Health Information Management
Health Information Management
2019
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© 2019 IMIA and Georg Thieme Verlag KG
further augment the medical coding process. skin lesions has also performed as well as tiple points to consider including whether
Medical coding is a significant responsibility board-certified dermatologists [26, 27]. It reporting of diagnosis specificity using
of many HIM professionals currently and has been suggested that what might take an diagnostic test results should vary depending
this role will continue to evolve. experienced radiologist 30 years of radiolo- on the AI application itself. Some method is
There are significant opportunities for gy-pathology correlation to master may only needed to demonstrate that the AI application
medical coding professionals as CAC take an AI system hours or days to analyze meets the same degree of accuracy as phy-
advances to increase coding efficiency. The and learn in the future [28]. sicians. For example, reporting guidelines
fully automated coding workflow requires Code reporting guidelines for using might depend on whether the AI applica-
reengineering and a focus on data quality, diagnostic test results to add specificity to tion is approved or credentialed in some
which medical coders, with their intimate a diagnosis code vary by country. As AI manner. Reporting specificity based on AI
knowledge of the code sets and reporting systems become more adept and are proven results might also depend on whether the AI
requirements, are uniquely qualified to reliable in visual diagnosis, the need for application is employing supervised verses
address. In addition to assigning or validat- physicians to read images may become less unsupervised ML techniques. Unsupervised
ing codes on complex cases, medical coders necessary, perhaps done only by exception. ML is well known for feature extraction,
could also focus on validating aberrant This change in responsibilities could result whereas supervised ML, which goes through
coded data patterns across large groups of in either a decrease in code specificity or a training process to determine the best out-
cases. For example, a medical coder has the less consistency of international diagnosis puts, is more suitable for predictive modeling
knowledge to question the use of a code for code data, depending on a country’s code and is generally considered to provide more
an acute phase of a condition repeatedly reporting guidelines and how the guidelines clinically relevant results [6]. Thus, the type
for a patient, when the more likely data are adjusted to account for AI. For example, of AI and how the AI application is used in
pattern would be the acute code followed by currently in the U.S., “code assignment is the clinical workflow (e.g. whether AI-gener-
codes for the chronic phase or sequela. This based on the documentation by patient’s ated interpretations are validated or certified
code-specific pattern recognition is key in provider (i.e., the physician or other qualified as equally accurate compared to physicians)
validating accurate reporting for risk-scor- healthcare practitioner legally accountable could potentially be factors in determining
ing payment methodologies for example. for establishing the patient’s diagnosis)” future reporting requirements for diagnosis
Clearly, HIM professionals’ ability to iden- [29]. U.S. guidelines specifically state that code specificity.
tify data patterns to enhance business intel- clinically significant “laboratory, x-ray,
ligence or improve compliance with code pathologic, and other diagnostic results”
reporting requirements will be an important can be used for coding only if the test has
skill as automation advances. been “interpreted by a physician” [29]. In 2.3 Early Detection Information
the U.K., the NHS National Clinical Cod- AI systems are expected to assist healthcare
ing Standards, while less explicit than U.S. providers with early detection of likely or
guidelines, also imply that a physician has impending conditions, allowing for faster
2.2 Diagnosis Specificity to interpret diagnostic test results [30]. In intervention. ML algorithms are proving
AI systems are expected to assist healthcare contrast, the Canadian Coding Standards are effective in making inferences about specific
providers with diagnosis accuracy and speci- much more amendable to AI development. health risks and predicting health events. For
ficity. Medical specialties that utilize images Canadian medical coders are directed to use example, neural network algorithms have
for diagnosis (e.g. radiology, pathology, diagnostic results “when they clearly add proven effective in detecting strokes. Input
dermatology, ophthalmology) are partic- specificity in identifying the appropriate diag- variables analyzed by the algorithm include
ularly amendable to AI-aided diagnoses. nosis code for conditions documented in the stroke-related symptoms such as paresthesia
AI machine learning (ML) is very good at physician/primary care provider notes” [31]. of the arm or leg, acute confusion, vision
detecting anomalies in images, for example In Canada, there is no specific requirement alteration, problems with mobility, etc.
