable mortality reviews to be aggregated by
may have resulted in harm. Some deaths may Trusts and Health Boards and to conduct analysis
subsequently be identified as being subject to the to facilitate learning and quality improvement
NHS England (NHSE) Serious Incident Reporting initiatives. Since June 2017, the NMCRR core
Framework and the CQC Duty of Candour team has implemented the RCP National Mortality
requirements. Review platform in 15 Trusts and Health Boards
throughout England and Scotland with a further
It is therefore recommended that Trusts undertake
40 signed up to implement during early 2018.
SJRs in a timely manner, ideally within 6 weeks,
We continue to actively recruit Trusts and Health
to ensure Duty of Candour processes can be
Boards wishing to implement the on-line platform.
followed at the most appropriate time.
The data entered into the on-line system will allow
Issues with care which meet the definition of
Trusts to collate cases to enable them to report the
a patient safety incident (any unintended or
numbers and types of reviews undertaken. The
unexpected incident which could have or did
data is not intended to contribute to the national
lead to harm to one or more patients receiving
reporting framework described in Learning from
NHS care) should be reported via local risk
Deaths neither will allow any comparisons of
management systems to the National Reporting
outcomes to be constructed.
and Learning System (NRLS).
More complex governance processes within Trusts
Further information regarding the requirements of
will be required to allow these latter metrics to be
the NHSE Serious Incident Reporting Framework
created and published.
and CQC guidance on the Duty of Candour
can be found at improvement.nhs.uk/uploads/
documents/serious-incidnt-framwrk.pdf and
www.cqc.org.uk/sites/default/files/20150327_
duty_of_candour_guidance_final.pdf
16
How to embed SJR into your organisation
The following pages outline how organisations Table 1: Key representatives to consider
may approach the development of their
• Executive Board sponsorship, including the Trust Medical Director and a Non-Executive Director responsible
learning from problems in care.
for overseeing learning from deaths (as outlined in the National Guidance)
• A project leader, who has change and quality improvement experience. (Ideally a senior clinician)
Identify project team members & roles
• Senior medical representation from each relevant clinical division
and responsibilities
• Managerial representation.
Depending on your organisation, set up your
team. The group could be incorporated as part • Non-medical clinical representation including nursing, allied health professionals and pharmacy
of an existing mortality or patient safety group,
or alternatively it could be established as a • Trust Quality Improvement team member
distinct group.
• Managerial representation
In either case, you will need to ensure it is
• Community representation including a GP, a clinician with experience in mental health and a clinician with
made up of key representatives of groups that
experience with learning disabilities.
will be affected by subsequent changes.
• A safeguarding team member and clinical risk team member.
Table 1 offers some suggestions about who
might be included. The list is not prescriptive • A patient experience team member, bereavement office / patient advice and liaison service team member
and may be dependent on your organisation. and a Chaplain.
• Support function team members including an audit team member, IT professional, administrative support
and legal team member.
17
Spreading SJR within your organisation: public and family involvement
18
Spreading SJR within your organisation: identifying barriers to change
19
Spreading SJR within your organisation
20
Make contact with others The inclusion of such members has enabled Yorkshire & Humber experience
the steering group to develop the processes for
Whilst each Trust is likely to follow a different Within Yorkshire & Humber, Acute and Mental
shared learning across the system, which has been
implementation process with regards to SJRs; Health Trusts’ mortality leads come together
recognised as integral for delivering higher quality
making contact with others and having a quarterly to share learning, achievements and
and safer care as patients are rarely cared for by
collaborative platform for shared learning is highly challenges; shaping the programme bottom-up.
an individual organisation alone.
recommended.
Mortality leads tell us they feel empowered by
The West of England AHSN has supported the
these meetings and being able to share their local
development and sharing of resources for member
challenges and explore solutions as a group.
West of England experience organisations including operational process maps
and educational material. Challenges addressed as a group include the
Within the West of England, Clinical and mortality
development of robust local case selection tools
leads from across the region meet on a quarterly
and systematic identification of learning disabilities
basis, interspersed with monthly Steering
deaths.
