Palliative Care Workbook
Palliative Care Workbook
a
Palliative Approach
1. One key message in the text is that the principles of palliative
care can be integrated into care early in the dying process. Is
this a new concept for you? What are the benefits of the
palliative approach? Do you already follow some of these
principles?
C. True
D. True
• What can be learned when HCP asks the “Surprise Question”?
a. It can help you remain aware of the reality that the people you
are caring for are also dying. It can gather information about
changes in the person’s health that suggest the person in higher
risk of dying next year.
• The Interdisciplinary Team (IDT) is designed with the purpose of
supporting the health and well-being of participants in a
collaborative, structured, and person-centered way. An IDT brings
together providers from various specialties with diverse knowledge to
respond to the participant’s physical and clinical.
• Multiple health care providers from different professional
backgrounds work together and with patients/clients, families,
caregivers and communities to deliver comprehensive health
services across care settings. Effective teamwork is a critical
enabler of safe, high-quality care and supports a patient’s
ongoing relationship with their primary care provider (a family
physician or nurse practitioner) The journey to transition to
quality, team-based care with patients and providers as equal
partners means sharing and accessing resources, events and
opportunities to support everyone along the way.
My preferences WHY
Steady Decline will be a good as it is explaining that it is
death for me natural death and the fact
that as we grow
older our body get weaker to
death.
Stuttering Decline is a bad it shows that you will be
death for me undergoing a health crisis or
a lot sufferings as you are
fighting for any chronic
diseases slowly weakening
your body to death.
6. Dying
7. A. I will choose Steady Decline trajectory pattern for my love
ones as it is the way of a natural death, without undergoing to
any health crisis and will not get shock and for me that is that
proper way to death.
The beliefs and baggage that I need to acknowledge and put aside
when caring for dying people is my feelings and emotions. I need to
maintain my professionalism with the client even I got connected
attached to the person.
17. I had a best friend way back in my country who passed away
recently because of covid-19 who messaged me that he needs
help. I wanted to help to fix and do something for him but I don’t
know and I can’t asses the problem since I am here in Canada.
My response since to cheer him up and lessen his over thinking
about the situations and give him strength to fight. It burdens me
that my response I am in the Fix-It trap.
18. - My beliefs about indigenous people, ethnic minorities and
people in underserved population is that they are still part of the
community and they still deserved a proper treatment and
proper benefits from the government and other services. --
Yes, they are common beliefs in my community.
• My current beliefs help will not hinder my ability to provide
compassionate, respectful, non-judgmental care to everyone I
encounter in my work as long as I respect and understand their
beliefs and listen to what they are coming from and what they
believe in.
22. The two eyed seeing will be helpful on providing care without
biased and racism Looking both in views in providing
culturally safe and person-centered care.
23. System bias and racism are present in the health care
system. Option 1: Work in groups
Option 2: Discuss in small groups
27. The interactions might help me to provide support and space for
rituals and practices from mine is using an open box to make it
possible to write responses to facilitate and gather information and
record and update goals-care-conversations for best practice
interactions.
9. Report:
Eileen a 98-year-old woman who has a chronic obstructive
pulmonary disease. She receives oxygen through nasal canula and
receives opioids daily to manage her breathlessness.
I call the nurse to report about Eileen’s pain and ask is she can come
today to see Eileen.
30. Things might have helped me feel comfortable if my love ones are
beside me looking after me. If the person is caring for me, I would
like to have in my caring basket are soft pillows, movies, Gospel
songs, family pictures, fruits and vegetables.
33. True
34. D. nausea/vomiting, constipation, drowsiness, confusion
35. A. Fear of the Symbolism – if he is taking morphine, it means
he is dying
a. Fear of Developing Tolerance- if he becomes used to this dose
of medication, then it will not work for him when his pain
increases.
b. Fear of Becoming Dependent – he will become dependent on
this medication.
c. Fear of Developing a substance use disorder – I don’t want
to become addicted.
d. Fear of Being Judge
e. Fear Of developing Respiratory Depression
36. Its important to provide medications for symptoms regularly
around the clock because if you ignore each symptom it may lead
to worse situation of each client or even to death.