it has been proven effective in detecting lung that the test itself has to be interpreted by a This input data is analyzed to determine the
nodules on a radiologic image [2, 6, 9] and physician. Based on this varying guidance, probability of stroke [6]. There are other
congenital cataract as well as diabetic reti- in the instance where a physician has docu- examples of healthcare data being used to
nopathy on ocular image data [6, 26]. The mented a diagnosis, additional specificity of detect and predict future events including
sensitivity and specificity of deep learning that diagnosis in images interpreted by an AI hospital readmissions, sepsis, and surgical
algorithms, in detecting diabetic retinop- system alone (without a physician over-read) complications [32-34].
athy through retinal fundus photographs, would be lost in diagnosis data in the U.S. and Coding guidelines and standards for
for example, are both over 90%, which is possibly the U.K., whereas specificity would reporting suspected or impending conditions
“competitive against experienced physicians not necessarily be lost in Canada. also vary from one country to the next. In the
in the accuracy for classifying both normal Medical coding and reporting guidelines U.S., coders are directed to report a condition
and disease cases”[6]. An algorithm that can and standards will need to be adjusted to that remains “suspected and/or impending”
identify skin cancer by analyzing images of account for AI applications. There are mul- at the time of discharge as if it existed or
was established for a hospital inpatient SNOMED CT. Prefixes, such as Canada’s and exchange data. ‘In IoT, Things’ refers to
admission, but not to code it on an outpa- Q prefix, could be defined and appended to a device which is connected to the Internet
tient encounter [29]. For outpatient cases ICD codes. Perhaps ICD-11 extension codes and transfers the device information to other
the condition is coded to the highest degree could be defined to characterize the degree devices. “The future’s data will not be col-
of certainty [29]. Similarly, NHS National of certainty of a condition (e.g. unconfirmed, lected solely within the health care setting.
Coding Standards instructions are to code impending) or identify the source for the The proliferation of mobile sensors will
the diagnosis being “treated or investigated” diagnosis (e.g. clinician, AI system, patient). allow physicians of the future to monitor,
and an example is given of a “probable Again, there are multiple factors to consider. interpret, and respond to additional streams
myocardial infarction” reported with the Use of a status, prefix or extension to a code of biomedical data collected remotely and
code for an acute unspecified myocardial would require some mechanism to ensure it automatically” [7]. Such applications have
infarction [30]. According to the Canadian remains linked with the base code. Otherwise been in development for several years. More
Coding Standards however, impending or data validity would be a major concern. This than five years ago, a blood pressure cuff
threatened conditions are coded only when is the case for example when an “impend- that connects to a smartphone, and transmits
indexed as such in the Canadian version of ing” stroke is identified as an actual stroke data to a care provider was already available
the 10th revision of the International Statis- because the “impending” qualifier was lost. [36]. Devices are also available that measure
tical Classification of Diseases and Related Implications for insurance coverage or glucose levels, provide electrocardiogram
Health Problems (ICD) ICD-10-CA. In payment policy have also to be considered. readings, or even collect measures of peo-
addition, unconfirmed diagnoses in Canada As the industry continues to refine what is ple’s cognition and emotional health [37].
are reported with a specific “Q prefix” to deemed clinically relevant data/information, As wearable sensors improve, they will
denote the uncertainty associated with the medical coding standards and guidelines increasingly allow specific health parameters
code [31]. This variability and the inabil- will need to align with such data standards. to be tracked constantly and discreetly. They
ity in some countries to qualify reported may replace commonly worn items such as a
diagnoses as unconfirmed or uncertain is watch, may be worn under regular clothing,
concerning. Consider for example, if an or even built into “smart” clothing [38].
AI system triggers an alert for suspected 3 Changing Data These types of devices would conceivably
sepsis on a patient and the healthcare team
takes immediate action, thus intervening
Management Practices transmit data back to a healthcare provider,
potentially directly into an EHR, which
and preventing severe sepsis, the coding Increased adoption of AI-enabled applica- presents numerous challenges. It will be
and reporting of this circumstance may be tions, and more sophisticated use of these AI critical to track the source of this data as
missed, or inconsistently reported at best. applications by healthcare providers at the the accuracy, value, and clinical significance
Coding guidelines and standards will need point of care, holds practical implications for may be uncertain. In addition, today’s data
to be revised to capture this sequence of managing the data. HIM professionals have practices are entirely oriented toward an
events and support AI developments in early an opportunity to help develop, implement, episode of care. In AI-enabled healthcare,
detection of likely or impending conditions. and manage the policies and procedures the underlying organizing schema for health
This has broad implications and will require related to governing healthcare data, as well data needs to shift from dates of service
an interdisciplinary team to address the issue as to support the development, deployment, to the patient. It may require completely
fully, including standards developers and and assessment of AI models to ensure that different data architecture to collect, store,
members of the healthcare team as well as the technology can be trusted to improve care process, validate, interpret, and potentially
HIM professionals. and support greater efficiency. retrieve non-episodic ongoing streams of
One solution is to capture qualifiers to New and more varied data types are gen- patient-specific data.