Group calls to share progress and the learning
from implementation, as well as the number A separate carers and relatives involvement
and outcomes of reviews. The Collaborative is subgroup informs the steering group.
supported by 2 GPs and 2 public contributors
who aid the discussions on involving relatives
and carers, and how to take the out of hospital
learning forward. The 2 Mental Health trusts in
the region have recently joined the group.
21
Known challenges
If you don’t truly understand the problem, you cannot solve it! The cornerstone of any effective root cause
analysis is having an accurately defined problem.
Using robust problem solving techniques will ensure you address the ‘real’ issue – not just the symptoms. It’s not
difficult - just have a questioning attitude. Never stop with the first reason given or the obvious.
There may be multiple root causes for any given problem. Make sure you follow all of them through – they may
all need fixing!
The five whys is a tool that helps to identify the root cause of a problem by verbally questioning the reasons
given. It enables the peeling away of layers through a process of questions repeatedly asking “why” until you
reach the root cause.
22
Known challenge: identifying deaths of people with a learning disability
Further information can be found at: Nationally, to help with the tracking of people with a learning disability between primary and secondary care,
www.bristol.ac.uk/sps/leder some learning disability liaison teams utilise information contained within the GP QOF learning disability register
to flag people with a learning disability who are admitted to hospital.
Some areas are also utilising summary care records (SCR) with additional information to ensure a person’s
learning disability is included in their record.
Within West of England AHSN , a steering group member is working within their local partners towards
ensuring all who are on the GP QOF learning disability register have a SCR with additional information. It should
additionally be noted that NHS Digital is working to develop a process that will flag the records of people with a
learning disability on the NHS Spine which is accessible to all providers.
23
Known challenge: defining severe mental health illnesses
A number of Acute Trusts within the Yorkshire and Humber AHSN and West of England AHSN areas have been
reviewing deaths of patients under the following categories:
• under section,
• under a deprivation of liberty safeguard (DoLS)
• under the care of a secondary care mental health team such as a mental health liaison team.
Within the Yorkshire and Humber AHSN area , the Improvement Academy has been working with four mental
health trusts since 2014, supporting the uptake of SJR for the review of mental health deaths. We have adapted
the SJR tool to create phases of care headings more suitable for mental health reviews such as risk assessment
and allocation of care. It is also important to understand the life lived by the person, the range of comorbidities
and not just what happened at their death. More information on our experience is available in Annex J of the
National Quality Board Guidance:
www.england.nhs.uk/wp-content/uploads/2017/03/nqb-national-guidance-learning-from-deaths.pdf
Additionally, the Improvement Academy has recently set up a separate mental health mortality review
programme using an adapted SJR tool. For more information visit
www.improvementacademy.org/patient-safety/mortality-review-programme.html
24
Known challenge: families/ carers involvement in the review process
Nationally, Trusts have recognised the It is crucial for Trusts to have systems in place to capture concerns and complaints from bereaved families and
challenge of systematically embedding the carers. Within Yorkshire & Humber AHSN region, a number of methods have been adopted by organisations to
voices of bereaved families and carers into allow for families’ and carers’ voices to feed into mortality review processes.
their local mortality review processes.
The format depends largely on local organisational structures and availability of resources. For example, Hull
and East Yorkshire Hospitals NHS Trust issues questionnaires to all bereaved families through its bereavement
office aiming to provide a route for families’ concerns to inform its case selection process. Another Trust sends
letters to families of patients whose deaths have been identified as requiring SJRs. The letter requests families to
feedback to the mortality lead any identified potential issues in the care received by the deceased.
Since November 2017, Yorkshire & Humber AHSN Improvement Academy has also been working with its Carers
and Relatives Involvement Subgroup to develop a flexible framework for the systematic embedding of families’/
carer’s voices at the various steps of the mortality review process including case selection, review and learning.
For more information on when the framework will be available please contact the Improvement Academy.
