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allthenecessarytoolstounderstand scientificevidenceisavailable,have
Reproductivehealthand thechallengingissuesthatformPartII, proventobeextremelydifficulttorealize.
humanrights:integrating suchasfemalegenitalcutting;useof Theauthorsofthisbookaredis-
medicine,ethicsandlaw sexualandreproductivehealthservices tinguishedspecialistswiththehighest
byadolescentgirls;medicallyassisted credentialsinsexualandreproductive
Authors:RebeccaJ.Cook,BernardM.Dickens, reproduction;involuntaryfemalesteril- health(MahmoudF.Fathalla),repro-
MahmoudF.Fathalla ization;counsellingandcareforwomen ductiveandsexualhealthlaw(Rebecca
Publisher:ClarendonPress,Oxford;2003 whoareHIV-positive;andrequestsfor J.Cook),andmedicineandethics
ISBN:019924132-5;hardback;582pages;
pregnancytermination.Thevariety (BernardM.Dickens).Theyworkedon
priceUK£60
ofexamplesdiscussedmakesthebook thiscommonendeavorforfouryears,
019924133-3;paperback;582pages;
appealingtoaglobalreadership.Part duringwhichtimetheywereabletogo
priceUK£19.99
IIIprovidesahistoricalandempirical beyondthelimitsoftheirdisciplines
frameworkfortheprevioussections: andmergetheircomplementaryareas
Anadolescentwomanrequestsacontra-
essentialreproductivehealthdatafrom ofexpertisetoproduceabrilliantand
ceptivemethodfromahealthprovider
aroundtheworldobtainedfromthe uniquebook.
inacountrywhereaccessforunder-aged
mostreliableinternationalsources;a Theintendedreadershipincludes
usersisrestricted;acoupledenouncesan
listofhumanrightstreatiesandUN healthproviders,lawyers,researcher
involuntarysterilizationtoalocalnon- conferencedocumentswithreferences workers,ethicalanalysts,healthadminis-
governmentalorganization;awoman tosexualandreproductivehealth;and trators,membersofgrassrootsorganiza-
requestsalegalabortioninacontext bibliographicdetailsofkeyrelevant tions,andlegislativeaides.Thebook’s
whereterminationofpregnancyishighly papersthathaveappearedoverthelast interdisciplinaryapproach,contents,and
stigmatizedandaccesstosafeservices 50years. goodbalancebetweentheory,concepts,
isdeniedher.Thesearejustexamples Theauthors’mainobjectiveisam- concreteexamplesandrecommenda-
ofterriblyunfortunatebutcommon bitious:tomakereadersunderstandthat tionswillmakeitappealingandrelevant
featuresindevelopingcountries,where “reproductiveandsexualill-healthdoes tothisbroadaudience.Additionally,it
women,particularlypoorwomen,lack notoccurinavacuum,butiscondi- iswritteninalanguagethatisrelatively
thenecessarypowertosuccessfullyfight tionedbycultures,lawsandvalues.”This accessibleandreader-friendly.Neverthe-
fortheirneedsandrights. isfullyachievedthankstotheauthors’ less,thecomplexityofsomeoftheissues
Ameaningfulandappropriate encyclopaedicknowledgeandinterna- itdiscusses,itssizeandwealthofdetail,
responsetothesecomplexsituations tionalperspective.Althoughobvious mayconstituteabarrierforlaypeople
requiresacomprehensiveapproach.As tosome,thisperspectivemaybenew andevenforsomeprofessionalsin
acknowledgedbytheauthorsofRepro- formanyreaderswhodon’thaveaccess developingcountries.Thefactthatitis
ductivehealthandhumanrights:integrat- toviewsfromdisciplinesotherthan writteninEnglishmayalsobebarrierto
ingmedicine,ethicsandlaw,nosingle theirownorhaveknowledgeofdistant somereadersindevelopingcountries.