diagnoses. If the functionality was built erated by AI-enabled applications affecting Manogaran and colleagues [39] proposed
into Electronic Health Records (EHRs), data practices and data governance. Today, a framework to support the collection,
the Health Level 7 (HL7) Fast Healthcare healthcare data is almost entirely encoun- transfer, and storage of data from multiple
Interoperability Resources (FHIR) standard ter-based. Healthcare data is collected during data streams. They emphasized that the
framework could potentially be leveraged an encounter with specific interaction with security of data must occur at numerous
to qualify diagnoses [35]. For example, the a care provider. However, healthcare data stages including during the collection of
FHIR code system verification status defines also includes streams of data collected data from devices, the transfer of data
codes as provisional, differential, confirmed, remotely and automatically from multiple between devices, the storage of data, and
and refuted [35]. A status could potentially data sources. As the Internet of Things (IoT) during the application and use of the data.
be added to reflect AI as the source for a expands further into healthcare, it is neces- Additionally, how the data is received from
condition or diagnosis. Alternatively, diag- sary to develop infrastructures to support the various streams and integrated into a single
nosis qualifiers could also be addressed by proliferation and use of these data streams. system poses a challenge. Data streams
the clinical terminology or classification IoT is a connection of physical objects with may include structured, semi-structured, or
system itself, which is demonstrated in network connectivity that are used to collect unstructured data and for integration to occur
there is a need for standardization. Initiatives requiring millions of observations to reach quality controls, and data quality manage-
such as International Standard for Metadata acceptable performance levels” [14]. Thus ment, must keep pace with evolving data
Registries (ISO/IEC 11179) aim to support researchers and developers need access to types and data uses. For example, data qual-
what is referred to as ‘semantic interopera- large sets of health data from thousands of ity management in healthcare organizations
bility’ between data that may be expressed patients. The reliability of an AI application today focuses on assuring data is fit for use
differently across devices and technologies is dependent upon the quality of the data for the organization’s business operations,
[40]. Semantic interoperability is intended that was used to develop and train it. “At its decision-making and planning. More focus
to support the unambiguous exchange of core, AI is reliant upon data. If the data itself is needed on detecting, assessing, and fixing
data. One method for standardization is is incomplete, biased, or skewed in some data defects in a systematic way. Data gov-
to create globally unique cross-reference other fashion, the AI system is at risk of ernance has never been a higher priority in
identifiers for data elements that are seman- being inaccurate” [13]. However, it’s widely healthcare as it “empowers users to trust the
tically equivalent using eXtensible Markup recognized in the U.S. that data in EHRs predictions of analytics models in their deci-
Language (XML) standards, even though and claims databases need “careful curation sion-making because there is certainty that
the data elements may have different names and processing before they are usable” [14]. the data and algorithms can be trusted” [44].
[40]. The Open Data Element Framework Healthcare data are highly heterogeneous, As advances in AI enable precision
(O-DEF) was developed by The Open Group ambiguous, noisy, and incomplete [26]. medicine, HIM professionals will need to
and can support the categorization, naming, Data curation (i.e., managing data to make develop practices to enable precision HIM.