In the future, changes to the process of death certification, in which deaths will be scrutinised by a medical
examiner, will result in bereaved families being systematically given an opportunity to raise concerns regarding
their relatives care. However, it is noted that the introduction of the medical examiners role is not expected until
April 2019 and therefore Trusts should endeavour to develop effective and appropriate mechanisms for families
to raise concerns. Further information regarding the medical examiner role can be found at: www.gov.uk/
government/uploads/ system/uploads/attachment_data/file/517184/DCR_Consultion_Document.pdf
Where a review identifies problems in care, Duty of Candour processes should be followed. Families should be
offered a genuine apology, be informed and involved in the investigation process, be given an appropriate lead
point of contact to discuss questions and concerns with and finally be informed of the learning and actions
developed from the investigation.
Additional resources regarding family involvement and bereavement support can be found in the recommended
resources section. NHS England are due to develop guidance on how best to engage bereaved families and
carers.
25
Known challenge: clinician engagement
Furthermore, within the West of England AHSN steering group, one Trust has utilised a charitable donation
to fund a case selection nurse, who will review all deaths against the selection tool to identify cases to be
taken forward to an SJR, thus, releasing clinician capacity. Finally, the trust also agreed that reviews would
be undertaken at a rate of 2 reviews per clinician per month, with clinicians recording how long they spend
conducting mortality reviews to enable this to be included in subsequent year’s job plans.
Feedback
Feedback is an essential component of learning. Departmental and speciality specific themes can be fed back
through a number of routes including M&M meetings , speciality level dashboards or via divisional leads.
When problems in care are identified feedback should be carried out in a no blame manner. The onus is on the
mortality/governance group rather than the reviewers to carry out this task.
It is important to recognise good care provided. Within the Yorkshire & Humber AHSN region, Doncaster and
Bassetlaw Teaching Hospitals NHS Trust routinely acknowledges exemplary practice by either individuals or ward
teams by way of a letter from the Deputy Medical Director.
Finally, steering group members have recognised the importance of feeding back and reviewing good and
excellent care, alongside poor care, to identify, learn from, and spread examples of high quality care.
26
Known challenge: the community care - hospital interface
Additionally, a number of trusts have agreements in place that where a patient dies within a trust, but aspects of
their care has been delivered in another trust, there is agreement to share this information and undertake a SJR
in the locality where concerns have been raised.
Data exchange can be a challenge across institutional boundaries, despite there being a willingness to
collaborate. One trust has approached the challenge of post-discharge review by developing an area wide data
sharing agreement, which is currently awaiting national agreement. Once agreed this will grant the Trust access
to patient identifiers for post discharge deaths, resulting in such deaths being brought into scope for SJR review.
Another trust has undertaken post-discharge reviews by means of joint reviewing with both General Practioners
and hospital teams accessing their electronic data separately while working in the same setting.
27
West of England AHSN Experience
The West of England Academic Health Science to standardise within organisations never mind Through the review outcomes we have learnt
Network (WEAHSN) has a strong patient safety across them. the importance of timely and compassionate last
portfolio. As part of our work on needless harm phase of life conversations and means we have
This also allowed the other five trusts to accelerate
we partnered with the Royal College of Physicians been able to swiftly move to initiate work on the
their implementation plans when the National
in late 2016 to pilot and be an early adopter of ReSPECT process.1 This directly supports care at
Learning from Deaths guidance was announced in
their Structured Judgement Review (SJR) process. the end of life to ensure that the whole system
March 2017.
seeks to meet the wishes of the patient.
Using our experience in delivering collaborative
We sought regular senior leadership involvement
events and workstreams we approached all acute
that enabled local teams to reconfigure their
hospitals in the region to improve learning from
approach to learning from deaths and worked
deaths with the aim of standardising the mortality
together regionally to review mortality in a
review process, share learning and issues,
standardised way.
triangulating outcome themes and facilitate
1
local and region-wide quality improvement (QI) Recommended Summary Plan for Emergency Care and
The West of England AHSN has delivered the SJR
initiatives. Treatment www.respectprocess.org.uk/
training to eight organisations, which has resulted
in over 135 cascade trainers being trained within
Our Mortality Reviews Breakthrough Collaborative
the region, who directly support the roll-out of the
(using the IHI model) commenced in September
SJR process to their respective Trusts.
