Starting The Conversation - College and Your Mental Health
Starting The Conversation - College and Your Mental Health
CONVERSATION
College and
Your Mental Health
Copyright August 2016, the National Alliance on Mental Illness (NAMI) and The Jed Foundation
ABOUT NAMI
NAMI, the National Alliance on Mental Illness, is the nation’s largest grassroots mental health organiza-
tion dedicated to building better lives for the millions of Americans affected by mental illness.
What started as a small group of families gathered around a kitchen table in 1979 has blossomed into the
nation’s leading voice on mental health. Today, we are an association of thousands of state organizations,
local affiliates and volunteers who raise awareness and provide advocacy, education and support in com-
munities across the United States.
STARTING YOUR
CONVERSATION
page 6
MENTAL HEALTH CONDITIONS ARE
COMMON page 7
S TA R T I N G T H E C O N V E R S AT I O N 1 C O L L E G E A N D YO U R M E N TA L H E A LT H
A NOTE TO READERS...
TO STUDENTS: This guide is written to provide you with important information about mental
health during the college years. We encourage you to read this guide, learn from it and use it to
TO PARENTS: This guide is for you, too. It’s important to know more about mental health
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during the college years and proactive steps that can help you support your student if needed.
The term “parents” is used throughout the guide to include caregivers, family members and other important and trusted adults involved in
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ACKNOWLEDGMENTS
This guide was made possible by support from the National Technical Assistance Network for Children’s
Behavioral Health at the University of Maryland, a center funded by the Center for Mental Health Services,
Child, Adolescent & Family Branch of the Substance Abuse and Mental Health Services Administration
(SAMHSA). NAMI and JED greatly appreciate the support for the guide.
NAMI and JED thank the college students and parents who contributed their ideas and expertise to this
guide. Their input helped us to effectively communicate the importance of college students and families
learning more about mental health, holding conversations and better understanding health information
privacy laws and rules. NAMI would especially like to thank Elizabeth Bryan and Robert Marko-Franks,
college students and summer interns, for their valuable contributions to the report. NAMI appreciates the
legal expertise and guidance on HIPAA and FERPA shared by Adam H. Greene, a partner with the law
firm of Davis Wright Tremaine, and Anna Watterson a lawyer formerly with the firm. We also appreciate
the contributions of Nancy: Wolf and Margaret Go, parents who shared their personal experience and
expertise on this topic.
This guide was prepared by the staff at NAMI and JED. NAMI staff included Darcy Gruttadaro and Angela
Kimball. NAMI thanks Caren Clark, Happy Carlock, Valerie Hunter, Lauren Gleason and others for providing
helpful review and comments during the preparation of the report. This report is made possible by the
leadership of Mary Giliberti, Chief Executive Officer of NAMI. JED staff included John MacPhee, Gussie
Foshay-Rothfeld and Victor Schwartz.
S TA R T I N G T H E C O N V E R S AT I O N 2 C O L L E G E A N D YO U R M E N TA L H E A LT H
WHY START A CONVERSATION
ABOUT MENTAL HEALTH?
Attending college is an important achievement and exciting time in life. You will gain
greater independence, meet new people and have new and memorable experiences. It
is a time of significant transition, which can be both positive and challenging. For some,
the stress of college may impact mental health, making it difficult to manage the daily
demands of school. In fact, did you know as many as one in five students experiences a
mental health condition while in college?
To help put a thoughtful plan into place should a mental health condition arise, NAMI (the
National Alliance on Mental Illness) and JED have created this guide to help start the
conversation. It offers both parents and students the opportunity to learn more about
mental health, including what the privacy laws are and how mental health information can
be shared.
Conversations allow you to plan for the unexpected; to know what to do if you develop emo-
tional distress, a mental health condition or if an existing condition worsens. Talking about
mental health is important even if you don’t experience a mental health condition because a
friend may need help. Students often prefer to confide in a friend before confiding in anyone
else—or you may notice that a peer is struggling and you may be able to assist. By learning
more, you’ll be better equipped to know what to do if you or a friend is in distress.
