jinnes,+CJNR Vol 37 Issue 04 Art 03
jinnes,+CJNR Vol 37 Issue 04 Art 03
Résumé
Cet article recense la première vague de résultats issus d’une enquête sur les
opinions et les expériences de certains acteurs communautaires travaillant à
l’amélioration des soins offerts aux femmes enceintes et aux parents chez les
populations autochtones du Canada. La question du manque d’accès aux soins
prénatals est traitée ici à la lumière d’une analyse postcolonialiste définissant le
contexte historique et social. L’étude de cas proposée est fondée sur des
principes de recherche participative. Les données ont été recueillies au moyen
d’entretiens exploratoires et de discussions en petits groupes. L’échantillon
comprend des dirigeants communautaires, des fournisseurs de soins et des
membres de la communauté affiliés à deux services de santé autochtones dans
une région surtout rurale, tous choisis à dessein. Les participants des trois groupes
considèrent que la prestation des soins aux femmes enceintes, aux mères et aux
familles autochtones devrait tenir compte des priorités et des expériences de ces
dernières.Voilà pourquoi les auteures ont ajouté la question « Quelle importance
la grossesse et le parentage revêtent-ils aux yeux des parents autochtones » au
questionnaire d’entrevue. Selon les répondants, la prestation des soins doit abso-
lument tenir compte de la nécessité de « renverser » les effets intergénérationnels
des pensionnats. Les résultats suggèrent que la grossesse et le parentage doivent
être envisagés comme une expérience propre aux personnes et aux familles
appartenant aux communautés autochtones. Par ailleurs, il faut traiter les effets
intergénérationnels des pensionnats comme un instrument de violence collec-
tive et comme un facteur clé pouvant expliquer le traitement inégal que
subissent les Autochtones du Canada en matière de santé et d’accès aux services.
Mots clés : populations autochtones, pensionnats, grossesse et parentage
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This paper reports on the first wave of results from a study exploring the views
and experiences of community-based stakeholders on improving care for
pregnant and parenting Aboriginal people in Canada.The issue of poor access
to prenatal care by Aboriginal women and families is viewed through a post-
colonial lens within a historical and social location.This case study was guided
by participatory research principles. Data were collected through exploratory
interviews and small-group discussions. The sample comprised purposively
selected community leaders, providers, and community members affiliated with
2 Aboriginal health-care organizations in a mainly rural region. Participants from
all 3 stakeholder groups expressed the view that care should be based on an
understanding of the priorities and experiences of the pregnant and parenting
Aboriginal women and families themselves.Therefore the research question
What are Aboriginal parents’ views of the importance of pregnancy and parenting?
was added to highlight the views and life experiences of Aboriginal parents.
“Turning around” the intergenerational impact of residential schools was identi-
fied as pivotal to care.The results suggest that pregnancy and parenting must be
understood as reflecting both the unique individual and family experiences of
Aboriginal people and the intergenerational impact of residential schools as an
instrument of collective violence and as a key factor in Aboriginal Canadians’
inequitable health status and access to health services.
Keywords: Aboriginal people, residential schools, health impact, pregnancy and
parenting, population health
Introduction
Two thirds of that last generation to attend residential schools has not
survived. It is no coincidence that so many fell victim to violence,
accidents, addictions and suicide.Today the children and grandchildren
of those who went to residential schools also live with the same legacy
of broken families, broken culture and broken spirit. (Chief Councillor
Charlie Cootes, cited in Royal Commission on Aboriginal Peoples
[RCAP], 1996, p. 22)
1 The term Aboriginal “refers to organic political and cultural entities that stem histori-
cally from the original Peoples in North America, rather than collections of individuals
united by so-called ‘racial’ characteristics” (RCAP, 1996).These include the First Nations,
Inuit, and Métis peoples of Canada.
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Background
The federal government has had jurisdiction over health services for First
Nations and Inuit people living on reserves since 1876 and passage of the
Indian Act (Government of Canada, 1985). Since that time, services have
been provided through the First Nations and Inuit Health Branch,
formerly known as the Medical Services Branch of Health Canada. At
present, a growing majority of First Nation communities have trans-
ferred, or are in a multi-year process of transferring, administration and
delivery of on-reserve health services from the federal government to
First Nation control (First Nations and Inuit Health Branch, 2005).