2016 and saw two trusts from out of the West
of England region join our six acute trusts in The most consistent theme to emerge from the
establishing the Collaborative Steering Group. West of England Patient Safety Collaborative
The group membership also included two GPs, Mortality Reviews implementation has been the
two public contributors and more recently our two failure to quickly recognise end-of-life palliative
mental health trusts. care across settings.
Whilst all the acute trusts were involved from It has also been identified that patients are being
the outset, we took a step-wise approach using sent to hospital inappropriately, with limited
three trusts as early implementers to refine the conversations happening with the family, patient
method and gain confidence before bringing in or carers about their wishes. Once patients enter
other Trusts. This reflected our awareness that the hospital, there is initially a focus on pathways
mortality reviews can be a challenging process for treatments such as sepsis care.
28
Yorkshire & Humber AHSN Improvement Academy Experience
The Improvement Academy consists of a Locally, Trusts have developed case selection Bassetlaw Teaching Hospitals NHS Trust since
team of improvement scientists, patient processes and since 2014 approximately 7000 SJRs January 2016.
safety experts and clinicians who are have been carried out in the region. A number
A fall in HSMR associated with septicaemia
committed to working with frontline of Trusts have aligned their review processes with
(except in pregnancy) from 139 to 103 in Mid-
services, patients and the public to their local incident reporting systems allowing for
Yorkshire Hospitals NHS Trust over a two year
deliver real and lasting change. It was concerns from staff to be captured.
period.
established as part of the Yorkshire &
Our common themes include:
Humber AHSN in May 2013. 19% reduction in cardiac arrest events
• recognising and managing the deteriorating per 1,000 bed nights in Sheffield Teaching
The Yorkshire & Humber Mortality review
patient, including end of life care. Hospitals NHS Foundation Trust.
programme was set up in 2014 to support the
• communication within organisations,
uptake of the Structured Judgement Review Improved care is seen across the community-
including handover and documentation.
methodology by both our acute and mental hospital interface. For example, a trust is
• recognition and management of sepsis.
health trusts. To date all 13 of our acute trusts collaborating with their ambulance service to
have adopted SJR as review methodology and 4 The Improvement Academy has set up learning improve recognition of ‘red-flag’ sepsis, allowing
of our 6 mental health trusts are using an adapted events bringing together improvement experts prompt administration of life-saving antibiotics on
SJR tool with phases of care to suit mental health and trusts to support the translation of themes the way to hospital.
mortality reviews. into practical improvement steps. Our work is
Our work over the past four years has
also aligned with our regional Patient Safety
The Improvement Academy has trained more demonstrated how standardised retrospective
Collaborative (PSC) programme so that problems
than 750 reviewers from the multidisciplinary mortality case notes review can provide a robust
in care identified through the review process can
team across departments and specialities. Trained method for organisations to assess their care
be tackled through PSC priority themes such as
reviewers include specialist nurses, consultant systems and identify problems in care.
patient deterioration.
surgeons/physicians, senior registrars, and senior
allied health professionals. Our support for organisations in Yorkshire
Systematic analysis of problems in care and
& Humber learning together has yielded
emergent themes feed quality improvement
Mortality leads come together quarterly as the demonstrable benefits to organisations, leading to
initiatives locally, contributing to real and
steering group to share learning ,experience and less organisational isolation and improved patient
sustainable improvements. These include:
challenges, thus shaping the programme bottom experience across the whole healthcare journey.
up. A lay subgroup involving carers and relatives 22% increase in appropriate and timely start
informs the programme steering group. of end-of-life care pathways in Doncaster and
29
Learning and Quality Improvement
Utilising learning and developing actions for The IHI Model for Improvement What are we trying to
improvement are the most important benefits accomplish?
Quality Improvement science is the application
of implementing a structured case note review
of a systematic approach to improvement
methodology.
using specific methods and techniques in
Structured case note reviews will provide trusts order to deliver measurable improvements in
How will we know if a change
with a rich data set from which they can derive quality, care and safety. Our approach uses the
is an improvement?
themes, learn where improvements can be made methodology developed by the Institute for
and ultimately develop improvement plans which Healthcare Improvement called the IHI Model for
will deliver higher quality care. Improvement.
