What is HS and how does it affect
the people who live with it?
What is hidradenitis suppurativa?
                                                                       1in
Hidradenitis suppurativa (HS) is a chronic                                                                     Estimates indicate that HS affects
and painful inflammatory skin condition.1 It is                                                                around 1 in 100 people (in most
characterised by recurring nodules, abscesses                                                                  countries for which data are available).1
                                                                                                               HS also appears to be more than twice
                                                                       100
and pus-discharging tunnels that can result in
odour.1 Although much is still unknown about                                                                   as common in women than it is in
HS, international efforts are underway to                                                                      men, based on estimates from four regions
better understand its epidemiology.2                                                                           in the United States.3
Key challenges
                                                               Effective treatment options are                                   On average, people with HS
It can take on average                                         limited, meaning that nearly                                      report missing at least
             10                                                50%                                                               2
up to
                                 years                                                  of people                                          days
for a person with HS to receive                                with HS are dissatisfied                                          of work per month
an accurate diagnosis.4*                                        with their current treatment.1 4*                                due to their HS.5**
Living with HS
                                    MENTAL HEALTH                                                                           STIGMA
                                   More than 1 in 3 people                                                                  The physical symptoms
                                   living with HS report                                                                    of HS can cause feelings of
                                   having depression,                                                                       self-consciousness,
                                   anxiety or both, while                                                                   embarrassment and
                                   approximately 1 in 11 has                                                                shame.4*
                                   considered or attempted
                                   suicide.4*
                                                                                                                           SOCIAL AND FAMILY LIFE
                                                                                                                           People living with HS often
                                    WORK
                                                                                                                           feel unable to
                                    HS may result in                                                                       participate in family
                                    absence from work                                                                      activities, social
                                    and unemployment.5** 6                                                                 interactions and
                                                                                                                           physical activities.4* 5** 6
                                    INTIMACY                                             ‘ I used to be ashamed of my HS
                                   The physical symptoms                                   but being able to talk about it
                                   of HS can lead to
                                                                                           now is so important for me.’
                                   anxiety around
                                   being intimate and                                                                    Bente Villumsen
                                   how the other person                                                                  Danish Hidradenitis Suppurativa
                                                                                                                         Patients’ Association
                                   might react.5**
                      The impact of HS on the lives of people affected will be explored
                               further in an upcoming international report.
Funding disclaimer
This infographic was developed as part of a project which is led by The Health Policy Partnership (HPP) with guidance from
a multidisciplinary steering committee. HPP was commissioned by UCB, which initiated and is funding the project. UCB
reviews all outputs, but editorial control lies with the steering committee. Contributing experts are not paid for their time.
References
* Based on international survey data, with 1,299 participants in a survey from 2020.4
** Based on international survey data, with 537 participants in a survey from 2022.5
1.   Sabat R, Jemec GBE, Matusiak Ł, et al. 2020. Nat Rev Dis Primers 6(18): 1-20
2.   Global Hidradenitis Suppurativa Atlas. 2022. https://ghisa.org/
3.   Garg A, Kirby JS, Lavian J, et al. 2017. JAMA Dermatol 153(8): 760-64
4.   Garg A, Neuren E, Cha D, et al. 2020. J Am Acad Dermatol 82(2): 366-76
5.   Kashetsky N, Mukovozov IM, Pereira J, et al. 2022. Clin Exp Dermatol 47(1): 72-79
6.   Delany E, Gormley G, Hughes R, et al. 2018. J Eur Acad Dermatol Venereol 32(3): 467-73
© UCB Biopharma SRL, 2023. All rights reserved. | GL-N-DA-HS-2300026 | Date of preparation: May 2023