S TA R T I N G T H E C O N V E R S AT I O N 3 C O L L E G E A N D YO U R M E N TA L H E A LT H
S T R E S S O R S T H AT M AY
A F F E C T M E N TA L H E A LT H
77 Relationship breakups
77 Academic pressures
77 Poor grades
77 Financial stress
77 Social status pressures
77 Feeling alone or homesick
NAVIGATING 77 Feeling marginalized, misunderstood
S TA R T I N G T H E C O N V E R S AT I O N 4 C O L L E G E A N D YO U R M E N TA L H E A LT H
BUILDING
CONNECTIONS
college. Others may experience bouts activities, can help you protect your mental
health. Explore opportunities through your
of depression, anxiety or the start of
campus student activities center and get
other mental health conditions. While
involved in one or more of the following:
strong feelings are common, we want
you to know what to do if you feel too 77 Campus events
77 Campus clubs
overwhelmed, if you begin to experience
77 Campus interest groups
mental distress or if an existing condi-
77 Sports
tion worsens.
77 Student organizations
77 Volunteer activities
MANAGING
STRESS
77 Create to-do lists and tackle items one 77 Practice mindful meditation or prayer
by one 77 Eat healthy foods
77 Exercise 77 Avoid alcohol, drugs, smoking and caffeine
77 Get enough sleep 77 Seek support from family, friends or peers
77 Explore time-management strategies 77 Talk with your resident advisor, a trusted
77 Ask friends how they manage stress adult or the campus counseling or
77 Listen to relaxing music guidance center
S TA R T I N G T H E C O N V E R S AT I O N 5 C O L L E G E A N D YO U R M E N TA L H E A LT H
WHO TO INCLUDE IN
YO U R C O N V E R S AT I O N
S TA R T I N G T H E C O N V E R S AT I O N 6 C O L L E G E A N D YO U R M E N TA L H E A LT H
MENTAL HEALTH C O N V E R S AT I O N
S TA R T E R S
CONDITIONS ARE
COMMON Conversation starters for students:
ciation National College Health Assessment II. Spring 2014. Linthicum, throughout the school year.
MD: American College Health Association; 2014.
S TA R T I N G T H E C O N V E R S AT I O N 7 C O L L E G E A N D YO U R M E N TA L H E A LT H
COMMON SIGNS OF A MENTAL HEALTH CONDITION
Mental health conditions have 10 common warning signs that should be taken
seriously. If you or someone you know experiences one or more of these signs, you
should talk with trusted family, peers or mentors and seek assistance.
It can be difficult to know whether what you are experiencing is an early sign of an emerg-
ing mental health condition or part of adjusting to college. You don’t have to know the
answer to this question. Listen to your mind and body. If you are not feeling right and are
having trouble shaking that feeling, then talk with someone who can help you sort things
out and help you decide what kind of support or care you need.
S TA R T I N G T H E C O N V E R S AT I O N 8 C O L L E G E A N D YO U R M E N TA L H E A LT H
CAMPUS RESOURCES
F O R M E N TA L H E A LT H
Talk with your parents or a trusted adult 77 Call the campus counseling or health
close attention to your mental health and if they are directly concerned about your
safety or risk to others.
S TA R T I N G T H E C O N V E R S AT I O N 9 C O L L E G E A N D YO U R M E N TA L H E A LT H
ALCOHOL AND
DRUG USE
Avoid alcohol and drug use to cope with seek help when needed. And if you cur-
stress and if you are experiencing the rently use mental health services, talk about
warning signs of a mental health condition. how you’ll continue your mental health care
Alcohol and drug use can worsen an on campus, how you and your family will
underlying mental health condition.
recognize new or increased symptoms and
Drug use, especially marijuana and
what you will do if such a situation arises.
hallucinogens, may increase the likelihood
of psychosis in people who are at risk of Also discuss strategies for managing stress
developing a serious mental illness.
during college because high levels of stress
increase the risk of developing a mental
health condition. Talk about what you will
do and who you will reach out to if you
experience a high level of stress or find it
difficult to manage stress.
