ERN-EYE, April 2020
JOB DESCRIPTION
ERN-EYE SCIENTIFIC PROJECT MANAGER
INSTITUTION
Hôpitaux Universitaires de Strasbourg (HUS), CHU de STRASBOURG, 1 place Hôpital , 67000
STRASBOURG FRANCE
Administrative HUS contact: Mme Marion PEYSSOU, [email protected]
Medical & Scientific contact: Pr Hélène DOLLFUS (Head of Department, coordinator of ERN-EYE),
[email protected]
The project team and context
The Scientific Project Manager will work under the responsibility of the Chief of department & ERN-EYE
Coordinator, (Pr Hélène Dollfus) and in close collaboration with ERN-EYE Project Manager (Mrs Dorothée
Leroux) as well as the other members of the ERN-EYE management team. He/she will be also involved
with the team coordinating the national network for rare sensorial diseases SENSGENE based also in
Strasbourg (Mrs Marilyne Oswald, Project manager). He/she will be in close contact with the HUS offices
(research and communication departments especially).
The Scientific Project Manager will also communicate regularly with:
- Main European stakeholders for research in the field of rare diseases
- European Joint Program for rare diseases coordination and members
- Members of ERN-EYE especially those involved in clinical or scientific research
- Funding stakeholders for European calls
- National, EU and international scientific and medical learned societies
- Industrial partners
- Patient groups and associations
ERN-EYE, www.ern-eye.com
SENSGENE, www.sensgene.com
Job description
Full time
Fluent English required: spoken and written
Travels can be necessary on a one-time basis
Salary will depend on experience and diplomas according to the Public Function salaries
ERN-EYE, April 2020
Project presentation
European Reference Networks (ERNs) are networks involving healthcare providers across Europe. They aim
to tackle complex or rare diseases and conditions that require highly specialized treatment and
concentrated knowledge and resources. Between 5.000 and 8.000 rare diseases affect the daily lives of
around 30 million people in the EU.
ERN-EYE, dedicated to Rare Eye Diseases (RED), currently consists of 29 healthcare-providers from 13
Member States, with important interactions with patient groups and will cover RED conditions in four
thematic groups: retinal RED, neuro-ophthalmology RED, pediatric ophthalmology RED & anterior segment
RED; six transversal working groups are addressing common issue (genetic diagnosis, registries, research,
training guidelines…). The project leader, Pr Dollfus, is based in the Hôpitaux Universitaires de Strasbourg.
It is of outmost importance to develop research links within the network to integrate the research
efforts in Europe and worldwide. Research for rare diseases carries many specificities and challenges the
network has to translate to ophthalmology. These challenges are valid for academic and industry research.
Major breakthroughs are currently achieved in the field of rare disease and for ophthalmic conditions
especially in genomics (whole genome sequencing), OMICS and biomarkers, modeling and therapies
developments (such as gene therapy). For clinical research more than 150 clinical trials are currently
ongoing. The research dimension has to be boosted in the network to expand collaborations within and
outside the network and impulse research as an ultimate goal to improve care for patients losing sight
because of rare eye diseases.
Key roles of the position
The Scientific Project Manager will be in charge of:
- Close follow up and diffusion to ERN-EYE members of the main scientific calls and initiatives
accessible to ERNs in the field of ophthalmology and rare diseases
- Represent ERN-EYE in main EU ERN-related scientific organization initiatives especially EJP-RD
where the PM will be involved in various working groups and initiatives for implementation to
ERN-EYE members
- Management of team building for applications of consortiums or groups of ERN partners in
various calls (representing ERN-EYE as a catalyzer and providing application help in the ERN
perimeter)
- Organize specific research meetings or courses for ERN-EYE members and beyond
- Follow publication writing of ERN-EYE consortium as the ERN catalyzer if needed
- Organize the scientific annual workshop of ERN-EYE (by contributing to the program elaboration
and general organization of the meetings)
- Develop interactions for ERN-EYE with research institutions as well as industry partners
- Elaborate with the communication officer a scientific breakthrough newsletter
- Contribute to the scientific aspects of various ERN projects (scientific input check of guidelines,
ERN call preparation, REDgistry , …)
- Report to the European commission on an annual basis about the scientific actions added value
of ERN-EYE
- Impulse the knowledge generated by the ERN towards the national SENSGENE network to boost
the EU and international situation towards the French actors
- Will update the EU situation of clinical research and trials in the EU especially with ERN-EYE
members
ERN-EYE, April 2020
Skills, qualifications and Experience
Core skills:
• Thorough familiarity with word processing, spreadsheet, and project scheduling computer applications
• Ability to work effectively as a team member and independently,
• Ability to manage multiple priorities under pressure, trouble-shoot, and to meet short- and long-term
deadlines
• Excellent written and verbal communication skills, especially in English
• Excellent critical and creative thinking and analytical skills
Advanced skills:
• Experience in European programs, administration, operating procedures, oversight and monitoring
• Ability to work with database applications
• Knowledge of project funding procedures and guidelines
• Scientific and /or medical background fitting the field
Qualifications:
• PhD in Biological Science or MD or Pharmacist
• Working knowledge of computers and software’s (Office suite: Word, Excel, PowerPoint)
• Excellent writing and verbal communication skills in English is mandatory and French or other EU
language is an asset.
Experience:
• At least with 3- 5 years’ experience in the similar position in national/ International Organizations.
• Experience in subsidies and funding opportunities calls in an European and/or international context
• Experience in Research and scientific skills would be good in genomics and translational medicine,
ophthalmology or rare diseases as well as innovative therapies
To contact
Pr Hélène DOLLFUS
[email protected]