and indexing of data using a controlled it more useful) requires significant financial Treating all healthcare data and information
vocabulary that associates data elements investment and without investing resources the same will no longer be practical or
with structured unique identifiers so that to support data curation the healthcare efficient in an era of big data. More robust
equivalencies and similarities between data industry risks producing ML models based data analytics and processes need to be
can be easily determined [41]. These identi- on factually inaccurate data [8]. The adop- established to identify data patterns and
fiers can be the basis of an indexing schema tion of data governance principles can trends and address data outliers. “Precision
where a data element from one device can be help organizations ensure that the people, medicine attempts to ensure that the right
integrated with a data element from another processes, and systems involved in AI ini- treatment is delivered to the right patient at
device because they both share the same tiatives are held accountable for ethical use the right time by taking into account several
equivalent content evidenced by the same and deployment, the process is transparent, aspects of patient’s data, including variability
structured unique identifier. O-DEF works the result has integrity, the information is in molecular traits, environment, EHRs and
well for collaborating enterprises, but may protected, the approach is compliant with lifestyle” [26]. Precision HIM attempts to
not serve the purpose of integrating data organizational and legal practices, the tech- ensure the right data and information is
from disparate systems and organizations. nology is available, the method of AI devel- delivered to the right person at the right time
Alternatively, other frameworks such as opment is retained, and when appropriate by taking into account the data source and
those from the World Wide Web Consor- the healthcare data is disposed of properly the people, processes, and technology that
tium (W3C) that focus on data integration [43]. These principles can help support the interface with that data to ensure it is used
of web-based data like RDF (Resource use of AI models that minimize the risk to and reused appropriately.
Description Framework), OWL (Ontology patients, providers, developers, and health-
Web Language), and SKOS (Simple Knowl- care organizations.
edge Organization System) may be more Evolving data governance principles
useful [42]. Data integration challenges will are necessary and must be a priority for all 4 Legal, Ethical, and
require an interdisciplinary team to address
the issue. HIM professionals can seek to
healthcare organizations. Developing clear,
consistent, and standardized policies and Regulatory Data Challenges
examine how existing information models procedures for creating and managing cur- The use of healthcare data to develop AI
can be leveraged within an organization to rent and emerging sources of data is a key applications has introduced substantial legal,
support a data governance framework that enabler to development of AI applications. ethical, and regulatory challenges. Patient
accommodates multiple data streams. The Data sources can include EHR data, lab data, privacy is a key concern affecting how AI
utilization of existing vocabularies may imaging data, claims data, various types of is developed and tested. Development of AI
serve to accelerate the collection and use of master data (e.g., enterprise master patient applications may require updates to privacy
data from non-episodic sources. index), patient-generated data, and metadata and confidentiality laws and regulations,
An additional challenge is the need for as well as a real-time streaming data from which vary widely. In the U.K., protection
quality healthcare data. ML techniques medical devices. Several issues need to be of health information centers on obtaining
require substantial amounts of data to ensure managed, such as data sparsity, redundancy, explicit consent from the patient in order
algorithms work accurately and are applied and missing values [26]. Data governance, to share information with any third party
appropriately to their targeted goals. “ML including data modeling, data standards and that is not in a direct care relationship with
algorithms are highly data hungry, often definitions, data mapping, data auditing, data the patient. Researchers must apply to the
Health Research Authority’s Confidenti- rithms they cannot understand? Will physi- to go about the business of “providing the
ality Advisory Group (CAG) for approval cians use a system they cannot understand? clinical truth in their coding and resisting
to access confidential patient information Can the developer be held responsible? The the perverse incentives” [50]. Therefore,
without patients’ consent [45]. In the U.S., problem is complicated since the reasoning with the access and use of health informa-
government regulation is less strict. Privacy in an AI application is difficult, often too tion for the development and deployment
and confidentiality of protected health complex to understand [48]. AI applications of AI models, HIM professionals should be
information are addressed in the Health evolve and change constantly in unforesee- involved to ensure policies and procedures
Insurance Portability and Accountability Act able ways as they are “learning” from data are being developed, amended accordingly,
(HIPAA). HIPAA provides data privacy and [9]. Though mechanisms to ensure AI appli- and followed to account for the influence of
security provisions for safeguarding medical cations are safe and effective are still being AI technology. Although HIM professionals
information and allows for sharing protected formulated, prevailing approaches include an are just beginning to work with AI technol-
health information without patient consent expectation that algorithms can be inspected. ogy, there has already been notable impacts
specifically for the purposes of “treatment, “Each algorithm should be able to explain on the HIM workforce.
payment and operations”[46]. How the U.K. its output” [13]. To advance deployment and
or U.S. approaches will be interpreted on acceptance of AI applications, developers
cases related to data sharing for AI devel- will need to be able to produce the algorithm
opment is largely undetermined. The U.K.
consent requirement, and the definition of
for inspection, support why the algorithm
works, and ensure the application can meet
5 Response of the Health
a “direct care relationship,” was challenged expected outcomes in testing or certification Information Management
in 2017 in a published case study. The case
study alleged that a technology company,
procedures. Product master data, which
includes data about the components that
Workforce
Google DeepMind, did not have a direct make up the product, may include informa- Healthcare technology has greatly impacted
patient care relationship with every patient tion on the algorithm deployed. In the future, the way care is approached and delivered.
included in the data shared and thus “held individual patient health information may The digitizing of healthcare data has sup-
data on millions of Royal Free patients and include the algorithm that was applied to the ported efforts to automate processes that
former patients since November 2015, with patient’s data in order to validate or authenti- were previously done manually. These pro-
neither consent, nor research approval” cate healthcare decisions. In addition, there cesses have inevitably impacted the health-
[47]. This case study underscores the need may be a need to audit AI events for reporting care workforce, including the HIM profes-
to examine current privacy laws and regu- purposes. HIM professionals can establish sion. There is a greater need for employees
lations to determine how they may apply to the necessary data governance principles that that have technical skills to better collect,
AI applications. The U.S. Subcommittee on must be adopted for AI applications to be manage, and use healthcare data. Sandefer
Information Technology recommends that implemented successfully within healthcare and colleagues [51] evaluated data from a
federal agencies conduct such a review and, organizations. workforce survey that yielded responses
where necessary, update existing regulations Another aspect that deserves attention is from 6,475 healthcare professionals that
to account for the addition of AI [13]. HIM the need to balance the financial incentive were largely from HIM. The survey asked
professionals are involved with developing to make processes more efficient with the respondents to rate the percentage of their
and implementing organizational policies ethical and legal uses of health information. time they spent on current tasks and how
regarding privacy and security of health For example, the financial motivators to much they anticipate they will spend on these
information, training staff, and ensuring adopt CAC for the sole purpose of coding tasks 10 years in the future. The findings of
compliance. Therefore, with the access and a higher level of care must be tempered by the study suggested that many HIM profes-
use of health information for the develop- ethical considerations. HIM professionals sionals spent significant time on diagnostic
ment and deployment of AI models, HIM involved in the clinical coding process can and procedural coding and records process-
professionals should explore current privacy greatly impact the amount of funding pro- ing, but they expected these tasks to decline
practices considering how they might apply vided to a healthcare organization. Hoyle the most in the future while leadership,
to AI applications and how they might be [49] and Shepherd [50] argued that HIM teaching, and informatics tasks are expected
amended to account for AI technology. professionals are positioned as advocates for to increase. Historically, the HIM profession
In addition to data privacy and protection, the ethical use of technology and data. HIM has focused on medical records and coding.
another looming legal issue is liability and professionals must urge healthcare organiza- However, the profession has evolved into
accountability for the use of AI applications. tions to consider the ethical frameworks and more diverse roles and continues to change
Questions on who is ultimately liable for practice guides not just deemed appropriate with technological advances. Today, many
patient care decisions based on, or aided by, for health information professionals, but HIM professionals find themselves in diverse
an AI application are yet to be answered. also for CAC and AI technologies. These roles related to healthcare leadership, teach-
Should healthcare providers be held fully activities will provide support for the HIM ing, technology, compliance, quality, and
responsible for decisions suggested by algo- professionals in healthcare organization informatics [51, 52].
In 2018, Sandefer [53] evaluated data from The evolving use of healthcare data for and guidelines with evolving data types and
a workforce survey of 274 senior-level profes- AI applications is already impacting the roles standards. In addition, as AI technologies
sionals within clinical (e.g., hospitals, clinics) and responsibilities of HIM professionals. present new and varied types of source data,
and non-clinical (e.g., software vendors, con- HIM professionals are findings themselves in HIM professionals have an opportunity to
sulting firms) organizations. The goal of the more leadership roles that govern healthcare influence the development of mechanisms
survey was to identify the needed job skills, data and technology, and more technical to collect and integrate emerging data types,
competencies, and education required by HIM roles that involve the access and use of including non-episodic ongoing streams of
professionals to meet future workforce needs. healthcare data for reporting and evalua- patient data and algorithms in product master
Seventy-two percent of clinical respondents tion purposes [51]. With some tasks being data for example. The adoption of data stan-
reported that at least half of coding functions automated, there will likely be continuing dards and vocabularies that support semantic
will be automated, and 50 % reported that opportunity for HIM professionals to take on interoperability is part of the solution to the
more than half of the coding functions will more tasks that focus on the data collection, data integration challenge [40] and one that
be automated in the near future. The paper validation, analysis, and overall the ethical HIM professionals should participate in
suggests that the application of natural lan- use of that data. HIM professionals who evaluating and testing.