S TA R T I N G T H E C O N V E R S AT I O N 10 C O L L E G E A N D YO U R M E N TA L H E A LT H
SUICIDE HELP AND
RESOURCES
If you find yourself struggling, seek help. If you or someone you know is experiencing
The sooner you get help, the better. Don’t suicidal thoughts and feels like life is not
take on the burden of what you are expe- worth living, seek help immediately by
calling the National Suicide Prevention
riencing alone; reach out so others can
Lifeline at 800-273-TALK (8255), by texting
support you. Reaching out is a sign of
Crisis Text Line at 741741 or by calling
strength. We all have challenging times
911. Involve others; connect with family,
in life when we need to lean on family,
a resident advisor, a counselor, a trusted
friends and professionals for support. You friend or another trusted adult.
are not alone.
S TA R T I N G T H E C O N V E R S AT I O N 11 C O L L E G E A N D YO U R M E N TA L H E A LT H
I F YO U A R E A PA R E N T
O R T R U S T E D A D U LT
WHO SUSPECTS A
STUDENT IS STRUGGLING
Even if you are not experiencing diffi- REACH OUT. Let him or her know you are
S TA R T I N G T H E C O N V E R S AT I O N 12 C O L L E G E A N D YO U R M E N TA L H E A LT H
MENTAL HEALTH CARE ON CAMPUS
Whether you currently use mental health services, begin to
experience distress or develop a mental health condition
or never need mental health care, you should know how to
access mental health care on campus.
S TA R T I N G T H E C O N V E R S AT I O N 13 C O L L E G E A N D YO U R M E N TA L H E A LT H
OFFICE FOR STUDENTS
WITH DISABILITIES
If you do not find information about men- If you have an existing mental health
tal health care on campus or your college condition or develop a condition, learn
does not offer mental health services, more about your college’s office for
students with disabilities. Talk with the
contact your school’s health center if one
office about possible accommodations
exists or the disability services office for
for your condition, if needed.
assistance. Your school may partner with
a community mental health center where
they will refer you. You may also seek
guidance on resources from your academic
advisor.
S TA R T I N G T H E C O N V E R S AT I O N 14 C O L L E G E A N D YO U R M E N TA L H E A LT H
HEALTH INFORMATION
PRIVACY LAWS AND
RULES
If you experience distress or a mental
health condition and seek help at college,
you should know how your health infor-
mation is protected and what your options
are for sharing health information with
your parents or trusted adults.
lenges, especially at the onset of a mental mental health professionals. This one-way
S TA R T I N G T H E C O N V E R S AT I O N 15 C O L L E G E A N D YO U R M E N TA L H E A LT H
Health privacy and confidentiality laws require an emergency or an imminent threat of
harm to self or to other people before parents may be contacted and health information
shared. While many people believe that parents would be contacted in a serious situation,
this is not always the case. The interpretation of “emergency” or “imminent threat of harm
to self or other people” can vary, and identifying when you or someone you know is expe-
riencing a mental health crisis is not always easy. Further, a mental health provider may
believe that the family is a major source of conflict or distress and could worsen the situa-
tion. In assessing difficult situations, providers often choose to protect health information.
If you are over age 18, you can decide whether or not to authorize the sharing of health
information with your parents or a trusted adult and, if so, what information you are willing
to share. Consider completing an authorization form before you leave for school so that
your parents or a trusted adult can help you if you experience a mental health challenge.
If you have an existing mental health condition and value your parents’ or another trusted
adult’s support, it is especially important to consider completing an authorization form.
And remember, you retain the right to revoke your authorization at any time.
Two federal laws regulate when information included in your student education records
and health information may be shared with your family or others. The Family Educational
Rights and Privacy Act (FERPA) protects information in your student education records.
The Health Insurance Portability and Accountability Act (HIPAA) protects your health
information.
