National Strategic Framework For Palliative Care Development in Sri Lanka 2018 - 2022
National Strategic Framework For Palliative Care Development in Sri Lanka 2018 - 2022
2018
Palliative care begins at the time of diagnosis of a life-threatening disease (eg. cancer) and continues
throughout the disease process until death and into the family's bereavement period according to
the current concept (better concept) as shown in Figure -1.
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It is a right of the every person with life-threatening illness to receive appropriate palliative care
wherever they are. It is also a responsibility of every health care professional to practice palliative
care according to the need, irrespective of the illness or its stage and any other characteristic of the
patient including age, sex, ethnicity, religion or the income status.
It is estimated that palliative care is needed for 40%-60% (WHO 2016) of all deaths annually. The
leading disease conditions which require palliative care for adults and children in global context are
listed in table 1.
With the demographic and epidemiological transition, deaths due to chronic non communicable
diseases are increasing and it has led to the increasing demand for palliative care services
worldwide.
The need for palliative care in Sri Lanka also continues to grow owing to the rising prevalence of
non communicable diseases and ageing of population. According to the cause of death data of year
2014 in Sri Lanka too it is shown that about 75% deaths are occurred due to the chronic non
communicable diseases as shown in figure 2.
Palliative care has been identified at the Health Master Plan 2016 – 2025. Also palliative care is a
prioritized activity of National Multi Sectoral Action Plan for the Prevention & Control of Non
Communicable Diseases 2016 – 2020.
Overall Goal
To improve quality of life of patients with life-threatening illnesses and their families by offering
them a holistic support system for prevention and relief of suffering through evidence-based,
multi-disciplinary and cost effective approaches
Guiding Principles
1. The delivery of palliative care should be respectful and responsive to the needs, preferences and
values of the persons receiving care and their families and carers
2. Care should be of high quality and evidence based
3. Should provide adequate integration across sectors and through various care settings
4. Services should ensure that care is accessible and equitable
Strategies
1. Ensure that palliative care is recognised and resourced as an integral component of the
health system by making palliative care as an essential component of comprehensive health
care
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2. Facilitate the effective integration of specialist palliative care and palliative care services
across all levels of service settings, namely at tertiary, secondary, primary and at community
level.
3. Develop and make available skilled multi disciplinary human resources and infrastructure for
delivery of palliative care services at institutional and at community levels.
4. Ensure that patients and their families receive palliative care services they need when and
where required & adherence to protocols & guidelines in palliative care
5. Ensure availability of essential drugs & technologies for provision of palliative care at all
levels: tertiary, secondary, primary and community level
7. Empower family members, care givers and general public for the provision of palliative care
8. Encourage research related to palliative care in assessing needs for palliative care and
suitable models for implementation of palliative care services.
9. Ensure adequate financing & resource allocation for cost effective delivery of palliative care
11. Ensure monitoring & evaluation framework for palliative care services
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3. Identify palliative care as Palliative care is Inclusion of Other health related 2018-2020 Director – PA & D
a component of other included in continuum palliative care in policy documents Eg. Director –Non
related health policies & of care linking primary other health 1.NCD Policy Communicable Diseases
non health policies prevention, early related policies 2.Cancer control (NCD)
detection & treatment policy Director –National
programmes 3.Primary care policy Cancer Control
4.Elderly health care Programme (NCCP)
policy Director -Primary Care
5. HIV/AIDS policy Director - Elderly &
6. Medicinal Drug Disabilities
Policy Director - National STD
7.Mental Health and AIDS Control
Policy Programme
8.E-health policy Director - Information
9. Social Services Ministry of Social
Policy Services
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4. Strengthen National Availability of No. of meetings Reports & minutes of 2018-2022 DGHS
Steering Committee on functioning committee conducted per the steering
Palliative Care to coordinate and year committee meeting.
provide oversight for
the implementation
and monitoring of the
national strategy at all
levels.
5. Establish provincial & Availability of No. of meetings Reports & minutes of 2018- 2022 Provincial Director of
district steering functioning committee conducted per the steering Health Services (PDHS).
committees to coordinate to coordinate activities year committee meeting Regional Director of
palliative care at provincial & district Health Services (RDHS)
level.
6. Identify a separate focal Implementation of Availability of Circular of Ministry of 2018-2022 Secretary- Health
point for palliative care at strategic framework for separate focal Health DGHS
the Ministry of Health palliative care point with staff.
level development is
ensured.