guage processing combined with the quality currently find themselves working in medical HIM professionals should also partic-
of voice to text translation will support coding who embrace automated coding have ipate in developing the data governance
improvements in extracting meaning from an opportunity to transition into a role that framework within healthcare organizations
unstructured data, which will greatly revo- focuses on data validation to improve the to establish mechanisms to collect emerging
lutionize the healthcare industry. quality of healthcare data. However, to emerge data types from various sources, manage
Automation is also expected to impact into these roles, these professionals will need the policies and procedures related to the
the HIM workforce beyond just influencing technical training related to methods and tools access and use of data, and develop methods
how diagnostic and procedural coding is for data storage, acquisition, and analytics. to validate the reliability and impact of AI
approached. Data analytics has been more With advancements in technology, many technology. This includes considering how
prolific across the profession. More profes- professions are realizing the need for greater evolving data structures impact the use and
sionals are moving into roles to evaluate data competence in computational thinking skills reuse of data and the related policy impli-
related to financial, operational, and clinical to better translate data into abstract concepts cations (e.g., data reporting requirements,
performance [54]. HIM professionals are and understand data-based reasoning [57]. payment policy). It also includes for example
becoming more involved with developing Although exact details on how AI technol- ensuring data governance practices include
solutions for healthcare organizations to ogies will impact the future of HIM are not product master data (e.g., data about the
better manage and use data. For instance, yet known, current workforce studies suggest algorithms deployed) to support efforts to
HIM professionals are actively participating that HIM professionals are going to continue audit, inspect, or certify AI applications.
in the development of policies, procedures, to work in more technical roles and will These endeavors will require HIM profes-
and best practices to ensure data are being therefore support AI developments and use. sionals to have the technical knowledge to
used ethically and abiding by the required analyze and monitor AI tools and the nec-
laws when research or data reporting is essary technical skills related to collecting
being adopted [55]. However, in the future, and managing healthcare data in AI-enabled
HIM professionals are going to need to be
more involved in developing similar pol-
6 Conclusion healthcare. To acquire such technical skills,
HIM professionals may need to seek addi-
icies and procedures to accommodate AI AI has and will continue to impact the way tional education or training.
developments. To date, there is very little decisions are made in healthcare. For exam- There are significant data management
attention on the needs for data governance ple, decisions are influenced by ML algo- practices as well as laws and regulations
to support AI. Without having a workforce rithms that support the prediction of future surrounding the use of healthcare data that
to support AI data governance, there will events, or the use of clinical decision support have the potential to either impede or enable
likely be barriers to widespread adoption and systems that aid in the detection of anomalies development of AI applications. HIM profes-
use. For instance, past efforts to implement in diagnostic images. The decisions that HIM sionals can support future AI developments
ICU mortality risk scores have been met professionals make are also being impacted. today by increasing data validation efforts
with reluctance due to a lack of trust in the For instance, CAC has supplemented a med- and beginning to evaluate relevant policies
technology, despite the obvious benefits the ical coder’s role in selecting diagnostic and and processes. HIM professionals should
technology may serve [56]. By engaging procedural codes for healthcare claims. The analyze coded data patterns and establish
more stakeholders in the development of the promise that AI can support a more efficient processes to validate coded data across large
technology, including HIM professionals, a decision-making process with greater accu- groups of cases. HIM professionals must
culture of acceptance may be achieved by racy is certainly a promise worth exploring. focus on detecting, assessing, and fixing
adopting principles of data governance that HIM professionals should participate in data defects in a systematic way in order to
offer enterprise-wide technology support. efforts to align medical coding standards improve the quality of current healthcare data
that is being used to develop AI applications. of Radiologists. White Paper on Artificial In- CAC Practice Guidance (2013 update). AHIMA
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