37. True
41. Eating nutritious foods can help the body regain strength and
improves health, but you need to take a look to each food that
concerning to your health. In some health issues there are foods that
is needed to avoid like people with hyperthyroidism they need to
avoid foods that rich in iodine. Some food might help you to get in
good condition but some of it will make your condition more worsts.
You need to be careful and take a look to each food if it is good to
your health or not.
42. A. Yetta ate whipping cream. She decided to eat and drink only
what she loved, nibbling small bits of anything she felt eating and
nothing else.
B. I. As a PSW, I will ask Yetta what she loves to eat and select what
is best for her health and prepare it for her.
43. As a PSW, I will ask Yetta culture and ask her to tell
some stories about her country of origin.
44. I will do research of an alternative way of traditional
healing based on her culture for somehow to give her comfort.
45. I will give her different way of giving comfort until the
end of her life.
46. I will help her to do what she loves to do that is possible to do.
12. The things that I can do for the family of a person experiencing
anorexia and cachexia is educate them first about the disease
and condition of their family member so they are going to be
aware of it. Then make a care plan for the person ADL with
the team and the family to e courage the client to eat and gain
weight as possible.
14. Constipated
changes in
bowel and
bladder
function.
19. Dehydrated
When What you Comfort Ways to
you might ask a measures support
might dying person to that Family
observe if better might be
a person understand helpful
is their needs
dehydrat
ed
1. dry 1. How frequent 1. make 1. You
mouth, is your sure can invite
tongue and urinating? person’s family to
lips favorite participat
drinks e in
are within providing
reach to comfort
encourage to the
frequent person
drinking. who is
experienci
ng
dehydrati
on and
show the
to do
so.
2. Dry skin 2. How do you 2. 2. the
feel? Can you encourage person
describe it? person to or their
avoid family
dehydrati maybe
ng liquids. concerne
d that
dehydrat
ion is
causing
or will
cause
discomfort.
3. loss 3. which do you 3. provide 3.
of skin prepare to excellent encourage
firmne drink? mouth them to
ss care to walk with
prevent the nurse
discomfort or
to the physician
mouth. to
learn
some
options
managing
or
preventing
dehydratio
n.
20. Delirium
When What you Comfort Ways to
you might ask a measures support
might dying person to that Family
observe better might be
if a understand helpful
person their needs
has
delirium
1. 1. when did you 1. provide 1.
Refusing first notice the a quiet, Listening
to take change? familiar, to their
medicatio safe concerns
n environme and
nt with reporting
adequate these to
lightning. the
nurse
2. 2. How severe 2. 2.
inability is this maintain providing
to carry experience the reassuranc
on a with delirium? person’s e that the
conversat daily loved one’s
ion routine as delirium
much as does not
possible mean they
are
crazy.
3. 3. what do 3. be alert 3.
Confusion you think of signs of Providing
might be delirium. a space for
helpful? Report the family
delirium to nap and
as soon as regain
possible. their
strength
during
the
deliriu
m or
after
settles.
21.
Delirium Dementia
causes Metabolic Damage to braincells
problems,
medication
related
Time frame of temporary Life time
onset
Brain changes- Reversible Permanent
permanent or
reversible
Cause by body Yes No
changes
(yes/No)
Presence of Yes Yes
anxiety,
fear or paranoia
22. Tools can be help as I prepare to talk to a health care team are
the SBAR form to gather information and the OPQRSTUVW form to
Assess the person to develop a care plan for the person, family and the
community.
23. The risk factors for developing depression are living with life-
limiting illness, chronic pain, or declining abilities as well as living
in long-term or residential care.
24. A. Life-limiting illness
a. Chronic pain
b. Declining Abilities
c. Living in a long-term care
d. Low self esteem
25. Depression
When What you Comfort Ways to
you might ask a measures support
might dying person to that Family
observe better might be
if a understand helpful
person their
has needs
depressio
n
1. are 1. when did 1. help 1. educate
unintere you first notice the family
sted in the change? person about
their and depression
usual family to
activitie understa
s nd that
depressio
n is a
symptom
that can
be
treated
even in a
terminall
y ill
person.
2. 2. How do you 2. ask the 2.
Frequently feel? Can you person teach
express describe it? what they the
sadness, feel would family
anger and be helpful for the
frustration at this time medica
and record tion
their treatm
response. ent for
depres
sion.