Health services for Aboriginal people living off-reserve are the responsi-
bility of provincial governments, and in most provinces are regionally
administered.
On-reserve maternal-child health care comprises pre- and postnatal
care and evacuation from rural, but not necessarily remote, settings to
provincial tertiary care facilities for birth (Smith, 2002). Pre- and
postnatal programs are delivered primarily by registered nurses in part-
nership with community health representatives, and are delivered
alongside several related programs such as the Canada Prenatal Nutrition
Program, the Fetal Alcohol Syndrome/Fetal Alcohol Effects Prevention
Program, and the Aboriginal Head Start On-Reserve Program. Services
vary considerably across the regions and among communities in terms of
presence, size, and scope (Health Canada, 2000).The result of this variety
of services is a collection of programs with independent administrative,
governance, and implementation systems, rather than a coherent, inte-
grated system of care. Further, continuity and depth of care over the
childbearing continuum are disrupted by evacuation for birth, high
turnover among nursing staff, and difficulty integrating the various
programs offered on-reserve (Smith).
Anecdotal and research evidence suggest that this model of maternal-
child health care has contributed to the health and social inequities expe-
rienced by Aboriginal women, children, families, and communities
(Adelson, 2004; Dion Stout & Kipling, 1999a, 1999b).Aboriginal people
have pointed out that new health and healing systems must embody
equitable access to services as well as health status outcomes, holistic
approaches to interventions, Aboriginal authority over health systems,
responsiveness to differences in cultures and community realities, and,
where feasible, community control over services (RCAP, 1996).The need
for change has been publicly acknowledged. For example, Romanow
(2002) asserts that “action must be taken to create new models to co-
ordinate and deliver health services,” address health needs further
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2 The term Aboriginal is used widely in some contexts (e.g., in Canada and Australia),
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Method
The purpose of this study was to describe the perspectives of
community-based stakeholders on their experience in designing, imple-
menting, and evaluating care for pregnant and parenting Aboriginal
women and families.As the study progressed it became clear that partic-
ipants felt that care should be based on the priorities and experiences of
the women and families themselves.Therefore, the focus of the study
brought into the foreground the views and life experiences of the
Aboriginal parents in the sample, to answer the research question What
are the views of Aboriginal parents regarding the importance of pregnancy and
parenting?
The study takes a critical postcolonial stance (Battiste, 2000; Reimer-
Kirkham & Anderson, 2002) and uses participatory research principles
(Cargo, Levesque, Macaulay, & McComber, 2003; Fletcher, 2002;
Macaulay et al., 1998). Participatory research principles include expli-
cating power imbalances, subject-subject relations in the focus and
process of research, and application of the knowledge generated in the
inquiry to influence change in the research problem (Anderson, 2002;
Mill, Allen, & Morrow, 2001). Methods used to uphold these principles
in the study included critical reflexivity (Anderson et al., 2003; Browne,
2003), maintaining the integrity of participants’ voices in context (Dion
Stout, Kipling, & Stout, 2001; Kirby & McKenna, 1989), and taking
direct action on the research problem (Cargo et al.; Fletcher, 2002).
Participants’ experiences were viewed through a critical postcolonial
lens to explicate their efforts to understand, deconstruct, resist, and
transform the impact of colonialism and its institutions (Battiste, 2000;
Reimer Kirkham & Anderson, 2002). Postcolonial and participatory
research perspectives include diverse value systems, are sensitive to differ-
ences (Battiste), value all forms of knowledge, and seek to generate
knowledge that is relevant to stakeholders and is useful for solving
problems (Mill et al., 2001). A case study design (Yin, 2003) was used to
collect in-depth contextual data regarding the experience of individual
and organizational participants in improving care for pregnant and
parenting Aboriginal people in each setting (Abelson, 2001; Cowley,
Bergen,Young, & Kavanaugh, 2000; Dopson, 2003; Langley, Denis, &
Lamothe, 2003). Ethical approval for the study was granted by the Health
and Social Sciences ethical review board of the University of Ottawa, the
ethical review committee of the participating Tribal Council, and the
Chiefs and Councils of the participating communities.
In phase 1 of the study, 16 participants from provincial, regional, and
community-based organizations responsible for services for pregnant and
parenting Aboriginal people were selected using snowball sampling tech-
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Findings
“Turning it around,” a central and overriding theme of the project,
reflected a sense of hope based on understanding and confronting the
IGIRS:
We are turning it around… We are going to be better parents for our
children because we are healing. And our children won’t experience the
legacy. I mean, that is my hope, that my children won’t experience the pain
and things like that, that they will have an understanding, and what they
will acquire is the gift of…resiliency and the gift of survival, but not the
pain of the abuse and everything else. (parent/provider/leader)
“Turning it around” had three sub-themes: understanding the IGIRS,
healing, and building strength and capacity. A fourth, cross-cutting, sub-
theme of turning it around, “rebuilding our cultures in contemporary
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And that’s one part. But then another part is the relationships thing…the
relationship with self, the relationship with family, relationship with
community. And I think number one is that you really have to get your
relationship with yourself sorted out. (grandmother)
Participants identified forgiving self and others for past hurts and
acknowledging strengths as important aspects of healing. One parent said,
“I’m afraid to admit when I’m wrong; I’m afraid, but I have the ability
to forgive.” Participants expressed the view that part of healing is
changing personal core beliefs, particularly regaining respect for self and
all living things:
We don’t need to be powerful; we just need to be equal, to respect each
other. Letting it all go to hate, that is not good for your inside.You got to
think about your own body, deal with it, heal it and not fill it with hate.
Turn things around. Let’s do it with love and respect for each other
as women and in turn feed it to our children. (parent/community
member)
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that greatly helped me was the fact that my mom was a teen mom. She
was 16 when I was born, 15 when she got pregnant. And everyone said
that she should either have an abortion or give me up for adoption…when
I was born her doctor said to her, “There’s no way that you are going to
provide her with a good life, and you are going to be condemning this little
girl to a horrible life and she will never amount to anything.” And my
mom did not stop working her butt off to make sure that I had a really
good life, and I did. And so I guess from seeing her I knew that all hope
was not lost. I knew that if I just worked really, really hard…I could get
there. Unfortunately I think that not everybody grows up being able to see
that. (parent)
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Discussion
According to international law, “forcibly transferring children of the
group to another group” is a form of genocide, or state-perpetrated
collective violence intentionally targeting a population group with the
aim of destroying it (Convention on the Prevention and Punishment of the
Crime of Genocide, 1951, cited in Krug, Dahlberg, Mercy, Zwi, & Lozano,
2002, p. 216).The long-term individual and population health effects of
genocide are well documented.They include increased rates of depres-
sion and anxiety, psychosomatic ailments, suicidal behaviour, intra-familial
conflict, substance abuse, and antisocial behaviour (Krug et al., p. 216).
“Intergenerational transmission of mental health sequellae (of collective
violence) has also been documented, with offspring of holocaust
survivors reporting higher rates of current and lifetime post-traumatic
stress disorder symptoms than control subjects, despite similar self-
reported rates of traumatic experiences in both groups” (Yehuda et al.,
cited in Krug et al.). Thus an extended burden of disease may be
conferred on communities already coping with a multiplicity of
genocide-related health consequences (Adler, Smith, Fishman, & Larson,
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Conclusion
The foregrounding of Aboriginal parents’ explanations for the root causes
of poor health and social conditions in their communities represents a
paradigm shift for maternal-child health policy and programs and profes-
sional practices, which have positioned Aboriginal people themselves as
“the problem” and focused efforts on the downstream effects of residen-
tial schools.The sub-themes in the participants’ stories serve as a prescrip-
tion for action, on the part of both Aboriginal and non-Aboriginal
people, with regard to relationships, programs, and policies to bring the
culture back by acknowledging the profound effects of IGIRS, empha-
sizing healing, and focusing on strength and capacity. Such a perspective
will enable health policy, organizations, and providers to work in closer
harmony with Aboriginal people to achieve their vision, instead of rein-
forcing the colonizing relations that are a legacy of the past and a feature
of everyday practice.
Such a shift will require nurses to develop the individual competen-
cies necessary for culturally safe nursing practice. Further research is
needed to explicate competency development processes that will build
partnerships between Aboriginal organizations and communities and to
identify implications and actions for the nursing education and practice
organizations that oversee our professional responsibilities to the public.
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