disciplineorperspectivewillresolvethe geographicareasanddiverseculturalset- Thepublicationofthisbookis
manydilemmasinvolvedinprotecting tings.Afurtherobjectiveistostimulate opportunebecausethisisaparticularly
reproductiveandsexualhealth.Health readerstodeveloptheirownanalysesand challengingtimeforthesexualand
providers,advocatesandpublicofficials approachesbasedonlocalcircumstances. reproductivehealthandrightsmove-
strugglingwithrealcasesonadailybasis PartIIisinstrumentalinachievingthis ment.Aftergainingmomentumduring
arenotalwaysabletoadoptsuchanin- goal.Eachofitsfifteenchaptersanalyses the1990s,thismovementhasbeen
clusiveview,largelybecausepreviously themedical,ethical,legalandhuman dramaticallyaffectedbyaconservative
availablepublicationsdealtseparately rightsaspectsofaseparateissue;provides backlashandafinancialrecessionthat
withsexualandreproductivehealth, solidrecommendationsforuseatthe haveunderminedmultilateralandbilat-
ratherthanfocusingontheirlinks clinicalandhealth-caresystemlevels;and eralinternationalaidprogrammesand
andinteractions.Thismonographis describesthesocialactionsneededtoad- thesupportprovidedbymanyprivate
thereforeanimportantadditiontothe dresstheunderlyingprobleminvolved. foundations.Thismonographhighlights
scarceliteratureattheinterfacebetween Relevantandconcreterecommendations thecrucialimportanceandcomplexity
medicine,ethics,humanrights,andlaw, forimprovingthequalityofcarereceived ofsexualandreproductivehealthand
andrepresentsauniquereferencesource byindividualswithreproductiveand rights,whicharecurrentlyunderattack
thatseekstofulfilthisunmetneed. sexualhealthproblemsarealsogiven. andatriskofbeingexcludedfrom
Thebook’sthreepartscomple- Thisapproachmay,however,belimited internationalandnationalagendas.O
menteachother.PartI,theoreticaland initsusefulness:attemptstochange
conceptual,providesthereaderwith prevalentpractices,evenwhenstrong AnaLanger1
1
PopulationCouncil,RegionalOfficeforLatinAmericaandtheCaribbean,PanzacolaNo.62–102,Col.VillaCoyacan,MexicoCity,Mexico
(email:[email protected]).
BulletinoftheWorldHealthOrganization|July2004,82(7) 549
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hierarchicalstructurewithaccompanying code,a“MORE”buttonisdisplayed;by
ICFillustrationlibrary codes,textandillustrations.Thesite’s clickingonit,theuseristakentothenext
TheICFillustrationlibraryisanillus- designpermitsotherlanguagestobe deepercodelayer.Theroutebywhich
tratedwebsiteversionoftheWHO addedsimplytothelibrary. theuserhasarrivedataparticularcodeis
InternationalClassificationofFunc- Uponopeningthewebsite,the displayedonscreen,allowingeasyaccess
tioning,DisabilityandHealth(ICF).It userispresentedwithascreenshowing toanypartofthehierarchy,thusmaking
providesasimpleandunderstandable thetoplevelstructureofICF:Body thewebpagesveryeasytonavigate.
wayofnavigatingthestructureand Functions;BodyStructures;Activities Fig.1showstheimageofapageofthe
constructionofICF.Thewebsiteshows andParticipation;EnvironmentalFactors. ICFillustrationlibrary,withtheright-
Japanese(http://www.tokyo.image-lab. Clickingonanyoneofthesehead- handexpandedsetofimagesshowing
or.jp/icf/ill/)andEnglish(http://www. ingsleadstoadisplayoftheassociated thepageobtainedwhenauserpressesthe
tokyo.image-lab.or.jp/icf/ill/english/) chapters.Thekeyfeatureofthelibrary “MORE”buttonshownbelowd410.
versionsofthelibrary.Accesstoboth isitsuseofillustrationsatalllevelsto Developmentoftheillustrative
versionsisfree,andthewebpagesenable supportthetext.Ifaconceptcanbe librarywasbasedonexperiencegained
theusertoviewtheclassificationviaa furtherclassifiedbyamoredetailedICF indevisingafunctionalassessmenttool
550 BulletinoftheWorldHealthOrganization|July2004,82(7)
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fortheelderlyinJapan.Theillustrations, ofinterestandscientificmisconductare inmakingdecisionstoapprove—or
whichweredrawnbyaprofessionalartist alsocovered.Examiningthecontents toconduct—proposedbiomedical
undersupervision,aremarkedbytheir ofthebookintermsofreviewingour researchprojects.Scholarlydiscussion
simplicityandprovideagoodgraphical curriculumandputtingtogetherassigned tendstoconfusethemandtoleavethem
descriptionoftheclassificationconcepts readingmaterialfortheparticipantsin stillhopingforclearguidelinesregard-
andcodes.Theillustrationsarecopy- thecourse,wethoughtthatmanyofthe ingparticulardecisionsthathavetobe
rightedbyDrTaiTakahashi(Interna- chapterseasilydeservedtoberequired made.Someoftheparticipantsinour
tionalUniversityofHealthandWelfare, reading—notonlyfortheparticular coursesmaytendtohavesuchfeelings
Japan)butthecreatorsarekeentoallow coursemodulethatwewereaboutto uponreadingEthicalandregulatory
thenon-commercialuseoftheirwork. givebutforsubsequentmodulesthat aspectsofclinicalresearch.Suchfeelings
Thetextualinformationtakenfrom weretofollow.Thebook’scontents cannot,however,beascribedtothebook
ICFiscomprehensiveandincludesthe easilyfittherequirementforasingle itself.Perhapsitshouldbetheresponsi-
fulldescriptionsofthecodesaswellas volumethatcontainsmostofthe bilityofregulatorybodiestoshowhow
notesoninclusionsandexclusions. materialsthatonewouldhavewanted materialssuchasthoseinmonographs
Thepagesonthesitecanbepoten- —providinganintroduction,current suchasthisrelatedirectlytotheworkof
tiallyusedasatrainingaidtounder- internationalguidelines,theoretical ethicsreviewersandresearchers,andto
standingthestructureandcomposition analyses,aswellasexcellentselections particularpositionsthattheymaytake
ofICF,aswellasanonlineaidtousing onspecializedissuesandthemostrecent
withrespecttocertainissues.