3. are 3. what do 3. are 3. ask the
socially you think present family to
withdraw might be when the support
n helpful? person and
needs a always be
listening with the
ear. person in
times of
problems.
28. Fatigue
How What you might ask Comfort
you a dying person to measure that
might better might be
prevent understand helpful
fatigue their needs
1. Get right 1. How do you 1. discuss
amount of feel? Can you about fatigue
sleep describe it? to the person.
2. Eat properly 2. When did 2. you may
you notice want to be
feeling quiet, gentle
tired? and positive
rather than
energetic and
enthusiastic in
conversation.
3. Exercise 3. what do you 3. support a person
by
regularly think might be listening with them
helpful? and their family.
B. The PSW notice she was sitting in her room, rocking and a
deep frown in face and asked if she is having pain.
• Family
• Love & Self-Love
• Friends
• Good Health
• Passion
• Food, Water and Sleep
B. Write about what you would do if you only have three
months to live.
• Thinking with only the 3 months that I only have left to live
will be very frustrating and stress at first, I don’t know
what I am going to think or do but I decided to live life with
good and happy moments with my love ones and giving
happiness to them as well and to the people around me.
C. Write about what you would do if you had only three
days to live.
D. What were your feelings as you wrote in the large box? The
medium box? The small circle? What thoughts do you associate with
these feelings?
F. How would you feel if you were not able or not allowed to do what you
identified in the circle? Consider how dying during the Covid-19 pandemic,
affected the ability of the person to do what they wanted in their last weeks
and days and hours. If you had been dying and unable to see family or
friends in the last days, how would that be for you? What might have been
helpful?
D. What might you say to or do for the person and the partner to show
compassion?
What I am going to do is show my compassion to my
job and that I am willing to do whatever I can do to
give him comfort. I will make them feel that I am
always here if they need me.
3 Describe why psychosocial care is considered holistic.
• Psychosocial care is the culturally sensitive provision of
psychological, social, and spiritual care through therapeutic
communication. It is considered holistic because it shows that
effective psychosocial care improves patients' health
outcomes and quality of life.
6
What principles of providing culturally safe care
will help you and the team share information in a
most helpful way?
a. Listening to the person and empathizing with them about
their concerns and questions and connecting them with the
appropriate team member for support.
b. Communicating with the team when the person or family do
not understand the information that has been shared with
them.
c. Identifying and working to share information in line with
the person’s and family members preferences for
receiving and
sharing information
d. Ensuring that the person and family know how to contact the team any
time of the day or week.
e. Working with the team to identify other people who can provide support to
the person and family if the health care team is not available at night.
8.Identify eight ways that PSW’s can support advance care planning
• Validate their desire to talk about their personal wishes and hopes.
• Acknowledge the lack of interest in discussing end-of-life issues,
and at the same time share a healthy attitude toward advance
care planning conversations.
• Encourage them to discuss their goal of care.
• Help the person learn about medical procedures.
• Help the person think what is right for them.
• Help the person talk with their health care professionals
about medication or treatment concerns.
• Help the person record conversations. You might say.
• Encourage the person to talk with their health care
professionals and provide them with the relevant contact
information. You might say.
2.Be honest
• EXERCISE
-Extreme Activities - Limit foods that I like
a. I will feel sad, need to do something for myself to get back
on track and help my self to get well and live healthy as I
can.
15. Review pages 167 to 167 text about grief being a whole person
experience.
a. Mark illustration
10. whole
how grief is a whole person experience.
•
Grief is a whole person experience that can affect every part of a grieving
person’s life physically, socially, emotionally, spiritually, mentally and
culturally response towards to others and life everyday living that can take a
longer time to heal and move on to recover.
c.
Brain
Headache
Tears
Chest pain
No appetite
Tummy ache
Fatigue
Pushing people away
• Caring for the body after death is one of the most important
part in itions and cultures like mine.
days to grieve 24 hours in a day. Some of them reminiscing the last days and
hours that they are going to be with their family member, they are buying
good clothes for the death body to wear. Others may not be comfortable of it
but to understand each culture, beliefs and baggage will help to give the nest
care for the dying person and family.
Physical Changes Comfort for the Dying Comfort
Person measures for
the family.
Decreases physical Sleeping may be more Acknowledge that it is
strength and increased important than a daily common for people to
drowsiness bed bath, and visiting sleep more as death
with family may be nears. You might say,
more important than it is normal for dying
visiting with friends. person to sleep more
and more as time
passes. If the family
expresses concern that
medications may be
causing their loved
one’s drowsiness,
encourage them to talk
to the nurse or
physician.
Reduced intake and Give the person Encourage the family
difficulty swallowing thickened fluids if to talk or ask questions
directed by the nurse or of the nurse, physician,
dietitian. Remind the or dietician when they
person to swallow if have concerns about
they forget. the effects od decreased
intake on their loved
one and what the
experience may be like
for that
person.
Delirium or confusion Promptly report early Encourage family
signs of delirium to members who are
the nurse. Consider caring for a dying
whether it would be loved one to try to find
helpful to reorient this ways to care for
person, given their themselves, for
cultural perspective example, by having a
about delirium. Allow nap or going for a
the person to be in walk, while are in the
their delirium home.
orientation if they
appear to be
comfortable.
Agitation or Report agitation and Encourage the family
restlessness restlessness promptly to discuss their
to the nurse so that concerns with the
this symptom can be nurse and physician.
manage quickly. Share information.
Explain that
restlessness is a
common experience
that you will
experience in the last
days and
hours,
Unresponsiveness You support the You can help family
person when you members ex[lore
reposition them ways to connect with
regularly to protect their loved one by
their skin and using touch or music,
increase their by simply being a
comfort. quiet presence, or by
It maybe comforting reminiscing and
to person if you recalling family
continue talk with stories
them as though they in the presence of the
were able to hear dying person.
you.
Irregular breathing You can help by Show the family how
positioning the to freshen and
person in a way that moisten a dry mouth
supports their if the person is
breathing and by breathing through
providing verbal their mouth. If the
assurance. family is interested in
helping with care,
show them how to
used atomizer and
apply lip
balm.
Congested breathing Provide a calm and Encourage the family
reassuring presence. to contact the nurse if
Use pillows to support congestion increases
the person to help of if the person shows
open airways. signs of discomfort.
Help the person into The nurse can
a semi-supine address questions
position if about the use of
they are suctioning to
very relieve the congestion.
congested
Changes in skin color If the person is Consult with the nurse
and temperature sweating, you can about the
provide clean person’s physical
clothing need to be
Preparing Yourself
B. Preparing the family and other staff.
C. Developing a Plan for the time of death and Providing compassion
6.
Decreased physical strength and increase
drowsiness
Reduce intake and difficulty swallowing
Delirium or confusion
Agitation or restlessness
15. Irregular breathing
16. Congested breathing
17. Changes in skin color and temperature
Muscle twitching
Dry eyes
Lack of urinary output or bowel and bladder
incontinence
7.
Care of the body Ways to support family
Home setting Long-term care At all locations
facility
a. place and a. place and Make sure the family has easy
incontinence pad incontinence access to the contact
under the buttocks pad under the information of the nurse.
in case of further buttocks
incontinence in case of
further
incontinence
b. change soiled b. change Prepare the body as respectfully
linen soiled as
linen you would if the family is
present.
c. dresses the c. dress the Put in the person dentures as
person in a fresh person in a this is important to the family.
gown or fresh gown or
clothing clothing as
as appropriate appropriate
d. position the d. position Inform the nurse and the
person lying flat the person family as soon as possible.
with a pillow lying flat
under with a
their head pillow under
their head
e. Close their e. Close their Gather person’s things as it is
eyelids if their eyelids if important to the family.
9. A. offer nourishment
12. A. it will help the family’s understanding about the situation of the
client.
B. To help the person’s family to accept the dying person’s few days and
hours to live.
B. Yellow
C. Things are not as smooth as they were. I feel more tired working
full-time in the morning and studying at night. I am sad when people tell
me their problems. I ignore problems for a while that I cannot fix right
away. But I am still doing my best to things that I needed to do.
4.Drawing
6. A. Embracing the End of life: Help for those Who Accompany the Dying
The End of Your Life Book.
B. A story About Care The
bucket List
Five People You Meet in Heaven
C. Speak Up: Advance Care Planning in Canada
The way Forward: An integrated Palliative Approach to Care