Whilst this toolkit focuses on SJR, the following The model asks three questions:
What changes can we make that
section outlines how Trusts may utilise the
1. What are you trying to accomplish? will result in an improvement?
learning gathered to develop, measure and
2. How will we know if a change is an
evaluate improvement projects.
improvement?
3. What changes can we make that will result in
an improvement?
PL
T
AN
AC
The model then asks you to test out emergent
change ideas using Plan, Do, Study, Act (PDSA)
cycles.
ST
DO
UD
Y
30
Question 1: What are you trying to Once you are confident that you understand your
accomplish? problem, you can move on to agree an aim.
31
How will we know if a change is an improvement?
32
What change can we make that will result in an improvement?
If you have not, there are a number of sources PDSA is an effective method that helps teams plan
such as the evidence-base and other services/ the actions, test it on a small scale, and review
colleagues. before deciding how to continue.
PL
T
AN
your ideas through more than one PDSA cycle. It
AC
may take a few cycles before the idea starts to work
PL
T
reliably.
AN
AC
ST
For a fun way to introduce a team to quality
DO
UD
PL
T
AN
Y
AC
www.weahsn.net/2016/01/anyone-for-tennis/
DO
UD
Y
DO
UD
https://youtu.be/xzAp6ZV5ml4
Y
33
Tools for learning and improvement
It is important for organisations to adopt credible Achieving Behaviour Change (ABC) from within, the behaviours and strategies that
improvement tools and approaches when trying facilitate success are likely to be affordable to
The problems with implementing best practice
to understand the problems in care identified implement, sustainable over time, and acceptable
are well recognised, and interventions to change
through the mortality review process, and to others in the community. More information is
practice, such as education, audit and feedback,
introduce improvements. available in the resource section.
do not consistently lead to change.
It is essential when developing action plans, The Learning from Excellence approach,
The two main issues are:
to try understand what factors might be at developed by the Birmingham Children’s Hospital,
• a failure to understand barriers and levers to
play, including systems factors and behavioural aims to identify, appreciate, study and learn from
implementation of best practice
attitudes. episodes of excellence in frontline healthcare.
• a failure to use behaviour change theory to
www.learningfromexcellence.com
The following tried and tested tools can support design implementation strategies
you to develop your local approaches to improving Yorkshire Contributory Factors
Yorkshire & Humber Improvement Academy,
care. Framework
through the Yorkshire Quality and Safety Group,
Human Factors works with internationally-recognised behaviour In 2012, a systematic review of 83 research studies
change experts to apply psychological insights focusing on the causes of hospital patient safety
Human Factors is an established scientific
to implementation problems where behaviour incidents was conducted. The result of this piece
discipline considered in the design of ‘human
change is required. of work is the first evidence based framework
system interfaces’ in many safety-critical, high-
of accident causation in hospitals: the Yorkshire
reliability industries. Coupling the concepts Yorkshire and Humber ABC for Patient Safety
Contributory Factors Framework. This is a tool
from human factors and patient safety is now Toolkit: http://www.improvementacademy.org/
which has an evidence base for optimizing
widely accepted by patient safety experts. tools-and-resources/abc-for-patient-safety-toolkit.
learning and addressing causes of patient safety
Human factors principles can be applied in the html
incidents (PSIs) by helping clinicians, risk managers
analysis of problems in care and development of
Positive Deviance and patient safety officers identify contributory
improvement actions.
factors of PSIs. Finding the true causes of patient
This asset based approach to quality improvement safety incidents offers an opportunity to address
Yorkshire & Humber Improvement Academy
is built on the premise that solutions to problems systemic flaws effectively, for the benefit of all our
have developed a free Bronze level e-learning to
already exist within communities. Certain future patients.
support front-line staff to improve the safety of
individuals, teams, or organisations – positive
their care available at www.improvementacademy.