andinterpretingtheICFclassification controversies.
Thebookisclearlyprimarilyin-
system.Useoftheillustrationsinaddi- Mostofthereadingsthathavebeen
tendedforanAmericanaudience,which
tiontothetextmayalsoresultinamore chosenforthebookcanlayclaimto
isunderstandable,sincetheeditorsare
standardizedinterpretationoftheclas- beingclassics.Theyrepresentsophisti-
Americanacademics.Also,theindi-
sificationandthusensureconsistency. catedthinkingonvarioustopics.Also
Althoughthelibraryhasbeenspecifi- theychronicletheadvancesinethical vidualcontributorsarefromdeveloped
callydesignedfordealingwithelderly theorythathavecomeaboutinresponse countryinstitutions.Onewonders
patients,itsdesignwouldalsolenditself tothecontroversy-riddenstridesthat whetherthisreflectsabiasinfavourof
tobeingadaptedforotherpatientsgroups havebeenmadeinbiomedicalresearch authorswhocouldbeappreciatedby
andusedinotherculturalsettings.O overthepasthalfcentury.However, anAmericanreadership;adearthof
therecanbedrawbackstoeleganceand relevantmaterialwrittenbyscholars
SteveSutch2 sophisticationinthoughtiftheobjective fromotherpartsoftheworld;alackof
inmindisthepracticalapplicationof appreciationforperspectivesexpounded
information.Classicalwritingsdonot bydevelopingcountryauthors;or,aswe
necessarilyconstitutethebestmaterials hope,asimpleoversightthattheeditors
Ethicalandregulatoryaspects foreducatingpeoplewhohavediffer- willattempttorectifyinasubsequent
ofclinicalresearch:readings entlevelsofscholarlycommitmentand edition.Nevertheless,thecompendium
andcommentary practicalinvolvementinresearchand ofarticlesinthisbookis,onthewhole,
reviewofresearchethics.Forexample, relevantinternationally,withsome
Editors:EzekielJ.Emanuel,RobertA.Crouch, participantsinourtrainingcourses qualification.O
JohnD.Arras,JonathanD.Moreno,& haveoccasionallytoldusthattheyare
ChristineGrady moreinterestedinbeinggivenspecific LeonardoD.deCastro3
Publisher:JohnsHopkinsUniversityPress, rulesorguidelinesthattheycanreferto
Baltimore,MD,USA;2004
ISBN:0-8018-7813-6;paperback;528pages;
priceUS$39.95
Bulletinboard:haveyoursay
Itwasquitepropitiousthatthisbook Readersnowhavetheopportunitytocommentonrecentlypublishedarticlesthathave
arrivedforreviewjustaswewereprepar- appearedintheBulletin,intheformofaninformallettertotheeditor.Thesecomments
ingtoconductanothertrainingcourse willthenbepublishedonthe Bulletin’swebsite,afterquickeditorialreview,under
inresearchethicsattheUniversityof ournew“Bulletinboard”sectionandaselectionwillbechosentoappearintheprint
thePhilippinesforhealthresearchers versionofthejournal.Pleasevisitourwebsiteathttp://www.who.int/bulletin/en/to
andmembersofEthicsReviewCom- accessthelatestarticlesandemailyourcontributionsto:
[email protected].
mitteesintheAsia–Pacificregion.Thebook
beginswithahistoryofhumansubjects
researchandthencoversvariousaspects
ofclinicaltrialprocess,including:
designingthetrial,recruitingpartici-
pants,ensuringinformedconsent,and
studyingspecialpopulations.Conflicts
2
SeniorConsultantandAnalyticalandStatisticalServicesManager,NHSInformationAuthority,King’sCourt,TheBroadway,WinchesterSO239BE,England
(email:[email protected]).
3
DepartmentofPhilosophy,UniversityofthePhilippines,Diliman,QuezonCity,1104Philippines(email:[email protected]).
BulletinoftheWorldHealthOrganization|July2004,82(7) 551
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