7. Incorporate palliative care All stake-holders are Number of Reports 2018- 2022 DGHS
at the national, provincial actively involved in palliative care Provincial Director of
& district health delivery of palliative related activities Health Services (PDHS).
development agenda care successfully Regional Director of
implemented at Health Services (RDHS)
national,
provincial and
district levels
according to the
development
plan
8. Conduct advocacy All stake-holders are No. of advocacy Report of advocacy 2018- 2022 Director -NCCP
programmes to obtain actively involved in programmes programmes Director -Primary Care
support from all delivery of palliative Director -NCD
stakeholders care Director – Nursing
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2.Facilitate the effective integration of specialist palliative care and palliative care services across all levels of service
settings, namely at tertiary, secondary, primary and at community level.
2. Commence ‘Palliative care Palliative care consult No. of palliative Reports 2018- 2022 DGHS
consult services’ at the services are available care consult Nat. Steering Comm. on
tertiary & secondary care with the participation of services Palliative Care
level to deliver all aspects of Consultants, medical DDG (MS 1)
palliative care (Annex 1 & officers, nursing officers, DDG (NCD)
1.1) physiotherapists, PDHS, RDHS
‘ occupational therapists, Director /MS of the
pharmacists, social hospital
workers etc at tertiary & Director -NCCP
secondary care. Director -NCD
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3. Link , clinically supervise The hospices are linked No. of hospices Reports 2018- 2022 DGHS
& monitor government, non with the closest palliative with direct links Nat. Steering Comm. on
government & private care consult service and with palliative Palliative Care
their activities are care consult PDHS
hospices by the closest
clinically supervised services out of RDHS
palliative care consult all the hospices
services
4. Integrate palliative care at Palliative care is No. of patients Survey report 2018- 2022 DDG (MS II)
primary care institutions & delivered for those who received Director -Primary Care
general practitioners need at the closest palliative care Director -NCCP
health setting at the primary Director -NCD
care settings Professional colleges
5.Conduct programmes on Experience is gained to No. of Programme 2018-2022 DDG (NCD), DDG (MS
home based palliative care scale up the home based Initiatives, No. evaluation reports II)
including involvement of palliative care of patients & Management DDG (PHS I & II)
primary care institutions & received home Information System PDHS; RDHS
general practitioners and based palliative Director - NCCP
scale up care Director -Primary care
SLMA
Palliative Care
AssociationOther NGOs
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3.Develop and make available skilled multi disciplinary human resources and infrastructure for delivery of palliative care services at
institutional and at community levels.
2. Conduct specialist Consultants in Palliative No. of trainees Reports of PGIM 2018- 2022 Secretary - Health;
training programme for medicine are available enrolled for MD DGHS, DDG (Planning)
palliative medicine (MD in in Sri Lanka palliative DDG (MS 1), DDG (ET &
Palliative Medicine) medicine R)
Director - PGIM
3. Include module on Palliative care services No. of specialist Reports of PGIM 2018-2022 Director -PGIM
palliative care in relevant are delivered at the training DDG (MS 1), DDG (ET &
specialist training different specialist programmes R)
programmes health settings. containing Boards of Studies at
palliative care PGIM
module Professional colleges
4. Commence and continue Medical officers are No of Medical Reports of PGIM 2018-2022 Director -PGIM
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5. Commence and continue Nursing Officers are Availability of Report of Post 2018 -2022 DDG (ET & R)
a post basic diploma specially trained in post basic Basic School of Director (Nursing
programme in palliative palliative care diploma Nursing Education)
nursing for Nursing programme in Principal (Post basic
Officers palliative care for Nursing School)
nurses.
No of Nursing
Officers
completed the
Post Basic
Diploma in
Palliative Nursing
6. Include aspects of Health care workers are No. of study Reports of 2018 – 2022 DDG (ET & R)
palliative care in basic / trained in palliative care hours / length of teaching DDG (MS 1)
under graduate training at their basic trainings course in programmes & Director – Nursing
programmes of Medicine, to develop the required palliative care in audits (Training)
Nursing and other competencies. each training Dean / Faculty of
relevant health related programme Medicine, Nursing or
disciplines Allied Health Sciences
Professional
Associations
7. Develop and conduct in Health care workers are Number of Administrative 2018 – 2022 DDG (ET & R)
service training trained regularly in persons in each Reports DDG (NCD), DDG (MS
programmes in palliative palliative care category Audits II)
care for medical officers, undergone in- Director -NCCP,
nursing officers, service training in Director -Nursing
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4.Ensure that patients and their families receive palliative care services they need when and where required & adherence to
protocols & guidelines in palliative care
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5.Ensure availability of drugs & technologies for provision of palliative care at all levels of care: tertiary, secondary, primary
and community level
2. Include WHO model list Essential medicines for Number of National list of 2018 – 2022 DGHS
of essential medicines palliative care are items of WHO essential NMRA
(adult & children) for available at health care model list of medicines DDG- MSD,
palliative care in settings essential Professional colleges
national list of essential medicines for
medicines palliative care
included in
the National
list of
essential
medicines
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6. Build partnerships with government and non-governmental organizations for delivery of palliative care
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3. Advocate to obtain Aspects of palliative care Number of Survey Reports 2018 – 2022 DGHS
support of community are delivered at home community D NCCP
and religion based level by the community and religion Ministry of Social
organizations in the based organizations & based Services
delivery of palliative care volunteers. organizations PDHS
involved in RDHS
palliative care District Secretariat
4. Expand networking with International experience No. of Reports 2018 – 2022 D NCCP
international & support is received to international DDG NCD
organizations to strengthen palliative care organizations Professional Colleges
strengthen palliative care contributed in WHO Country office
palliative care
7. Empower family members, care givers & general public for the provision of palliative care
2. Empower family Family members & care No. of programmes Reports 2018- 2022 Ministry of Health
members & care givers givers are trained and are conducted. Ministry of Social
for delivery of palliative empowered. No. of educational Services
care materials developed. Ministry of Women &
Child welfare
Director- NCD
Director -NCCP
Director - Primary Care
Director –Elderly &
Disability
PDHS; RDHS
Hospices
NGOs
3. Facilitate establishment Community organizations No. of groups Reports 2018- 2020 Ministry of Health
of self-help / support are formed. Ministry of Social
groups for palliative Services PDHS; RDHS
patients NGO
Civil Society
organizations
8. Encourage research & clinical audit related to palliative care in assessing needs for palliative care and suitable models for
implementation of palliative care services.
5.Conduct clinical audits at Palliative care services are No. of clinical Report of clinical 2020-2022 Directors/ Medical
palliative care setting to compared with audits related audit Superintendents of the
compare with international international standard or to palliative hospitals
standard / adherence to locally developed care conducted. Professional colleges
guidelines guidelines.
Identify standards and
suitable models for
implementation
9. Ensure adequate financing & resource allocation for cost effective delivery of palliative care
DDG (Finance)
Hospital Directors / MS
PDHS /RDHS
2. Encourage private sector Palliative care services are Number of Reports 2018-2022 Director – Private Health
to develop palliative care available at the private private health Sector Development
services in the private sector institutions Private Health Services
sector. with palliative Regulatory Council
care services Director NCCP
3. Encourage Public Private Public private partnership Number of PPP Reports 2018-2022 Director – Private Health
Partnership (PPP) to develop projects on palliative care projects on Sector Development
palliative care initiatives are commenenced palliative care Private Health Services
Regulatory Council
Hospital Directors
Director NCCP
PDHS, RDHS
2. Identify legislative needs Patients with palliative Availability of Legislative 2018-2022 Secretary -Health
for provision of palliative care needs and palliative new legislative Reports DGHS
care & develop new care service providers are framework Legal officer-Ministry of
legislative procedures protected legally. Health
Attorney General’s
Department
Director NCCP
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11. Ensure monitoring & evaluation framework for palliative care services
2.Incorporate palliative care Palliative care indicators Availability of Management 2018-2020 DDG -Planning
monitoring & evaluation are included in the MIS with information Director - Information
indicators at the management information palliative care system (MIS) for PDHS /RDHS
management information system at each level of M&E palliative care Hospital Directors / MS
system (MIS) care. indicators Director NCCP
incorporated.
The Implementation of National Strategy will be guided by a detailed implementation plan. Accordingly the monitoring & evaluation
plan to measure how the national strategy is progressing will be developed in consultation of all stakeholders, once approval is
obtained for the strategic framework.
References
1. Asia Pacific Hospice Palliative Care Network (2017). Letter on ‘Development of Palliative care services in Sri Lanka’, send by Asia Pacific
Hospice Palliative Care Network 03.05.2017
2. Suresh Kumar (2012). ‘Palliative care in Sri Lanka’, Mission Report submitted to International Atomic Energy Agency (IAEA), October
2012.
3. Ministry of Health. (2015). National Policy & Strategic Framework on Prevention & Control of Cancers in Sri Lanka
4. Palliative care & End of Life care Task Force. (2017). Concept paper. Sri Lanka Medical Association
5. Sri Lanka College of Oncologists. (2017). Recommendations of on Palliative care of cancer patients in Sri Lanka 21.03.2017
6. WHO (2016).Planning & implementing palliative care services : A guide for Programme Managers
7. Palliative Care Association of Sri Lanka. (2016). Proposal on Palliative care submitted by Palliative Care Association of Sri Lanka to the
National Health Strategic Master Plan 2016 – 2025
8. Murray, S. A. et al. (2005). ‘ Illness trajectories & palliative care’, BMJ;330:1007-1011
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