deviants – identify these solutions and succeed Available at: www.improvementacademy.org/
org/training-and-events/bronze-human-factors-
despite facing the same constraints as others in tools-and-resources/the-yorkshire-contributory-
training.html
their community. As these solutions are identified factors-framework.html
34
Embed your change
35
Authors
Dr Michael McCooe
Associate Clinical Director
Yorkshire & Humber AHSN Improvement Academy
Beverley Slater
Director
Yorkshire & Humber AHSN Improvement Academy
Clare Wade
NMCRR Programme Manager
Royal College of Physicians
36
Resources
www.ombudsman.org.uk/publications/review-quality- www.apcrc.nhs.uk/evaluation/methodology.htm
LifeQI
nhs-complaints-investigations-where-serious-or-avoidable-
harm-has www.qihub.scot.nhs.uk/media/596811/the%20 LifeQI is a Web-Software platform built to
spread%20and%20sustainability%20ofquality%20
www.nice.org.uk/Media/Default/About/what-we-do/ improvement%20in%20healthcare%20pdf%20.pdf support and maintain Quality Improvement work
Into-practice/Support-for-service-improvement-and-audit/ in Health and Social Care. It makes it easy for
How-to-change-practice-barriers-to-change.pdf http://webarchive.nationalarchives.gov.
uk/20160805122935/http://www.nhsiq.nhs.uk/ teams to run QI projects and organisations to
www.kingsfund.org.uk/sites/default/files/field/ media/2757778/nhs_sustainability_model_-_ report on QI activities.
field_publication_file/developing-collective-leadership- february_2010_1_.pdf
kingsfund-may14.pdf
http://resolution.nhs.uk/wp-content/uploads/2017/04/ Across the Patient Safety Collaboratives, a
www.gov.uk/government/uploads/system/uploads/ NHS-Resolution-Saying-Sorry-2017.pdf number of organisations are using LifeQI as the
attachment_data/file/403010/culture-change-nhs.pdf
www.rcplondon.ac.uk/file/7633/download?token=_ platform for recording and sharing data.
www.gov.uk/government/uploads/system/uploads/ manvTUO
attachment_data/file/226703/Berwick_Report.pdf Contact details for LifeQi
www.howsafeisourcare.com/uploads/7/6/0/0/76001935/
www.bps.org.uk/system/files/user-files/Division%20 mmsf_single_pages_7th_stg.pdf
of%20Occupational%20Psychology/public/17689_cat- lifeqisystem.com
1658.pdf http://ihub.scot/media/1844/20170508-mortality-and-
morbidity-reviews_final.pdf
www.health.org.uk/sites/health/files/ [email protected]
MeasuringSafetyCulture.pdf Ladder of engagement, NHS England, located at: https://
www.england.nhs.uk/participation/resources/ladder-of- @lifeqisystem
www.health.org.uk/sites/health/files/ engagement-2/
TheMeasurementAndMonitoringOfSafety_fullversion.pdf
Bradley, E. H., Curry, L. A., Ramanadhan, S., Rowe, L., Contact your Academic Health Science Network
www.rcseng.ac.uk/-/media/files/rcs/library-and- Nembhard, I. M., & Krumholz, H. M. (2009). Research to find out if you have access to the Life System.
publications/non-journal-publications/morbidity-and- in action: using positive deviance to improve quality
mortality--a-guide-to-good-practice.pdf of health care. Implementation Science, 4, 25. doi:
10.1186/1748-5908-4-25
www.health.org.uk/publication/quality-improvement-
made-simple Lawton, R., Taylor, N., Clay-Williams, R., & Braithwaite,
J. (2014). Positive deviance: a different approach
www.hqip.org.uk/resources/guide-to-quality- to achieving patient safety. BMJ Quality & Safety,
improvement-methods/ Published online first 21 July 2014. doi: 10.1136/
bmjqs-2014-003115
www.health.org.uk/sites/health/files/
EvaluationWhatToConsider.pdf
37
Notes
38
Notes
39
Version 1.3 June 2018
The most recent version of this toolkit and supporting
resources are available at www.weahsn.net
www.improvementacademy.org
www.yhahsn.org.uk
www.rcplondon.ac.uk