S TA R T I N G T H E C O N V E R S AT I O N 16 C O L L E G E A N D YO U R M E N TA L H E A LT H
L AW S A N D R U L E S O N
H E A LT H P R I VAC Y 5
What does FERPA FERPA applies to student education records including records kept
apply to? in college counseling and health clinics
What protection does FERPA prohibits colleges from sharing information in student
FERPA provide? records with parents, with narrow exceptions such as:
77 In a health or safety emergency
77 If parents document that the student is claimed as a tax
dependent
77 With written authorization from the student
Can I sign a FERPA Yes, FERPA authorization forms are offered by most colleges online
authorization form or through the office of the Academic Dean.
allowing my parents
Note: FERPA authorization forms do not permit clinicians to share
or others to access my protected health information. That requires you to complete an
authorization form, such as the one included with this guide.
education records?
Are there state laws Yes, mental health providers working in campus counseling centers
and other rules that may also be subject to state laws and professional licensing rules
protect my records that are more restrictive than FERPA.
kept in the campus
Note: These laws and rules may restrict mental health professionals from
counseling center? communicating with parents. Your written authorization is important if you
want your mental health provider to share information with your parent,
such as if you experience a serious situation or a mental health crisis.
Mental Health Care in the College Community. Edited by Jerald Kay and Victor Schwartz © 2010 John Wiley & Sons, Ltd.
5
(Book Chapter 7: Karen Bower, J.D., and Victor Schwartz, M.D. Legal-Ethical Issues in College Mental Health).
S TA R T I N G T H E C O N V E R S AT I O N 17 C O L L E G E A N D YO U R M E N TA L H E A LT H
Health Insurance Portability and Accountability Act (HIPAA)
What does HIPAA HIPAA applies to health information kept by health care providers
apply to? outside of the campus community, such as:
77 community psychiatrists
77 therapists and counselors
77 campus-based university hospitals
What protection does HIPAA prohibits the sharing of your health information with your
HIPAA provide? parents except:
77 In a health or safety emergency
77 When an individual presents a threat of harm to self or others
77 With verbal or written authorization from the student
Can I sign a HIPAA Yes, this guide includes an authorization form for you to use to
authorization form disclose information to others. You also have the right to access
allowing my parents your health information, although psychotherapy notes are
or others to access my generally not disclosed.
health information?
Note: HIPAA does not allow psychotherapy notes to be shared unless
an authorization form specifically authorizes the disclosure. Even then,
therapists may refuse to disclose therapy notes.
Are there state laws Maybe; some states have laws that are more restrictive than
that cover my health HIPAA. However, a signed authorization should permit disclosure.
information? Unlike FERPA and student education records, parents are not
permitted to access health information by showing that they claim
you as a tax dependent.
S TA R T I N G T H E C O N V E R S AT I O N 18 C O L L E G E A N D YO U R M E N TA L H E A LT H
By discussing these issues with your TYPICAL SCENARIOS
parents or a trusted adult and planning I N V O LV I N G H E A LT H
ahead, you can make thoughtful and P R I VAC Y
informed decisions about sharing mental
health information instead of having to 77 Parents call a college counselor
decide when a mental health condition who is working with their son to say
that, on his last phone call home, he
develops or worsens and the stakes may
sounded down and has not returned
be considerably higher. With an under-
texts or calls for three days. They are
standing of health privacy laws and rules
worried. HIPAA and FERPA do not
and the circumstances in which colleges
limit the ability of families to reach
can communicate with your parents, you out to treating providers. Families
are better equipped to have an informed may also send documents to the
conversation about information-sharing. counselor or college administrators
with their concerns. They may also
As you consider whether you want to ask for the college to check in with
authorize your parents or a trusted adult the student. The counselor is likely
to have access to protected health infor- to tell the student that the parents
mation, keep in mind the following: called and that they are worried
about the student. However, without
77 Your school must have verbal authorization, the counselor may
or written authorization before not respond with specific or detailed
disclosing health information to your information, but they may listen to the
parents or others unless there is a family and often do. The counselor
may, however, discuss certain topics
serious or imminent threat of harm to
or information with the family if the
self or others and under other narrow
student has authorized the counselor
exceptions.
to do so. (MORE ON NEXT PAGE)
S TA R T I N G T H E C O N V E R S AT I O N 19 C O L L E G E A N D YO U R M E N TA L H E A LT H
77 A mother receives a call from her child’s roommate, who says she
is worried about the student; she is not going to class, rarely leaves
the dorm room and is not doing well. The parent calls the dean of
students and leaves a message, then calls the counseling center to
find out if her daughter is receiving services and to get help. Without
authorization, the dean and counseling center will likely not share
any details about the student with the family but may talk with the
family with general information. School staff and administrators are
likely to look into the welfare of the student. However, if they do not
believe that the situation involves an emergency or an imminent
threat of harm to self or others, they will likely not share information
about the student with the family without approval from the student.
