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ic-health/
Eugene T. Richardson
Foreword by Paul Farmer
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To my parents
Contents
Pre-Appendices
Notes
Index
Foreword: Gramsci, but More Pragmatic
One of the great challenges of any social movement is to develop new vocabularies.
—Angela Y. Davis, “Marcuse’s Legacies”
2.
As Covid-19 slowed or halted much of everyday social life, and especially
since the murder of George Floyd, a broader audience turned tardily to
questions that have captured Gene Richardson’s attention for most of the
past two decades. I’d like to introduce this book by introducing him.
I got to know Richardson in 2014 in a makeshift Ebola Treatment Unit,
or ETU, at the height of Sierra Leone’s epidemic. After subsequent years of
working and writing with him, I knew this book would be informed by a
profound knowledge of epidemics, extensive personal experience in
responding to them in West Africa and elsewhere, and an enduring
commitment to pragmatic solidarity. What I didn’t expect was the degree to
which Epidemic Illusions would engage in logical and conceptual debates,
and even philosophical ones. Richardson, I thought in reading an early
version of his book, is like Gramsci but more pragmatic (in the Rortian
sense). And while Gramsci was an organizer, Richardson chose tending to
the sick as his praxis.
He was born to an upwardly mobile family in a New Jersey suburb in
1976 and grew up in Florida. His engagement in health and social justice
wasn’t sure back then—“I revered Nixon because Alex P. Keaton did,” he
said slyly when I asked about his childhood—but medicine, not politics,
was the profession to which he aspired. As an undergraduate at Duke
University, he majored in biology as a pre-med and, shortly after
graduating, traveled to Cape Town, South Africa, to continue studies in
anthropology and generally prolong his errant learning. But he “didn’t like
what was going on there, as the university was still hypercolonized. Rhodes
still sat demonically in front of the place, but the movement to fell him was
still sixteen years away.”
Something had happened, clearly, between venerating Nixon and
execrating Rhodes. Richardson next applied to a master’s program in
anthropology in Sydney, Australia. Upon arrival, he discovered that the
program in anthropology was closing. “What else you got?” he says he
asked. “Asian studies, Eastern philosophy, ancient Chinese Buddhism?” So
he surfed and read omnivorously, heading next for China (where he ended
up in, of all places, Wuhan) and then for another semester-long program in
India, where he played cricket with Tibetan refugees and furthered his
studies of esoteric Buddhist philosophy. On a hiking trip in Nepal,
Richardson was stricken with hepatitis E. When his parents came to collect
their son, they found him “terrifically jaundiced” and bought him a return
ticket the next day.
Back in Florida, Richardson “recovered, got a job at a record store and on
a radio show, and took oceanography classes.” His interest in “Eastern”
thought continued unabated, and he decided to go next to the University of
Hawaii to pursue graduate studies on the topic, but was unsure which
discipline to work in. His reading led him also to studies of how social
inequalities, including racism, got in the body. And his interest in health and
social justice, and in pragmatic solidarity, didn’t wither either. These fused
with the relational view of phenomena he had come to embrace, motivating
his application to medical school—against the recommendations of his
previous Buddhist teachers, who said he would destroy all he had learned.
Unconvinced, he ended up taking a master’s in tropical medicine. He
organized a practicum in Peru, where he had his first, if abortive, contact
with Partners In Health, the NGO we both work with. (“I got fired after a
month for being obnoxious—basically I wanted to join the teachers’
protests in Lima instead of doing the hard work of clinical research, tedious
work I now know saves lives” was how Richardson put it. I had no idea
he’d worked with us before the West African Ebola outbreak.) Aborting his
master’s a semester shy of graduating, he took up a volunteer position with
Doctors Without Borders, where he spent five months in strife-racked
Sudan, supervising the clinical lab at a field hospital.