77 A student is talking with a therapist in the counseling center and shares that he is
having suicidal thoughts. The therapist expresses concern and asks for permission to
contact his family. The student agrees, and they call his mother together to tell her
about what is happening. If the student had not agreed, then the counselor would have
had to decide whether the circumstances allowed her to contact the student’s family.
If the counselor decides to contact family, the student should be informed that this is
going to happen unless the counselor believes that this step would be dangerous.
S TA R T I N G T H E C O N V E R S AT I O N 20 C O L L E G E A N D YO U R M E N TA L H E A LT H
77 Your school may offer an authorization form for releasing health information on its
website. If it does, use the school’s form. If not, use the form included with this guide.
77 You may specify what types of health or mental health information you authorize for
disclosure (and to whom) on an authorization form. You can authorize sharing of very
limited information or more mental health information.
77 A new authorization form must be completed each year. If you like, you may authorize
sharing for a time period of less than one year.
77 Complete an authorization form before you leave for school and submit your form to
the student counseling or health center so they have it on file. You and your parents or
trusted adult should also keep copies.
77 If you receive treatment from a community mental health clinic, hospital or off-campus
mental health provider, you must sign a new authorization form for providers to be
permitted to talk with your parents or other trusted adult.
S TA R T I N G T H E C O N V E R S AT I O N 21 C O L L E G E A N D YO U R M E N TA L H E A LT H
KEY TAKEAWAYS
77 If you need help, reach out. You are not alone, and
help is available on campus and in the community.
S TA R T I N G T H E C O N V E R S AT I O N 22 C O L L E G E A N D YO U R M E N TA L H E A LT H
AUTHORIZATION FOR RELEASE OF
HEALTH INFORMATION
Information about you and your health is personal, private and protected. This information
may be released only with your written authorization and may be disclosed only for the
purposes described below unless there is a serious or imminent threat to the health and
safety of you or others. This form provides that authorization and helps make sure that you
are properly informed of how this information will be used or disclosed.
PLEASE READ THE INFORMATION BELOW CAREFULLY BEFORE SIGNING THIS FORM.
2. Requested information to release (initial all that you authorize release of):
__ Attendance (appointments scheduled and met; date of service)
__ Treatment (diagnosis and recommended treatment)
__ Safety concerns (level of danger to self and others)
__ Alcohol and other drug use
__ Written mental health records
__ Treatment summary
__ Academic-related issues
__ Billing records
__ Other: _____________________________________________________________
_____________________________________________________________________
_____________________________________________________________________
3. Name(s) and Address(es) of person(s) who will be receiving this information:
_____________________________________________________________________
_____________________________________________________________________
_____________________________________________________________________
_____________________________________________________________________
4. Expiration date: This authorization automatically expires 365 days from today’s date,
unless an earlier date or event is specified: __________________________________
_____________________________________________________________________
5. I understand:
• What this release says and means. I had a chance to have my questions
answered, and I voluntarily agree to this release.
• Information shared based on this release may be further shared by the person
receiving the information and will no longer be protected by state or federal
confidentiality laws.
• I have a right to a copy of this release.
• I may view or get a copy of any health information or education records subject
to this release.
• I may refuse to sign this release. My refusal will not affect my ability to obtain
present or future treatment, payment, enrollment or eligibility for benefits or
educational services from the disclosing entity.
• The authorization provided through this form means that the organization,
entity or person authorized can disclose my protected health information to the
organization, entity or person identified on this form, including through the use
of any electronic means.
S TA R T I N G T H E C O N V E R S AT I O N 25 C O L L E G E A N D YO U R M E N TA L H E A LT H
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