It was in Sudan, Richardson said, that he saw how even the best-
intentioned humanitarian efforts could unwittingly serve imperial ends. He
returned to the United States to attend medical school in New York City, at
Cornell. By then, it seems to me, Richardson was clearly enough on his
current path, even if the Upper East Side was a tough proving ground for
global health equity. He took a year off from medical school, returning to
South Africa at a time when global health policy fights centered less on
access to therapy—those battles were drawing to a close, even in the
country with the world’s largest number of HIV infections—than on
standards of care, which came to be one of the subjects on which he would
take a repeated and coherent stand.
The standard-of-care issues were anything but carnivalesque. At the
outset of the antiviral era, battles in Pretoria and other cities turned on what
to do to prevent transmission from mother to child during breastfeeding.
Exclusive breastfeeding remained a public health recommendation for HIV-
positive African mothers, but not for those who delivered infants in Geneva,
Washington, or Boston, for example. The alternative recommended to the
affluent world, formula feeding, was deemed by public health experts not to
be cost-effective, sustainable, culturally appropriate, or even feasible. Lack
of ready access to the wherewithal to prepare formula—running water, a
stove or a fire, clean receptacles—was readily documented in the villages
and neighborhoods to which many mothers delivering in public hospitals
across the continent returned. But couldn’t this wherewithal be found?
This and related dilemmas led Richardson to conclude that he needed “to
become better versed in the structural determinants of health and illness.”
Upon graduation from medical school, in 2009, he went to Stanford to
pursue clinical training in internal medicine and infectious disease—to
become a professional pragmatist—and a doctoral degree in anthropology.
He was soon dividing his time between HIV clinic and classes in northern
California. He did much of his doctoral research in South Africa, focusing
on AIDS and tuberculosis, the two leading killers there. In South Africa, he
turned to understanding pathogenic social forces—ranging from forced
removals and labor migration to gender inequality and persistent post-
apartheid racism—and how these might best be mitigated in efforts to slow
epidemics and to deliver good care to those sickened during them. “I
focused on structural violence,” he explained, “since there are
approximately twelve thousand HIV investigators in South Africa looking
at stigma, culture, psychology, local knowledge, and cognition; there
seemed to be even more looking at cost-effectiveness of this or that
narrowly focused intervention.”
I’ve underlined Gene Richardson’s pragmatism (both philosophically and
as praxis) in part because those focusing on structural determinants are
sometimes dismissed as being “impractical,” and in part because I met him
shortly after this stage of his career, at the close of his doctoral and clinical
training. The outbreak of Ebola that began in Guinea at the close of 2013
was first identified as such a few months later. He had maintained his ties
with Doctors Without Borders and volunteered for service, ending up in the
town of Kailahun, in eastern Sierra Leone—leveled by war a decade
previously and now home to an explosive Ebola epidemic. The epidemic
was heading westward to the large cities on the coast of Upper West Africa;
it was an awful time. Since that time is covered in this book, it won’t be
covered here, even though Richardson’s narrative is tucked in between
carnivalized asides about the logics of cost-effectiveness and clinical
nihilism: Ebola, we heard, is too operose to treat properly in such settings.
After arguments about whether or not intravenous fluids could be used to
resuscitate dehydrated Ebola patients in Kailahun, Richardson applied for
the Ebola work being conducted by Partners In Health, an organization he
works with to this day from Harvard Medical School.
3.
It wasn’t until after he joined our faculty that Gene Richardson traveled to
the eastern Democratic Republic of the Congo, where he and several of our
colleagues helped to respond to another large outbreak of Ebola. At the risk
of repeating myself, he is a thoroughgoing pragmatist, just the sort of
person you’d want by your side in the midst of an epidemic.
There are other reasons to be enamored of, and instructed by, Epidemic
Illusions. You will love not only its playfulness; you will love its devotions.
Richardson makes reference to a bit of verse by Bertolt Brecht, the German
playwright who brought us Mother Courage. In his famous “A Worker’s
Speech to a Doctor,” Brecht poses the following questions: