CA v. HHS, COMPLAINT FOR DECLARATORY AND INJUNCTIVE RELIEF
CA v. HHS, COMPLAINT FOR DECLARATORY AND INJUNCTIVE RELIEF
1 ROB BONTA
Attorney General of California
2 NELI PALMA
Senior Assistant Attorney General
3 KATHLEEN BOERGERS
Supervising Deputy Attorney General
4 MARIA F. BUXTON
KATHERINE MILTON
5 KEVIN G. REYES
ANNA RICH
6 Deputy Attorneys General
State Bar No. 230195
7 1515 Clay Street Suite 2000, P.O. Box 70550
Oakland, CA 94612-0550
8 Telephone: (510) 879-0296
E-mail: [email protected]
9 Attorneys for Plaintiff State of California
11
IN THE UNITED STATES DISTRICT COURT
12
FOR THE NORTHERN DISTRICT OF CALIFORNIA
13
14
1 INTRODUCTION
2 1. In the seven decades since Congress enacted the Medicaid Act to provide medical
3 assistance to vulnerable populations, federal law, policy, and practice has been clear: personal and
4 private healthcare data collected about beneficiaries of the program is confidential, to be shared
5 only in certain narrow circumstances that benefit public health and the integrity of the Medicaid
6 program itself. This reticence makes sense. If members of our community cannot trust that the
7 government will keep their medical history and other personal data safe, they will think twice
9 2. In June, 2025, the federal government’s policy of keeping State Medicaid agencies’
10 healthcare records confidential abruptly changed, without notice, opportunity for public input, or
11 reasoned decision-making.
12 3. Upon information and belief, the U.S. Department of Health and Human Services
13 (HHS)’s Centers for Medicare & Medicaid Services (CMS) handed over a trove of individuals’
14 protected health data obtained from States, including California, Illinois, and Washington, to
15 other federal agencies, including the Department of Homeland Security (DHS). Millions of
16 individuals’ health information was transferred without their consent, and in violation of federal
17 law. In doing so, the Trump administration silently destroyed longstanding guardrails that
18 protected the public’s sensitive health data and restricted its use only for purposes that Congress
19 has authorized, violating federal laws including the requirements of the Administrative Procedure
20 Act (APA), 5 U.S.C. §§ 701 et seq. Meanwhile, the other Plaintiff States fear the
21 administration’s intent to improperly share their States’ sensitive data in the same way.
22 4. HHS claims it is giving this massive amount of personal data to the DHS “to ensure
23 that Medicaid benefits are reserved for individuals who are lawfully entitled to receive them,”
24 falsely implying the existence of widespread Medicaid beneficiary fraud. But Congress itself
25 extended coverage and federal funds for emergency Medicaid to all individuals residing in the
26 United States, even those who lack satisfactory immigration status. The States have and will
27 continue to verify individuals’ eligibility for federally funded Medicaid services using established
28 federal systems and cooperate with federal oversight activities to ensure that the federal
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1 government pays only for those Medicaid services that are legally authorized. But never before
2 has this oversight required the type of unauthorized interagency data sharing that is at issue in this
3 case.
4 5. Moreover, the context in which CMS shared this data with ICE casts serious doubt on
5 the government’s explanation for its actions. It has been widely reported that the Department of
6 Government Efficiency (DOGE) has been amassing federal benefit data, such as Social Security
8 Americans’ information for several purposes, including to assist ICE in immigration enforcement
9 actions.
10 6. DOGE has enlisted the help of technology company Palantir to help build this
11 searchable database that combines federal agencies’ data on individuals. One former engineer at
12 the company has sounded the alarm in the press about Palantir’s project, warning that
13 “[c]ombining all that data, even with the noblest of intentions, significantly increases the risk of
14 misuse.” 1 Palantir’s product, Foundry, has already been pushed to DHS and HHS, paving the
15 way for the administration to more easily merge information collected from these different
16 agencies. 2
17 7. Plaintiffs bring this action to protect their State Medicaid programs, and to prevent
18 them from being used in service of an anti-immigrant crusade, or other purposes unrelated to
19 administration of those programs. Defendants’ illegal actions carry serious consequences. States
20 will lose federal funds as fear and confusion stemming from the disclosures cause noncitizens and
21 their family members to disenroll, or refuse to enroll, in emergency Medicaid for which they are
22 otherwise eligible, leaving States and their safety net hospitals to foot the bill for federally
23 mandated emergency healthcare services. States will also ultimately bear the negative public
24 health costs associated with reduced utilization of healthcare for childbirth and other emergency
25
26
1
Sheera Frenkel and Aaron Krolif, Trump Taps Palantir to Compile Data on Americans, New
27 York Times (May 30, 2025), https://www.nytimes.com/2025/05/30/technology/trump-palantir-
data-americans.html
28 2
Id.
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1 conditions. Meanwhile, the public will suffer irreparable damage due to increased morbidity and
2 mortality.
3 8. The Court should issue declaratory and injunctive relief to protect State data
4 containing this highly sensitive information, and to bar the federal government from reneging on
7 9. The Court has jurisdiction pursuant to 28 U.S.C. §§ 1331, 1346, and 2201(a).
8 10. Venue is proper in this judicial district under 28 U.S.C. § 1391(e) because the
9 California Attorney General and the State of California have offices at 455 Golden Gate Avenue,
10 San Francisco, California and at 1515 Clay Street, Oakland, California, and therefore reside in
11 this district, and no real property is involved in this action. This is a civil action in which
13 11. Assignment to the San Francisco Division of this District is proper pursuant to Civil
14 Local Rule 3-2(c)-(d) and 3-5(b) because Plaintiffs maintain offices in the District.
15 PARTIES
16 Plaintiffs
17 12. Plaintiff the State of California, by and through Attorney General Rob Bonta, brings
18 this action. The Attorney General is the chief law officer of the State of California and head of
19 the California Department of Justice. He has the authority to file civil actions to protect
20 California’s rights and interests and the resources of this State. Cal. Const., art. V, § 13; Cal.
21 Gov’t Code §§ 12510-11, 12600-12; see Pierce v. Superior Court, 1 Cal. 2d 759, 761-62 (1934)
22 (The Attorney General “has the power to file any civil action or proceeding directly involving the
23 rights and interests of the state … and the protection of public rights and interests.”).
24 13. Plaintiff the State of Arizona is a sovereign state in the United States of America.
25 Arizona is represented by Attorney General Kris Mayes, who is the chief law enforcement officer
26 of Arizona.
27
28
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1 14. Plaintiff the State of Colorado is a sovereign state of the United States of America.
2 Colorado is represented by Attorney General Phil Weiser, who acts as the chief legal
3 representative of the state and is authorized by Colo Rev. Stat. § 24-31-101 to pursue this action.
4 15. Plaintiff the State of Connecticut is a sovereign state of the United States of America.
5 Connecticut is represented by and through its chief legal officer, Attorney General William Tong,
6 who is authorized under General Statutes § 3-125 to pursue this action on behalf of the State of
7 Connecticut.
8 16. Plaintiff State of Delaware is a sovereign state of the United States of America. This
9 action is brought on behalf of the State of Delaware by Attorney General Kathleen Jennings, the
10 “chief law officer of the State.” Darling Apartment Co. v. Springer, 22 A.2d 397, 403 (Del.
11 1941). Attorney General Jennings also brings this action on behalf of the State of Delaware
12 pursuant to her statutory authority. Del. Code Ann. tit. 29, § 2504.
13 17. Plaintiff the State of Hawai‘i, represented by and through its Attorney General Anne
14 Lopez, is a sovereign state of the United States of America. The Attorney General is Hawaii’s
15 chief legal officer and chief law enforcement officer and is authorized by Hawaii Revised Statues
17 18. Plaintiff the State of Illinois is represented in this action by the Attorney General of
18 Illinois, who is the chief legal officer of the State and is authorized to pursue this action on behalf
19 of the State under Article V, Section 15 of the Illinois Constitution and 15 ILCS 205/4.
20 19. Plaintiff the State of Maine, represented by and through its Attorney General Aaron
21 M. Frey, is a sovereign state of the United States of America. As the State’s chief law officer, the
23 20. Plaintiff the State of Maryland is a sovereign state of the United States of America.
24 Maryland is represented by Attorney General Anthony G. Brown who is the chief legal officer of
25 Maryland.
26 21. Plaintiff the Commonwealth of Massachusetts is a sovereign state of the United States
28 Massachusetts, who is the chief law officer of Massachusetts and authorized to pursue this action.
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1 22. Plaintiff the State of Michigan is a sovereign state of the United States of America.
2 Michigan is represented by Attorney General Dana Nessel, who is the chief law enforcement
3 officer of Michigan.
4 23. Plaintiff the State of Minnesota is a sovereign state of the United States of America.
5 Minnesota is represented by and through its chief legal officer, Minnesota Attorney General Keith
6 Ellison, who has common law and statutory authority to sue on Minnesota’s behalf.
7 24. Plaintiff the State of Nevada is a sovereign state in the United States of America.
8 Nevada is represented by Attorney General Aaron D. Ford, who is the chief law enforcement
9 officer of Nevada.
10 25. Plaintiff the State of New Jersey is a sovereign state in the United States of America.
11 New Jersey is represented by Attorney General Matthew J. Platkin, who is the chief law
13 26. Plaintiff State of New Mexico is a sovereign state in the United States of America.
14 New Mexico is represented by Attorney General Raúl Torrez, who is the chief law enforcement
15 officer of New Mexico authorized by N.M. Stat. Ann. § 8-5-2 to pursue this action.
16 27. Plaintiff the State of New York, represented by and through its Attorney General
17 Letitia James, is a sovereign State of the United States of America. As the State’s chief legal
18 officer, the Attorney General is authorized to act on behalf of the State in this matter.
19 28. Plaintiff the State of Oregon is a sovereign state of the United States of America.
20 Oregon is represented by Attorney General Dan Rayfield, who is the chief legal officer of
21 Oregon.
22 29. Plaintiff State of Rhode Island is a sovereign state in the United States of America.
23 Rhode Island is represented by Attorney General Peter F. Neronha, who is the chief law
25 30. Plaintiff the State of Vermont is a sovereign state of the United States of America.
26 Vermont is represented by Attorney General Charity R. Clark, who is Vermont’s chief legal
27 officer and is authorized to pursue this action on behalf of the State. Vt. Stat. Ann. tit. 3, § 159.
28
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1 31. Plaintiff State of Washington, represented by and through Attorney General Nicholas
2 W. Brown, is a sovereign state of the United States of America. The Attorney General is
3 Washington's chief law enforcement officer and is authorized under Wash. Rev. Code
5 Defendants
6 32. Defendant Robert F. Kennedy, Jr., is the Secretary of the U.S. Department of Health
8 33. Defendant U.S. Department of Health and Human Services is a department of the
9 executive branch of the United States government. The Centers for Medicare & Medicaid
10 Services (CMS) is an agency within HHS that is responsible for administering the Medicaid Act.
11 34. Defendant U.S. Department of Health and Human Services and Defendant Kennedy
13 35. Defendant Kristi Noem is the Secretary of the U.S. Department of Homeland
16 branch of the United States government, responsible for enforcement of the nation’s immigration
17 laws, among other programs. Immigration and Customs Enforcement (ICE) is an agency within
19 37. Defendant U.S. Department of Homeland Security and Defendant Noem shall
21 LEGAL BACKGROUND
23 38. Created in 1965, Medicaid is an essential source of health insurance for lower-income
24 individuals and particular underserved population groups, including children, pregnant women,
25 individuals with disabilities, and seniors. See Social Security Amendments of 1965, Pub. L. No.
26 89-97, §121, 79 Stat. 286, 343-352 (codified as amended at 42 U.S.C. §1396 et seq.).
27 39. States choose whether to participate in the Medicaid program. Each participating
28 State develops and administers its own unique health plans; so long as States meet threshold
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1 federal statutory criteria, they can tailor their plans’ eligibility standards and coverage options to
2 residents’ needs. States implement their Medicaid programs in accordance with comprehensive
3 written plans that must be reviewed and approved by the Secretary of HHS. See generally 42
4 U.S.C. § 1396a.
5 40. Medicaid is jointly funded by state and federal expenditures. The federal
6 government’s share of funds available for services provided to States for Medicaid beneficiaries,
7 known as Federal Financial Participation (FFP), is calculated according to statutory formulae, the
8 Federal Medicaid Assistance Percentage (FMAP). The Children’s Health Insurance Program
9 (CHIP) provides health coverage to children in families with incomes too high for regular
10 Medicaid but too low for private coverage; it is also jointly funded by state and federal
11 expenditures.
12 41. Eligibility for Medicaid depends in part on citizenship and immigration status.
13 Federal law divides individuals who are not United States citizens into “qualified” and “non-
14 qualified” categories for purposes of eligibility for federally funded Medicaid coverage not
15 limited to emergencies or childbirth (also known as “full-scope” Medicaid). 63 Fed. Reg. 41,658,
16 41,659 (Aug. 4, 1998) (explaining that non-qualified immigrants are excluded from non-
17 emergency, federally funded Medicaid, and other federal benefits). “Qualified immigrants”
18 currently include (1) lawful permanent residents (green card holders); (2) individuals granted
19 asylum; (3) refugees; (4) persons paroled into the United States under INA Section 212(d)(5) who
20 have been in the country for at least one year; (5) certain individuals subject to withholding of
21 removal (deportation); (6) noncitizens granted conditional entry prior to April 1, 1980; (7) certain
22 Cuban and Haitian entrants; and (8) individuals lawfully residing in the U.S. in accordance with a
23 Compact of Free Association (COFA). 8 U.S.C. § 1641(b). Certain victims of domestic violence
25 42. Not all qualified noncitizens are eligible for federally funded benefits like Medicaid,
26 however; some (such as lawful permanent residents) must wait five years before becoming
27 eligible. 8 U.S.C. § 1613. Others, like asylees and refugees, do not need to wait five years before
2 applications are still pending, recipients of Deferred Action for Childhood Arrivals (DACA)
3 status, holders of Temporary Protected Status (TPS), other lawfully present individuals not listed
4 in 8 U.S.C. § 1641, as well as persons who are present in the United States without authorization
6 44. Congress has ensured that a specific set of important and urgent healthcare services
7 are available to all United States residents, including those in the “not qualified” category of
8 noncitizens. These important and urgent services include emergency medical treatment and
9 public health assistance for immunization and testing and treatment of communicable disease.
10 8 U.S.C. § 1611(b)(1)(A), (C). The federal Medicaid Act provides States with funding for
11 emergency medical treatment for serious conditions, including emergency labor and delivery.
12 42 U.S.C. § 1396b(v)(3). A separate federal law, the federal Emergency Medical Treatment and
13 Labor Act (EMTALA), requires hospitals to provide emergency medical treatment to everyone in
16 45. Congress also gives States the choice to cover, with regular federal matching dollars,
17 lawfully residing children and pregnant individuals under Medicaid and CHIP during their first
18 five years in the United States. Section 214 of the Children’s Health Insurance Program
19 Reauthorization Act of 2009 (CHIPRA), Pub. L. No. 111-3, 123 Stat. 8. States also have an
20 option to cover prenatal services regardless of immigration status under the “From-Conception-
22 46. States also may use state funds to extend additional Medicaid-like benefits to a
25 a. Eligibility Verification
26 47. Personal data is routinely exchanged between the States and the federal government
27 for purposes of verifying eligibility for Medicaid. States are required to affirmatively verify the
28
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1 immigration status of all applicants for federally funded, full-scope Medicaid. 8 U.S.C. § 1642
3 48. States must have an income and eligibility verification system for the exchange of
4 information regarding federally funded benefits that meets federal requirements. 42 U.S.C.
5 § 1320b-7(a). This system must include “adequate safeguards […] so as to assure that […] the
6 information exchanged by State agencies is made available only to the extent necessary to assist
7 in the valid administrative needs of the program receiving such information” and that “the
9 provided in regulations established by the Secretary of Health and Human Services.” 42 U.S.C.
10 § 1320b-7(a)(5).
11 49. Applicants without Social Security Numbers who indicate an applicable status for
12 non-emergency, full-scope Medicaid will have that information verified with DHS, through an
13 automated system that “protects the individual’s privacy to the maximum degree possible.” Id.
14 § 1320b-7(d)(3)(B). States can comply by checking applicants’ eligibility via a centralized “Data
15 Services Hub” run by CMS that provides access to the Department of Homeland Security’s
16 Systematic Alien Verification for Entitlement (SAVE). Operated by DHS, SAVE is the federal
17 government’s central repository for biographic, citizenship, and immigration status information
18 on all individuals in the United States. SAVE data indicates whether an applicant is lawfully
19 present; whether the applicant is a qualified noncitizen, or a naturalized or acquired citizen; and
20 whether waiting periods or the Children’s Health Insurance Program Reauthorization Act
21 (CHIPRA) Section 214 exemptions for qualified noncitizens apply and have been met.
22 50. Federal law exempts noncitizens applying for or receiving Medicaid for treatment of
23 an emergency medical condition from providing Social Security Numbers and/or documenting
26 immigration status, the federal government is not allowed to take “any compliance, disallowance,
27 penalty, or other regulatory action against a State” with respect to erroneous citizenship or
2 52. In addition to eligibility verification, the States routinely share more detailed,
3 protected health information with CMS. To obtain an enhanced FMAP, States must provide
4 “detailed individual enrollee encounter data and other information that the Secretary may find
5 necessary and including […] data elements […] that the Secretary determines to be necessary for
6 program integrity, program oversight, and administration, at such frequency as the Secretary shall
8 53. Using its statutory authority, CMS mandates State participation in the Transformed
9 Medicaid Statistical Information System (T-MSIS), CMS’s main Medicaid dataset. See 42
10 C.F.R. §§ 433.116, 438.242, 438.604, and 438.818. States must submit data to T-MSIS on at
11 least a monthly basis. State-reported data held by CMS in T-MSIS includes Medicaid beneficiary
12 eligibility and demographic information, including unique identifiers, addresses, sex, race and
13 ethnicity, etc.; records of health claims and encounters, including beneficiaries’ diagnosis and
14 treatment information; and Medicaid provider enrollment data, including identifiers and
16 https://www.medicaid.gov/tmsis/dataguide/v3/.
17 54. The purpose of T-MSIS is to provide “improved program monitoring and oversight,
18 technical assistance with states, policy implementation, and data-driven and high-quality
19 Medicaid and CHIP programs that ensure better care, access to coverage, and improved health.”
20 See CMS, Notice of a Modified System of Records, 84 Fed. Reg. 2,230-02 (Feb. 6, 2019).
22 55. The States also routinely provide CMS with Medicaid reports and data for federal
23 oversight purposes. These include (but are by no means limited to) Quarterly Expenditure
24 Reports & Data, an accounting statement of the state’s actual recorded expenditures and
25 disposition of Federal funds; and Monthly Eligibility Determination, & Enrollment Reports &
26 Data, which reflect the state’s enrollment activity for all populations receiving comprehensive
27 Medicaid and CHIP benefits, as well as state program performance data. For example, every
28 quarter, States file reports with CMS containing an estimate of their Medicaid benefit costs and
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1 administrative expenses, and certifying the availability of state funds. The States further provide
2 responses to “such other investigation as the Secretary may find necessary” to calculate proper
4 III. Federal Laws Limiting Data Sharing and Protecting Data Security
6 56. In recognition of the sensitive nature of personal data collected pursuant to the Social
7 Security Act, Congress has authorized special guardrails that limit use of this collected data for
8 purposes related to administration of Medicaid and other Social Security Act programs.
9 57. The Social Security Act provides, “[n]o disclosure ... of any file, record, report, or
10 other paper, or any information […] shall be made except as the head of the applicable agency
11 may by regulations prescribe and except as otherwise provided by Federal law.” 42 U.S.C.
12 § 1306 (a)(1) (emphasis added); see also id. § 1306(a)(2) (applying this privacy provision to both
13 HHS and the Social Security Administration). This prohibition applies to all of the Medicaid data
15 58. HHS has not issued regulations authorizing the unfettered transfer of Medicaid data
16 containing protected health information to DHS (or other law enforcement agencies), nor does
17 federal law otherwise provide for this type of transfer from CMS to other federal agencies.
20 60. Most Medicaid data can only be made available “when this can be done consistently
22 61. Most Medicare information (and by extension Medicaid information, see 42 C.F.R.
23 § 401.101(a)(1) (applying this subpart to “any other information subject to” the Social Security
24 Act’s privacy mandate)) may only be released to “an officer or employee of an agency of the
25 Federal or a State government lawfully charged with the administration of a program receiving
26 grants-in-aid under title V and XIX [Medicaid] of the Social Security Act for the purpose of
27 administration of those titles[,]” or the uniformed services civilian health program. 42 C.F.R.
1 62. Disclosure for purposes of investigating program integrity concerns is permitted, but
2 again, HHS regulations impose strict limits. Medicaid data may be shared with:
3 any officer or employee of an agency of the Federal or a State government lawfully charged
4 with the duty of conducting an investigation or prosecution with respect to possible fraud or
abuse against a program receiving grants-in-aid under Medicaid, but only for the purpose of
5 conducting such an investigation or prosecution […] provided that the agency has filed an
agreement with CMS that the information will be released only to the agency’s enforcement
6 branch and that the agency will preserve the confidentiality of the information received and
will not disclose that information for other than program purposes.
7
42 C.F.R. § 401.134(c).
8
63. State Medicaid plans similarly are required by federal statute to provide “safeguards
9
which restrict the use or disclosure of information concerning applicants and recipients to
10
purposes directly connected with […] the administration of the plan[.]” 42 U.S.C.
11
§ 1396a(7)(A)(i); see also, e.g., 42 C.F.R. Chapter IV, Subchapter C, Part 431, Subpart F
12
(“Safeguarding Information on Applicants and Beneficiaries”), including §§ 435.907(e)(1)
13
(limiting state agency collection of information to only what is necessary to make eligibility
14
determinations or administer state Medicaid plan), (e)(3) (limits on state collection of SSNs,
15
including that non-applicant SSNs be voluntary and “used only to determine an applicant’s or
16
beneficiary’s eligibility for Medicaid or other insurance affordability program or for a purpose
17
directly connected to the administration of the State plan”).
18
64. State Medicaid agencies must enact their own state confidentiality protections to
19
enforce the federal regulations for safeguarding information about beneficiaries and applicants.
20
42 C.F.R. § 431.303. States must also make assurances in their Medicaid plan that they submit
21
for approval to CMS that such protections are in place.
22
65. HHS has communicated its confidentiality policy to Medicaid applicants and
23
beneficiaries. For example, CMS’s template Medicaid application expressly states to prospective
24
applicants, “We’ll keep all the information you provide private and secure as required by law.
25
We’ll use personal information only to check if you’re eligible for health coverage.” 3 States are
26
27 3
CMS Single Streamlined Application, OMB No. 0938-1191, expires: Sept. 30, 2027 (last visited
Jun. 21, 2025), https://www.medicaid.gov/state-resource-center/mac-learning-
28 collaboratives/downloads/single-streamlined-application.pdf.
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1 required to use this, or similar language, in their state-specific materials. 42 C.F.R. § 435.907(b).
3 66. In accord with these limits, DHS policy historically has not allowed use of Medicaid
4 personal information for immigration enforcement purposes. An October 25, 2013 ICE policy
5 memorandum states:
6
ICE does not use information about such individuals or members of their household that is
7 obtained for purposes of determining eligibility for [Medicaid and other federally funded
healthcare] coverage as the basis for pursing a civil immigration enforcement action
8 against such individuals or members of their household, whether that information is
provided by a federal agency to the Department of Homeland Security for purposes of
9 verifying immigration status information or whether the information is provided to ICE by
another source.
10 This ICE policy has been publicly available on DHS’s website for years.
11
12 b. Privacy Act
13 67. Congress enacted the Privacy Act of 1974 to “provide certain safeguards for an
15 maintain accurate records and providing individuals with more control over the gathering,
16 dissemination, and accuracy of agency information about themselves. Pub. L. No. 93-579, § 2(b),
18 68. To accomplish this purpose, the Privacy Act sets forth conditions for disclosure of
19 private information and precludes an agency from disclosing information in its files to any person
20 or to another agency without the prior written consent of the individual to whom the information
22 69. Among these instructions, the Privacy Act requires federal agencies to follow specific
23 procedures before they “maintain, collect, use, or disseminate,” any covered information. 5
26 retrievable information about individuals, it must “publish in the Federal Register . . . a notice of
27 the existence and character of the system of records.” 5 U.S.C. § 552a(e)(4), (a)(5) (defining
28 “system of records”).
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1 71. This notice, commonly referred to as a System of Records Notice (“SORN”), must
2 identify, inter alia, the name and location of the system; the categories of individuals on whom
3 records are maintained in the system; the purpose for which information about an individual is
4 collected; the policies and practices of the agency regarding storage, retrievability, access
5 controls, retention, and disposal of records; and the procedures by which individuals can request
7 72. Each SORN provides the public with information regarding the relevant system of
8 records, which is a necessary precondition for an individual to exercise their right to “gain
10 73. At least 30 days before publishing a SORN, the agency must also publish notice in
11 the Federal Register “of any new use or intended use of the information in the system” and
12 provide an opportunity for interested parties to submit “written data, views, or arguments to the
14 74. Thus, before an agency can establish or revise a system of records, it must provide
15 notice and an opportunity for public comment at least 30 days in advance. The Privacy Act
16 establishes a similar notice and comment requirement for the establishment or revision of a data
17 match with other federal, state, or local government entities. 5 U.S.C. § 552a(e)(12).
18 75. The Privacy Act further provides that “[n]o agency shall disclose any record which is
19 contained in a system of records ... except pursuant to a written request by, or with the prior
20 written consent of, the individual to whom the record pertains.” 5 U.S.C. § 552a(b) (1982 ed.,
21 Supp. V).
22 76. The Privacy Act also lists exceptions to the bar on disclosure.
23 77. For example, an agency may disclose the records it maintains within the agency “to
25 control of the United States for a civil or criminal law enforcement activity if the activity is
26 authorized by law, and if the head of the agency or instrumentality has made a written request to
27 the agency which maintains the record specifying the particular portion desired and the law
1 78. Additionally, an agency may disclose a record “for a routine use,” defined as “the use
2 of such record for a purpose which is compatible with the purpose for which it was collected.”
3 Id. §§ 552a(a)(7), (b)(3). Any “routine use” must be detailed in the relevant System of Records
6 79. The Health Insurance Portability and Accountability Act (HIPAA), is another key
7 data privacy law that governs the use and disclosure of individuals’ protected health information.
10 information) that relates to the provision of health care to an individual, as well as the past,
11 present, or future payment for health services provided to an individual. 45 C.F.R. § 160.103.
12 Covered entities may not use or disclose protected health information unless expressly permitted
14 81. Covered entities include health plans, health care clearinghouses, and health care
15 providers. 45 C.F.R. § 160.103. CMS is a covered entity subject to HIPAA’s requirements with
16 respect to Medicaid program administration because it pays for individuals’ health coverage
17 through Medicaid.
18 82. HIPAA does contain exceptions for certain types of disclosures, such as compliance
19 with an administrative request for which response is required by law (e.g., an administrative
20 subpoena). 45 C.F.R. § 164.512(f). However, that exception is limited to requests that are
23 83. The Federal Information Security Management Act (“FISMA”) is a federal law
24 enacted under Title III of the E-Government Act of 2002. Pub. L. 107-347, 116 Stat. 2933 (Dec.
25 17, 2002).
26 84. FISMA requires each federal agency to develop, document, and implement an
27 agency-wide program to provide information security for the information and systems that
28 support the operations and assets of the agency, including those provided or managed by another
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1 agency, contractor, or other sources. As defined in FISMA, “[t]he term ‘Federal information
4 11331(g)(1).
5 85. FISMA was later amended by the Federal Information Security Modernization Act of
6 2014, Pub. L. 113-283, 128 Stat. 3073 (Dec. 18, 2014). As the CMS website devoted to FISMA
7 explains, these 2014 reforms were “passed in response to the increasing amount of cyber attacks
8 on the federal government.” CMS, Federal Information Security Modernization Act (FISMA),
10 June 25, 2025). The changes, among other things, strengthened the use of continuous monitoring
11 in systems and increased focus on the agencies for compliance and reporting that is more targeted
13 86. In support of and reinforcing FISMA, OMB through Circular A-130, “Managing
14 Information as a Strategic Resource,” requires executive agencies within the federal government
15 to: plan for security; ensure that appropriate officials are assigned security responsibility;
16 periodically review the security controls in their systems; and authorize system processing prior
17 to operations and periodically thereafter, among other requirements. Off. of. Mgmt. & Budget,
18 Exec. Off. of the President, OMB Cir. No. A-130, Managing Information as a Strategic Response
19 (2016). This includes following standards set by the National Institute of Standards and
20 Technology (“NIST”). See CMS, Federal Information Security Modernization Act (FISMA),
22 June 25, 2025) (“While FISMA sets the legal requirement for annual compliance, the National
23 Institute of Standards and Technology (NIST) is the government body responsible for developing
24 the standards and policies that agencies use to ensure their systems, applications, and networks
25 remain secure.”).
26 87. Accordingly, under FISMA, federal agencies need to provide “information security
27 protections commensurate with the risk and magnitude of the harm resulting from unauthorized
3 § 3553(a)(2). In addition, “federal agencies need to ‘com[ply] with the information security
4 standards’ and guidelines, and mandatory required standards developed by NIST.” NIST, NIST
7 88. The information security requirements established by NIST are binding on all federal
8 agencies. See NIST Special Publication 800-53 Revision 5, Security and Privacy Controls for
9 Information Systems and Organizations, at 2 (Sept. 2020) (“The use of these controls is
11 89. NIST requires that federal agencies have, at a minimum, policies and procedures that
14 and document the types of accounts allowed and specifically prohibited for
15 use within the system;” “[r]equire approvals by” a designated official “for
16 requests to create accounts;” and “[m]onitor the use of accounts.” Id. at 19.
21 “[a]pprove and manage the exchange of information between the system and
26 system information exchange and the controls needed for appropriate risk
4 capability for incidents involving insider threats,” and must provide for
9 90. CMS has implemented these requirements by establishing a set of “Acceptable Risk
10 Safeguards” (ARS) that “provides the standard to CMS and its contractors as to the minimum
11 acceptable level of required security and privacy controls.” CMS, CMS Acceptable Risk
14 that website) set forth detailed policies for handling CMS data, including policies governing
16 FACTUAL ALLEGATIONS
19 millions of participants. As of January, 2025, according to CMS records, 78.4 million people
21 Arizona
22 92. The Arizona Health Care Cost Containment System (AHCCCS) is Arizona’s
25 individuals. AHCCCS uses federal, state, county, and other funds to provide healthcare coverage
27
28
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1 93. Consistent with federal law, AHCCCS provides certain emergency healthcare
2 services to uninsured qualified and nonqualified immigrants through the Federal Emergency
3 Services Program.
4 94. AHCCCS uses the federal SAVE database to verify individuals' eligibility for
6 95. AHCCCS also routinely responds to CMS requests related to Medicaid auditing and
7 oversight, including its supplemental review of reports required to determine the amount of FFP
9 96. AHCCCS sends data to T-MSIS each month. This data contains personally
11 California
12 97. The California Health and Human Services Agency (CHHS) is an agency within the
13 executive branch of the State of California. CHHS, through its sub-agency, California
14 Department of Health Care Services (DHCS), administers California’s Medicaid program, known
15 as Medi-Cal.
16 98. California’s Medi-Cal program provides healthcare coverage for one out of every
17 three Californians. In California, full-scope Medi-Cal gives beneficiaries access to primary and
18 preventative care, oral healthcare, hospitalization, prescription drugs, behavioral healthcare, and
20 99. California has elected to use state-only funds to provide a version of the Medi-Cal
21 program to all eligible state residents, regardless of immigration status. Cal. Welf. & Inst. Code
22 § 14007.8(a)(2)(A). California’s Medi-Cal program provides healthcare coverage for more than
24 100. DHCS has an agreement with CMS and DHS to use the federal SAVE database to
26 101. DHCS sends data to T-MSIS each month. This data contains protected health
28
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1 102. DHCS also routinely responds to CMS requests for supplemental review of reports
2 required to determine the amount of FFP to which the State is entitled, and other program audit
4 103. On March 18, 2025, CMS sent a letter to DHCS stating that it would be reviewing
5 claims for FFP to determine whether California “is using federal money to pay for or subsidize
6 healthcare for individuals without a satisfactory immigration status.” The letter did not cite any
7 new evidence or new concerns about improper use of federal dollars. Instead, the letter cited
8 earlier audits initiated by California itself when it informed CMS that it had erroneously claimed
10 that has been corrected and led to the return of funds back to the federal government.
11 104. On March 31, 2025, CMS sent DHCS a follow up email requesting information the
12 agency stated was necessary to confirm California was not applying federal funding unlawfully
13 for individuals with unsatisfactory immigration statuses. CMS requested claim submission and
14 enrollee data for the quarter ending on March 31, 2025, including individual enrollees’ Medicaid
15 ID, immigration status, and the period they were eligible for emergency Medicaid, as well as
16 descriptions of how DHCS operates Medi-Cal, including how emergency Medicaid services are
17 paid for, how DHCS verifies immigration status, and how DHCS defines “emergency condition.”
18 CMS required DHCS to respond by April 30, 2025. Nothing in the request indicated that CMS
20 105. DHCS responded to CMS’s information request on April 30, 2025, and provided a
22 assuming CMS planned to use this information for routine auditing consistent with that agency’s
24 Colorado
25 106. Colorado administers its state Medicaid program through the Colorado Department of
26 Health Care Policy and Financing (HCPF). HCPF is Colorado’s single-state agency responsible
27 for administering Health First Colorado, Colorado’s Medicaid Program. C.R.S. § 25.5-1-104(1).
28
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1 HCPF’s mission is to “improve health care equity, access and outcomes for the people we serve
2 while saving Coloradans money on health care and driving value for Colorado.”
3 107. Health First Colorado is regulated by HHS and is jointly funded through both state
5 108. HCPF spends considerable resources to ensure that eligibility determinations for
6 Health First Colorado are correct. This ensures that only individuals who are eligible for
7 Medicaid are enrolled in Health First Colorado and that only those services provided to eligible
9 109. HCPF sends eligibility data to CMS through the T-MSIS database. This data contains
10 sensitive, personally identifiable information about all Health First Colorado members.
11 110. HCPF routinely responds to CMS requests for data and information to substantiate
13 111. On June 6, 2025, HCPF received an email from CMS that included significant
14 requests for data related to the administration of Emergency Medicaid Services for certain
15 immigrant populations. CMS also requested data related to Colorado’s state-only health care
16 program, Cover All Coloradans, which provides services for children and pregnant persons who
17 otherwise would be eligible for Health First Colorado but for immigration status.
18 112. CMS represented in the email that it “will be reviewing claims for FFP submitted by
19 the state to ensure that only claims for FFP that meet all applicable statutory requirements for
20 individuals without a satisfactory immigration status are included within the state’s” claims
22 113. The email does not cite any evidence or concerns about HCPF improper use of
23 federal dollars as related to “individuals without a satisfactory immigration status.” Nor does the
24 email city any evidence or concerns regarding Colorado state-only health care program, Cover
25 All Coloradans.
26 114. The email asks HCPF to respond to the data requests by July 30, 2025. A meeting
27 between HCPF and CMS is scheduled for July 2, 2025 to discuss the data requests.
28
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1 Connecticut
2 115. Connecticut’s HUSKY Health is the State’s program that provides comprehensive
3 health coverage to all qualifying Connecticut residents, and it includes Connecticut’s Medicaid
4 and CHIP programs. Connecticut’s Department of Social Services (DSS) is Connecticut’s single
5 state Medicaid agency and functions as one of the largest providers of health coverage in
8 behavioral health services for better results and healthier communities in Connecticut. DSS
9 provides healthcare for over 1 million state residents annually through HUSKY. Connecticut
10 implemented the CHIP option to cover the cost of prenatal care in 2022.
11 116. Connecticut has also elected to use state-only funds to provide a version of the
12 HUSKY program to all eligible state residents up to the age of 19, regardless of immigration
13 status. Connecticut has also elected to use state-only funds for postpartum services for women
14 who do not qualify for Medicaid or CHIP based on their immigration status.
16 Connecticut residents and their use of Medicaid healthcare services with CMS. DSS sends data to
17 T-MSIS on a regular basis, and also routinely responds to CMS requests for additional
19 Delaware
20 118. The Division of Medicaid and Medical Assistance (DMMA) is an agency within the
21 executive branch of the State of Delaware. DMMA administers the Medicaid and CHIP programs
24 residents and their use of Medicaid healthcare services with CMS. DMMA sends data to T-MSIS
25 on a regular basis, and also responds to occasional CMS requests for additional information
27
28
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1 Hawai‘i
3 Hawai‘i Department of Human Services. Med-QUEST provides health coverage to 400,000 low-
5 Medicaid benefits that provide emergency care and services to individuals regardless of their
6 immigration status.
8 Hawai‘i residents and their use of Medicaid healthcare services with CMS. Med-QUEST sends
9 data to T-MSIS on a regular basis, and also responds to occasional CMS requests for additional
11 Illinois
12 122. The Illinois Department of Healthcare and Family Services (IDHFS) administers
13 Medicaid, CHIP, and other affordable health care programs in the state of Illinois. These
14 programs provide critical healthcare coverage to nearly 3.5 million individuals and families
15 across Illinois, making IDHFS the largest source of medical insurance in the state.
16 123. Illinois has also significantly invested in outreach and enrollment for affordable
18 124. Illinois has additionally elected to use state-only funds to expand healthcare coverage
19 for certain noncitizens. For example, the Health Benefits for Immigrant Seniors program
20 provides health benefits for Illinois residents 65 years and older regardless of their immigration
21 status. 305 ILCS 5/12-4.35. Illinois also funds and administers the All Kids program, which
22 provides comprehensive, affordable, health insurance for all Illinois children, regardless of
23 immigration status.
24 125. Applications for Illinois benefits, including affordable health programs, in the state of
25 Illinois are handled through a single web-based application portal called ABE, the Application for
26 Benefits Eligibility. Applications may also be completed in person at certain locations, by mail,
28
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1 126. ABE can be used by anyone seeking Illinois Medicaid coverage, including new
2 groups covered as a result of national health care reform under the Affordable Care Act.
3 127. Illinois uses an Integrated Eligibility System (IES) to determine eligibility for benefits
4 programs including affordable healthcare benefits. This program interfaces with state and federal
5 data sources to verify certain financial and nonfinancial information to assist in determining
7 128. Illinois verifies USCIS status of noncitizens applying for federally-supported medical
9 129. Illinois sends extract data to T-MSIS on a monthly basis as required and full data on
10 an annual basis.
11 130. Illinois also responds to CMS requests for information and data when CMS reviews
12 Illinois' claims for reimbursement of expenditures, and when CMS performs other program audit
13 and oversight functions. Given CMS's role in jointly administering the Medicaid program with
15 Maine
16 131. Maine’s Medicaid program is operated by the Maine Department of Health and
17 Human Services (Me. DHHS). Maine’s Medicaid program, known as MaineCare, provides
18 healthcare coverage for approximately 400,000 residents in Maine. This includes 38,000 people
19 with disabilities and 5,000 children with special health care needs.
20 132. In certain circumstances and consistent with federal law, non-qualified noncitizens
21 who live in Maine are eligible for Medicaid coverage. For example, as with all Maine
24 133. Consistent with federal law, non-qualified pregnant women are eligible for federal
25 CHIP coverage for medical care during pregnancy and for twelve months after delivery.
26 134. Maine has elected to use state-only funds to provide a version of MaineCare to all
27 eligible state residents under the age of 21 who are not qualified to receive federal match due to
2 136. Me. DHHS has an agreement with CMS and DHS to use the federal SAVE database
4 137. Me. DHHS also routinely responds to CMS requests for supplemental review of
5 reports required to determine the amount of FFP to which the State is entitled, and other program
7 Maryland
8 138. Maryland’s Medicaid program (also known as the “Maryland Medical Assistance
9 Program”) is operated by the Maryland Department of Health (MDH). The Medicaid program
11 139. Consistent with federal law, Maryland affords emergency Medicaid coverage for
12 immigrants who are otherwise eligible for Medicaid. Coverage extends from when the individual
13 enters the hospital until the individual’s emergency medical condition is stabilized. Under the
14 state's Healthy Babies Equity Act of 2024, Maryland Medicaid provides comprehensive medical
15 care and other health care services to noncitizen pregnant individuals who would be eligible for
16 Medicaid but for their immigration status. Those individuals have full Medicaid benefits up to 4
18 140. MDH maintains the personal data of Medicaid enrollees through the Medicaid
19 Management Information System (“MMIS”), while the Maryland Health Benefit Exchange
20 (“MHBE”) maintains the integrated eligibility system and statewide eligibility information
21 database of Medicaid enrollees through the Health Benefit Exchange (“HBX”). Maryland
23 Massachusetts
24 141. Massachusetts administers Medicaid and CHIP through the MassHealth program,
25 which is administered by the Massachusetts Executive Office of Health and Human Services
26 (“EOHHS”).
27 142. EOHHS’s MassHealth and CHIP programs provide healthcare coverage for over
2 information. Massachusetts MassHealth enrollees’ personal data is available to CMS through the
3 T-MSIS system used by CMS to collect and standardize Medicaid and CHIP data across states.
4 144. EOHHS additionally at times provides CMS with data in response to Medicaid
6 Michigan
7 145. Michigan’s Medicaid program is operated by the Michigan Department of Health and
8 Human Services (MDHHS). Michigan Medicaid provides healthcare coverage for approximately
10 146. In certain circumstances and consistent with federal law, undocumented noncitizens
11 who live in Michigan are eligible for Medicaid coverage. For example, Michigan residents—
12 regardless of immigration status—are eligible for Emergency Services Only Medicaid, which
13 covers emergency medical services. And undocumented pregnant women are eligible for
14 Medicaid and CHIP coverage for limited maternity-related care during pregnancy and for two
16 147. MDHHS maintains personal data of Medicaid enrollees through Bridges, MDHHS’
17 integrated eligibility system, and the MDHHS Data Warehouse, a statewide database with
20 Minnesota
22 individuals with comprehensive healthcare coverage and access to affordable, integrated, high-
23 quality healthcare at no or low cost. The Minnesota Department of Human Services (MDHS),
24 through its Health Care Administration, is the single state agency responsible for administering
26 Assistance provides health coverage for over one million Minnesotans, or approximately one in
27 every five state residents. MDHS administers federally funded emergency Medicaid benefits that
28 provide emergency care and services to individuals regardless of their immigration status.
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1 149. MDHS works to ensure that eligibility determinations are made correctly, including
2 by ensuring that only individuals who are eligible for federally funded Medicaid are billed to the
3 federal government.
4 150. MDHS has an agreement with CMS and DHS to use the federal SAVE database to
5 verify individuals’ citizenship or immigration status to determine eligibility for federally funded
6 Medicaid.
7 151. MDHS routinely shares protected health information concerning Minnesotans and
8 their use of Medicaid healthcare services with CMS. MDHS sends data to T-MSIS each month.
9 This data contains sensitive, personally identifiable information about all MDHS enrollees.
10 MDHS also routinely responds to CMS requests for additional information, including audits,
12 152. On June 6, 2025, CMS sent an email to MDHS stating that it was requesting
13 information to confirm Minnesota was not applying federal funding unlawfully for individuals
14 with unsatisfactory immigration statuses. The email did not cite any specific evidence or
15 concerns about improper use of federal dollars. The email requested that MDHS respond with
16 sensitive, personally identifiable information about all MDHS enrollees by July 30, 2025.
18 coverage for uninsured Minnesota residents who are not eligible for Medical Assistance and have
19 income at or below 200% of the Federal Poverty Guidelines. Minnesota has elected to use state-
20 only funds to provide a version of MinnesotaCare coverage to all eligible state residents up to the
22 Nevada
23 154. Nevada’s Division of Health Care Financing and Policy (DHCFP) works in
24 partnership with CMS to assist in providing quality medical care for eligible individuals and
25 families with low incomes and limited resources. The Medicaid program in Nevada is authorized
26 to operate under DHHS and DHCFP per Nevada Revised Statutes (NRS) Chapter 422.
27 155. Nevada’s Medicaid program provides health care coverage for many people including
28 low-income families with children whose family income is at or below 133% percent of poverty,
27
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1 Supplemental Security Income (SSI) recipients, certain Medicare beneficiaries, and recipients of
2 adoption assistance, foster care and some children aging out of foster care. The DHCFP also
3 operates five Home or Community-Based Services waivers offered to certain persons throughout
4 the state. The Division of Welfare and Supportive Services (DWSS) determines eligibility for the
5 Medicaid program. Nevada Check Up provides health care benefits to uninsured children from
6 low-income families who are not eligible for Medicaid but whose family income is at or below
8 156. The Medicaid Services Manual (MSM) along with the Medicaid Operations Manual
9 (MOM) is the codification of regulations adopted by Nevada Medicaid based on the authority of
11 157. MSM Chapter 100.2 provides that “all individuals have the right to a confidential
12 relationship with DHCFP. All information maintained on Medicaid and CHIP applicants and
15 State Plan administration.” Id. at p 6. Further, “[e]xcept as otherwise provided in these rules, no
16 person shall obtain, disclose, use, authorize, permit, or acquiesce the use of any client information
17 that is directly or indirectly derived from the records, files, or communications of DHCFP, except
18 for purposes directly connected with the administration of the Plan or as otherwise provided by
20 New Jersey
21 158. New Jersey’s Medicaid program is operated by the New Jersey Department of Human
22 Services (NJDHS). NJDHS provides healthcare coverage for approximately 1.9 million residents
23 in New Jersey.
25 information. New Jersey Medicaid enrollees’ personal data is available to CMS through the T-
26 MSIS system.
27 160. NJDHS additionally routinely provides CMS with data in response to Medicaid
1 New Mexico
2 161. New Mexico’s Medicaid program provides healthcare coverage for approximately
3 840,000 New Mexicans, over 40% of the state population. In New Mexico, full-scope Medicaid
4 gives beneficiaries access to primary and preventive care, dental health care, inpatient and
5 outpatient hospital treatment, prescription drugs, behavioral health care, home health care, and
7 162. In addition, New Mexico funds more limited scope healthcare programs that offer
8 more targeted services to specific populations. For example, New Mexico provides access to
9 family planning services, including contraceptives and reproductive health exams, under the
10 state’s Family Planning Program; and helps low-income New Mexicans who qualify for Medicare
12 163. New Mexico also administers federally and state-funded emergency Medicaid
13 benefits that provide emergency care and services to individuals regardless of their immigration
14 status.
15 164. The New Mexico Medicaid program is administered by the New Mexico Health Care
17 165. New Mexico’s HCA works diligently to ensure that Medicaid eligibility
18 determinations are made correctly and that claims billed to the federal government cover only
19 individuals and services eligible for federally funded Medicaid. The state agency has an
20 agreement with CMS and DHS to use the federal SAVE database to verify individuals’ eligibility
22 166. New Mexico’s HCA sends data to T-MSIS each month. This data contains sensitive,
24 167. New Mexico’s HCA also routinely responds to CMS requests for supplemental
25 review of reports required to determine the amount of FFP to which the State is entitled, and other
27
28
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1 168. For instance, because New Mexico receives an enhanced FMAP, the state is required
2 by federal law to provide detailed enrollee data that is “necessary for program integrity, program
4 New York
5 169. New York’s Medicaid program provides health coverage to approximately 7 million
6 low-income New Yorkers. New York has elected to use state-only funds to provide Medicaid
7 health coverage to certain New Yorkers aged 65 and over and postpartum care for 12 months to
8 pregnant individuals, regardless of their immigration status. In addition, New York administers
9 federally funded emergency Medicaid benefits that provide emergency care and services to
10 individuals regardless of their immigration status as well as prenatal care up to labor and delivery
12 170. The New York State Department of Health (NYSDOH) works diligently to ensure
13 that Medicaid eligibility determinations are made correctly, and that claims billed to the federal
14 government cover only individuals and services eligible for federally funded Medicaid.
15 171. NYSDOH routinely shares protected health information concerning New Yorkers and
16 their use of Medicaid healthcare services with CMS. NYSDOH sends data to T-MSIS on a
17 regular basis, and also responds to occasional CMS requests for additional information
19 Oregon
20 172. The Oregon Health Authority (OHA) is the designated state agency responsible for
22 the health care system in Oregon by: improving the lifelong health of people in Oregon;
23 increasing the quality, reliability, and availability of care for all people in Oregon; and lowering
25 173. OHA operates the Oregon Health Plan (OHP), Oregon’s Medicaid program regulated
26 by the U.S. Department of Health and Human Services. This program is jointly funded by both
28
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1 174. Oregon has also elected to use state-only funds to extend OHP coverage to all state
2 residents who meet income and other criteria regardless of their immigration status.
3 175. Oregon has significantly invested in outreach and enrollment for OHP. For example,
4 OHP certifies a network of community partners that includes approximately 300 organizations
5 and around 1,500 application assisters across Oregon. Among other things, community partners
6 provide culturally and linguistically responsive outreach and health coverage application
7 assistance.
8 176. OHA works to ensure that eligibility determinations are made correctly, including by
9 ensuring that only individuals who are eligible for federally funded Medicaid are billed to the
10 federal government.
11 177. OHA has an agreement with CMS and DHS to use the federal SAVE database to
13 178. OHA sends data to T-MSIS each month. This data contains sensitive, personally
15 179. OHA also routinely responds to CMS requests for supplemental review of reports
16 required to determine the amount of FFP to which the State is entitled as well as other program
18 180. On June 6, 2025, CMS sent an email to OHA stating that it would be “reviewing
19 claims for FFP submitted by the state to ensure that only claims for FFP that meet all applicable
20 statutory requirements for individuals without a satisfactory immigration status are included
21 within the state’s Form CMS-64 submissions.” The email did not cite any new evidence or new
22 concerns about improper use of federal dollars. The email requested that OHA respond with
24 181. On June 26, 2025, OHA staff met with CMS staff to discuss the information CMS
25 requested and the purpose of its review. In that meeting, CMS staff confirmed that they intend to
26 combine any data OHA provides in response to the June 6, 2025 request with data OHA has
27 already submitted through T-MSIS. Combining these data sources will make it easier to
28 determine both the identity and immigration status of OHP members. When asked whether CMS
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1 would transfer these data to DHS, CMS staff indicated they would confer with their leadership
2 and provide an answer in a subsequent communication. As of the date of this Complaint, CMS
4 Rhode Island
5 182. Rhode Island’s Medicaid program provides health coverage to more than 300,000
6 Rhode Islanders. Rhode Island has elected to use state-only funds to provide Medicaid coverage
7 to all children (individuals up to nineteen (19) years of age), regardless of their immigration
8 status. Rhode Island also extends Medicaid coverage to pregnant people who otherwise meet
9 requirements for Medicaid, regardless of their immigration status. In addition, Rhode Island
10 administers federally funded Medicaid benefits that provide coverage for individuals that require
12 183. The Rhode Island Executive Office of Health & Human Services (RI EOHHS) serves
13 as the Single State Agency for Medicaid. RI EOHHS has delegated authority to the Rhode Island
14 Department of Human Services (RI DHS) to determine Medicaid eligibility. RI EOHHS and RI
15 DHS work to ensure that Medicaid eligibility determinations are made correctly, and that claims
16 billed to the federal government cover only individuals and services eligible for federally funded
17 Medicaid.
19 eligibility for various benefit programs, including Medicaid. RI EOHHS routinely shares
20 Medicaid data containing personally identifiable, protected health information with CMS. RI
21 EOHHS sends data to T-MSIS on a routine basis and routinely responds to CMS requests for
22 additional information concerning Medicaid claims and the use of federal funds.
23 Vermont
25 Access (DVHA) within the Vermont Agency of Human Services. The mission of DVHA is “to
27 health care.”
28
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1 186. In limited circumstances and consistent with federal law, undocumented noncitizens
2 who live in Vermont are eligible for Medicaid coverage. For example, Vermont residents—
3 regardless of immigration status—are eligible for Emergency Services Only Medicaid, which
4 covers emergency medical services. Vermont also provides coverage to legal resident non-citizen
5 children and teenagers under age 19 and pregnant women through the Dr. Dynasaur program.
6 187. Vermont regularly shares protected health information concerning Vermonters and
7 their use of Medicaid healthcare services with CMS. DVHA sends data to T-MSIS and also
8 routinely responds to CMS requests for additional information concerning Medicaid claims and
10 188. Vermont shares this protected health information with the understanding that it is
11 being safeguarded by CMS rules and procedures designed to protect data privacy and security,
12 and that this data is only being used to administer Medicaid benefits and to further the healthcare
14 Washington
15 189. In Washington State, the Health Care Authority (“Washington HCA”) administers the
16 Medicaid program, the Children’s Health Insurance Program, and other healthcare programs
17 under the umbrella term “Apple Health.” The Washington Legislature designated Washington
18 HCA as the “single state agency” for purposes of the Medicaid program. See Wash. Rev. Code
19 § 74.09.530(1)(a). HCA is responsible for assuring the federal Centers for Medicare and
20 Medicaid Services (“CMS”) that the state will comply with federal Medicaid law.
21 190. There are more than 1.9 million Apple Health clients in Washington, including about
22 49,000 whose immigration status makes them ineligible for federal programs. Apple Health
23 covers a range of healthcare services, including inpatient and outpatient hospital care, primary
24 and preventative care, long-term services and supports, and behavioral health. Each year,
25 Washington HCA receives nearly $70 million from CMS for emergency medical services
27 191. In 2023, the Washington Legislature directed Washington HCA to create a new
28 program for certain individuals who are not eligible for Medicaid because of their immigration
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1 status. See Engrossed Substitute Senate Bill (“ESSB”) 5187, § 211(83). The Legislature
2 appropriated about $45.6 million of state funds to Washington HCA for the program for state
3 fiscal year (“SFY”) 2025. HCA named the program “Apple Health Expansion.” The Legislature
4 directed that the program provide services comparable to the “categorically needy” Medicaid
5 program. In 2024, the Legislature increased the budget for the program to about $71 million for
6 SFY 2025. See ESSB 5950, § 211(82). In 2025, the Legislature appropriated about $71.3 million
7 for the program for SFY 2026 and about $70.9 million for SFY 2027. See ESSB 5167, § 211(52).
8 192. In creating Apple Health Expansion, Washington HCA adopted a managed care
9 delivery system, for the purpose of facilitating whole-person care to enrollees and for ease of
10 administration. Washington HCA entered into contracts with four managed care organizations
11 (“MCOs”), also called “health plans,” who are responsible for ensuring the provision of
12 healthcare services to Apple Health Expansion enrollees. Washington HCA also includes
13 emergency services funded by CMS in this managed care model, again to facilitate whole-person
15 193. The Apple Health Expansion program began offering services to enrollees as of July
16 1, 2024, through the MCO contracts. This was preceded by many months of meetings with
17 advocacy groups and other stakeholders, for the purpose of helping to define the parameters of
18 the program, encouraging outreach to potential enrollees, and creating rules under the
20 194. Washington HCA, through a contractor known as Acentra, sends data to the federal
21 government’s T-MSIS system each month, using a secure portal. This data contains sensitive,
22 personally identifiable information about all Apple Health enrollees. Washington HCA’s most
24 195. Washington HCA routinely responds to CMS requests for supplemental review of
25 reports required to determine the amount of FFP to which the State is entitled, and other program
27 196. On March 31, 2025, CMS sent Washington HCA an email requesting information the
28 agency stated was necessary to confirm Washington was not applying federal funding unlawfully
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1 for individuals with unsatisfactory immigration statuses. This request was represented to
2 Washington HCA as a routine audit in line with previous requests for information made to
3 Washington HCA from CMS. Nothing in the request indicated that CMS would share this
5 197. Washington HCA responded to CMS’s information request, as it would for other
6 routine audits of Washington HCA. Nothing indicated that CMS planned to use this information
7 for anything other than routine auditing consistent with the agency’s statutory authority to
9 198. Washington HCA learned through media reporting on June 13, 2025, that CMS had
10 apparently, and improperly, transferred confidential data regarding its Apple Health clients to the
11 Department of Homeland Security (“DHS”). On June 24, 2025, Washington HCA sent a letter to
12 CMS seeking information on this reported data transfer. As of the date of this filing, Washington
15 199. In all of the sharing of protected health information described above, the States have
16 relied upon CMS rules, procedures, and practices designed to protect data privacy and security,
17 and the understanding that this data is only being used to administer Medicaid benefits and to
19 200. This policy and practice has been communicated to the public as well. For example,
20 in its online privacy policy statement, CMS promises Medicaid enrollees and their family
21 members that the agency is “committed to keeping your personal information safe with the
22 highest level of privacy protections possible,” including “only sharing information with people
23 who need to know.” CMS further assures the public that it will “tell you before we collect any
24 personal information we need to run our health care programs, and only use it for that purpose.” 4
25
26
27
4
CMS Privacy Home Page (last checked June 26, 2025), https://www.cms.gov/about-
28 cms/information-systems/privacy.
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1
II. Federal Actions Undermining Privacy, Security, and Confidentiality of Medicaid
2 Data
3 201. Through a series of federal executive actions, the federal government has—without
4 formal acknowledgment—dramatically changed its policy and practice of keeping personal
5 Medicaid data private and refraining from weaponizing healthcare data and systems for
6 immigration and other federal policy purposes.
7 202. In early February, CMS confirmed reports in the Wall Street Journal that DOGE
8 representatives were accessing CMS systems and technology. 5
9 203. On February 19, 2025, President Trump signed an Executive Order titled “Ending
10 Taxpayer Subsidization of Open Borders.” Exec. Order No. 14,218, 90 Fed. Reg. 10,581 (Feb.
11 19, 2025) (hereinafter the “Borders EO”). It purported to give DOGE new authority to “enhance
12 eligibility verification systems” for public benefits.
13 204. On February 28, 2025, HHS announced it was abandoning a long-time memorandum,
14 referred to as the “Richardson Waiver,” pursuant to which HHS had previously committed to
15 (1) follow the notice-and-comment rulemaking procedures in the Administrative Procedure Act
16 (APA) for most rules issued by HHS; and (2) invoke the APA’s good-cause exception to public
17 rulemaking only “sparingly.” HHS, Policy on Adhering to the Text of the Administrative
18 Procedure Act, 90 Fed. Reg. 11,029 (Mar. 3, 2025).
19 205. On March 20, 2025, President Trump signed an Executive Order titled “Stopping
20 Waste, Fraud, and Abuse by Eliminating Information Silos,” which calls on agencies to
21 “remov[e] unnecessary barriers,” including rescission or modification of existing agency
22 guidance, to ensure “unfettered access to comprehensive data from all State programs” in
23
24 5
See Anna Wild Mathews & Liz Essley Whyte, DOGE Aides Search Medicare Agency Payment
Systems for Fraud, (Feb. 5, 2025), https://www.wsj.com/politics/elon-musk-doge-
25 medicaremedicaid-fraud-e697b162; CMS, CMS Statement on Collaboration with DOGE,
https://www.cms.gov/newsroom/press-releases/cms-statement-collaboration-doge (Feb. 5, 2025);
26 Riley Griffin & Madison Muller, Musk’s DOGE Team Mines for Fraud at Medicare, Medicaid,
(Feb. 5, 2025), https://www.bloomberg.com/news/articles/2025-02-05/musk-s-dogeteam-mines-
27 for-fraud-at-medicare-and-medicaid-agency; Alan Condon, DOGE Sets Sights on Medicaid, New
York Times (Feb. 3, 2025) (noting that DOGE has been provided access to key payment and
28 contracting systems at CMS).
36
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1 furtherance of the Administration’s goals. Exec. Order No. 14243, 90 Fed. Reg. 13,681 (Mar. 20,
2 2025) (hereinafter the “Information Silos EO”). The Executive Order does not—and cannot—
4 206. In a May 27, 2025, announcement to California and other states, CMS stated that it
5 was reviewing state Medicaid enrollees to ensure that federal funds had not been used to pay for
6 coverage of people with “unsatisfactory immigration status” (UIS). This letter was purportedly
7 an implementation of the February 19 Borders EO. Nothing in the letter mentioned interagency
8 data sharing.
9 207. Around this same time, multiple media outlets reported that DOGE had enlisted the
10 technology company Palantir to build a massive repository of data pulled from multiple federal
11 agencies, including the IRS, SSA, and HHS, among others, for the purpose of immigration
12 enforcement. 6 It has also been reported that DHS and HHS have already adopted a key Palantir
13 product called Foundry, which would streamline the implementation of such a project. 7
14 208. On June 13, 2025, the Plaintiffs learned that HHS has transferred en masse California,
15 Illinois, and Washington’s Medicaid data files, containing personal health records representing
16 millions of individuals, to DHS. 8 According to a news report, senior HHS political appointees
17 ordered that the data be shared immediately, over the objections of career staff who advised that
18 such a transfer of information would violate federal law, and CMS officials were given just 54
19 minutes to comply with the directive. This data was personally identifiable, not anonymized or
20 hashed, and it included Medicaid beneficiaries’ immigration status and addresses, among other
21 details.
22
6
See Priscilla Alvarez, et al., DOGE is Building a Master Database for Immigration
23 Enforcement, Sources Say, CNN (April 25, 2025),
https://www.cnn.com/2025/04/25/politics/doge-building-master-database-immigration; Makena
24 Kelly & Vittoria Elliott, DOGE Is Building a Master Database to Surveil and Track Immigrants
(April 18, 2025), https://www.wired.com/story/doge-collecting-immigrant-data-surveil-track/
25 7
See Sheera Frenkel & Aaron Krolic, Trump Taps Palantir to Compile Data on Americans, New
York Times (May 30, 2025), https://www.nytimes.com/2025/05/30/technology/trump-palantir-
26 data-americans.html
8
See Kimberly Kindy & Amanda Seitz, Trump Administration Gives Personal Data of Immigrant
27 Medicaid Enrollees to Deportation Officials, AP News (June 14, 2025),
https://apnews.com/article/medicaid-deportation-immigrants-trump-
28 4e0f979e4290a4d10a067da0acca8e22?utm_source=copy&utm_medium=share.
37
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1 209. CMS recently sent to some Plaintiff States additional requests for data concerning the
2 use of federal and state funds to provide Medicaid services to immigrant communities. In light of
3 recent news reports, these Plaintiff states are concerned that HHS is preparing to transfer a similar
4 collection of those states’ Medicaid data files to DHS for the purpose of mass surveillance and
5 immigration enforcement.
7 Medicaid beneficiaries whose data was transferred. HHS has not identified the legal authority
9 211. To date, HHS has not responded to inquiries from state Medicaid agencies requesting
10 confirmation of the data transfer and details about its scope or purpose.
11 212. An HHS spokesperson acknowledged to the Associated Press that the mass data
12 transfer had indeed occurred. HHS claimed that “HHS acted entirely within its legal authority—
13 and in full compliance with applicable laws,” but without identifying any such authority. HHS
14 stated that the purpose of the data transfer was “to ensure that Medicaid benefits are reserved for
16 213. A DHS spokesperson also confirmed receipt of the mass personal Medicaid data
17 transfer from HHS. In its statement to the Associated Press, DHS claimed that “Joe Biden
18 flooded our country with tens of millions of illegal aliens,” and that therefore “CMS and DHS are
19 exploring an initiative to ensure that illegal aliens are not receiving Medicaid benefits that are
21 214. The DHS spokesperson’s narrative that the number of persons residing unlawfully in
22 the United States increased by “tens of millions” during the Biden administration is not supported
23 by any evidence, nor is there evidence to support the implication that unauthorized residents are
24 engaged in some sort of theft of Medicaid benefits for which they are ineligible.
27 program. HHS’s disclosure of Medicaid personal data to DHS was far broader than would be
28 needed for the identification and prevention of waste, fraud, and abuse, and inconsistent with best
38
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1 practices for such activities. HHS has never before enlisted DHS’s participation in “oversight” of
3 216. To the extent that the federal government claims that DOGE needs vast quantities of
4 personal Medicaid data to upgrade technology or improve detection of waste, fraud, and abuse,
5 that justification is also not credible. Program integrity investigations typically start with access
6 to high-level, anonymized data based on the least amount of data the analyst or auditor would
7 need to know, and only if suspicious entries appear do auditors gain access to a limited amount of
9 promulgated by NIST that agencies “[e]mploy the principle of least privilege, allowing only
10 authorized accesses for users … that are necessary to accomplish assigned organizational tasks.”
12 217. Instead, upon information and belief, the federal government has adopted a new
13 policy that purports to allow for wholesale re-disclosure and use of State residents’ personal
14 Medicaid data to pursue aims that are unrelated to Medicaid program administration, including
15 immigration enforcement. Put a different way, circumstantial evidence strongly suggests that the
16 federal government intends to punish individuals who receive emergency medical care for
17 themselves or their children using Medicaid, as those individuals are legally permitted to do, by
18 using the data collected from their hospital visit to locate and deport them.
19 218. Upon information and belief, the federal government has additional plans for this
20 data. DHS, with the assistance of DOGE and external entities, such as ICE contractor Palantir,
21 are combining federal, state, and local databases of information into a single interoperable
22 database for the purpose of “mass deportations” and other large-scale immigration enforcement
23 and mass surveillance purposes. 9 This effort reportedly includes databases of personal
24 information that have never before been used for immigration enforcement or other purposes
25 unrelated to the agencies’ primary missions. In addition to CMS, impacted federal agencies
26 reportedly include the Internal Revenue Service, the Supplemental Nutrition Assistance Program,
27 9
See Muzaffar Chishti & Colleen Putzel-Kavanaugh, Seeking to Ramp Up Deportations, the
Trump Administration Quietly Expands a Vast Web of Data, Migration Policy Institute (May 29,
28 2025), https://www.migrationpolicy.org/article/trump-ice-data-surveillance.
39
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1 the Social Security Administration, the U.S. Department of Housing and Urban Development, the
2 U.S. Department of Veterans Affairs, the U.S. Education Department, and the U.S. Postal
3 Service. 10
4 219. Upon information and belief, DOGE engineers responsible for implementing these
5 plans are handling sensitive HHS data, including data provided by Plaintiff States, “in a manner
6 that disregards important cybersecurity and privacy considerations, potentially in violation of the
7 law.” 11 For example, a letter sent by the ranking member of the House Oversight and
9 whistleblower allegations that “DOGE engineers have tried to create specialized computers for
10 themselves that simultaneously give full access to networks and databases across different
11 agencies. Such a system would pose unprecedented operational security risks and undermine the
12 zero-trust cybersecurity architecture that prevents a breach at one agency from spreading across
13 the government. Information obtained by the Committee also indicates that individuals
14 associated with DOGE have assembled backpacks full of laptops, each with access to different
15 agency systems, that DOGE staff is using to combine databases that are currently maintained
16 separately by multiple federal agencies.” If true, these allegations represent a shocking misuse of
17 data provided by the Plaintiff States that illegally puts the security and integrity of that data at
18 risk. Plaintiff States’ concerns about the security of their data are well-founded given other
19 whistleblower testimony reporting that DOGE’s databases are being targeted for infiltration by
20 foreign hackers. 12
21
22
10
Id.
23 11
Letter from Ranking Member Gerald E. Connolly, House Committee on Oversight and
Government Reform, to SSA Assistant Inspector General for Audit Michelle L. Anderson (Apr.
24 17, 2025), https://oversightdemocrats.house.gov/sites/evo-subsites/democrats-
oversight.house.gov/files/evo-media-document/2025-04-17.gec-to-ssa-oig-master-data.pdf; see
25 also Natalie Alms, DOGE is Building a “Master Database” of Sensitive Information, Top
Oversight Democrat Says, NextGov/FCW (Apr. 18, 2025), https://www.nextgov.com/digital-
26 government/2025/04/doge-building-master-database-sensitive-information-top-oversight-
democrat-says/404693/.
27 12
See Letter from Whistleblower Aid Chief Legal Counsel Andrew P. Bakaj to Senate Select
Committee on Intelligence Chairman Tom Cotton (Apr. 14, 2025), 2025_0414_Berulis-
28 Disclosure-with-Exhibits.s.pdf.
40
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1 220. Defendants initiated the personal Medicaid data transfer “just as the Trump
3 Order Granting TRO, ECF No. 64, Newsom v. Trump, No. 25-cv-04870 (N.D. Cal., June 12,
4 2025).
5 221. Defendants have not published a new SORN or other notice in the Federal Register
6 relating to this change in practice, depriving Plaintiffs, and members of the public of information
7 such as planned routine uses of this system of records, and the opportunity for comment.
8 222. Defendants have not withdrawn or revised any of their statements and policies to the
9 States and members of the public advising that Medicaid data containing personal and protected
10 information shall only be used for purposes of administration of the Medicaid program.
11 223. Upon information and belief, Defendants’ rushed transfer of this data from HHS to
12 DHS over the objections of career staff, who reportedly questioned whether the transfer violated
13 federal law and ethics, raises concerns that Defendants failed to comply with FISMA’s
14 requirements concerning controls and limitations on access to and transfer of secure information,
15 as well as CMS policies and procedures promulgated to comply with FISMA and protect the
17 224. Even if Defendants had published a SORN describing immigration enforcement and
18 mass surveillance as intended uses for the collected Medicaid data, the Privacy Act would
19 nonetheless prohibit them from using the data for such purposes, because immigration
20 enforcement and mass surveillance are not compatible with the purpose for which the data was
22 225. Upon information and belief, in making their decision to change longstanding policy
23 and transfer mass quantities of personal Medicaid data from HHS to DHS, Defendants have failed
24 to consider or grapple with the clear negative ramifications (described in paragraphs 226-254
26
27
28
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3 226. In the absence of the requested relief, Defendants’ actions will cause serious,
6 interests by interfering with State authority to administer the Medicaid program, and reducing the
7 State’s ability to access federal support for that program as Congress has authorized.
8 228. As California’s state legislature has explained, “[a] relationship of trust between
9 California’s immigrant community and state and local agencies is central to the public safety of
10 the people of California,” and this “trust is threatened when state and local agencies are entangled
11 with federal immigration enforcement, with the result that immigrant community members fear
12 […] seeking basic health services […] to the detriment of public safety and the well-being of all
14 229. In administering their Medicaid and other healthcare programs, the States have relied
15 on the federal government’s assurances that it will follow the law and protect confidentiality.
16 This includes the States’ provision of federally funded Medicaid for health emergencies and
17 childbirth to millions of patients who would otherwise not be Medicaid eligible. Defendants’
18 actions undermine those reliance interests and interfere with the terms and conditions under
21 confidentiality. Individuals provide the most sensitive data to the States through the Medicaid
22 program, because they trust that neither the State nor the federal government will use that
23 protected health information for any purpose other than the administration of the program, as
25 231. If CMS is permitted to transfer participants’ Medicaid data to DHS for general
26 immigration enforcement purposes, that trust will likely be irreparably damaged, especially for
27 the families (including U.S. citizens) of undocumented immigrants, who risk deportation as a
1 232. As a result, Defendants’ mass transfer of sensitive Medicaid data will cause a
2 predictable chilling effect on individuals’ willingness to enroll in Medicaid programs for which
3 they are legally eligible. This chilling effect will be most acute among marginalized groups, such
4 as: immigrants, transgender individuals, people with mental illness, and those seeking of
6 233. Already, advocates who advise noncitizens are recommending that individuals and
7 families balance the value of seeking healthcare against the possible risks that their information
9 234. Many residents of the States are likely to avoid enrolling in healthcare programs for
10 which they are eligible as a result of CMS’s data sharing with DHS, fearing their data will be
11 used to initiate immigration enforcement actions against them or their family members. This
12 includes both undocumented immigrants, who are legally entitled to Medicaid coverage for
13 emergency medical services including childbirth, and legal residents, who reasonably fear that
14 DHS will initiate immigration enforcement actions against them, given this administration’s track
16 235. As a result of CMS sharing personal information with DHS, uninsured immigrants
17 will be more likely to avoid going to the emergency room or calling an ambulance to seek life-
18 saving treatment—for themselves or for their children—for fear that doing so will make them a
20 236. Indeed, the public reporting of data sharing between CMS and DHS has already
21 caused widespread confusion and fear that Medicaid data will be used to locate and target
23 237. This fear is well-founded. DHS has rescinded a longstanding directive that had
24 prohibited ICE from conducting immigration enforcement operations at “sensitive locations” such
25 as hospitals and clinics. The administration has been outspoken about its goal of aggressive
26
27 13
See, e.g., Kyle Cheney, Trump Administration Acknowledges Another Error in a High Profile
Deportation, Politico (May 16, 2025), https://www.politico.com/news/2025/05/16/trump-
28 administration-another-error-high-profile-deportation-00355377.
43
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2 and April of this year, ICE has deported over 142,000 U.S. residents, at least 25% of whom had
4 news outlets have reported that the administration is still unhappy with the pace of deportation
5 numbers, and ICE is under pressure from the President to arrest 1,200-3,000 people per day. 16
6 238. Exacerbating the fear of deportation among immigrants is the fact that, under this
7 administration, “deportation” no longer necessarily means being sent back to one’s home country.
8 For example, DHS has “deported” nearly 300 U.S. residents to a Centre for Terrorism
9 Confinement (CECOT) prison in El Salvador, 17 including at least one individual who was
10 mistakenly “deported,” despite being legally present in the United States. 18 This has prompted
11 the United Nations High Commissioner to call for changes in U.S. policy to avoid serious human
12 rights concerns, including the risk of “torture or other irreparable harm” that may be suffered at
13 CECOT. 19 The administration has also announced that an undisclosed number of U.S. residents
14 are now being detained at Guantanamo Bay due to immigration enforcement efforts. 20
15 239. Healthcare providers, including the California Medical Association, warn that the
16 federal government’s failure to adhere to patient privacy protections and misuse of Medicaid data
17 for immigration enforcement purposes will make people less likely to seek medically necessary
18 healthcare. 21
19 14
See, e.g., Rebecca Santana et al., Trump Rolls Out His Blueprint on Border Security, But His Orders
Will Face Challenges, AP NEWS (Jan. 20, 2025), https://apnews.com/article/trump-deportation-
20 immigration-homan-asylum-inauguration-ac10480dc636b758ab3c435b974aeb19.
15
Dep’t of Homeland Security Press Release, “100 Days of Making America Safe Again (April 29, 2025)
21
https://www.dhs.gov/news/2025/04/29/100-days-making-america-safe-again.
22
16
See Welker, Kristen et al., Trump is ‘Angry’ that Deportation Numbers are not Higher, (Feb. 7 , 2025),
https://www.nbcnews.com/politics/national-security/trump-angry-deportation-numbers-are-not-higher-
23 rcna191273.
17
See Dep’t of Homeland Security Press Release, supra, n. 15.
24 18
See Id.; Bustillo, Ximena, Trump Administration Admits Maryland Man Sent to El Salvador Prison By
Mistake, NPR (April 1, 2025) https://www.npr.org/2025/04/01/nx-s1-5347427/maryland-el-salvador-error.
25 19
UN News, US Deportations Raise Serious Human Rights Concerns, (May 13, 2025)
https://news.un.org/en/story/2025/05/1163181#:~:text=13%20May%202025%20Human%20Rights,to%20
26 El%20Salvador%20remain%20unclear.
20
See Dep’t of Homeland Security Press Release, supra, n. 15.
27 21
See Kristen Hwang, Gov. Newsom Lambasts Trump for Giving Immigrants’ Health Data to Deportation
Officials, CalMatters (June 13, 2025), https://calmatters.org/health/2025/06/newsom-trump-immigrant-
28 data-deportation-medicaid/.
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1
b. Chilling Effects on Public Health Program Participation Will Cause Further
2 Harm
3 240. The chilling effects caused by Defendants’ actions will, in turn, harm both State
4 finances, operation of State programs, and the public health.
5 241. Individuals who are eligible for federally funded Medicaid but choose not to apply
6 due to concerns about data security and privacy will reduce the amount of federal funding with
7 which the State can provide healthcare to its residents. This will cause direct financial harm to
8 the States, which otherwise receive 50 percent or more in federal matching funds for qualified
9 Medicaid expenditures, including emergency Medicaid.
10 242. Instead of securing federal funding for providing healthcare services to otherwise
11 Medicaid-eligible individuals, Plaintiffs will incur increased uncompensated costs for hospital
12 care in which a treatment or service is not paid for by an insurer or patient, yet is still mandated to
13 be provided by EMTALA.
14 243. This economic harm will be particularly acute for those hospitals and other healthcare
15 facilities that serve a disproportionate share of low-income individuals and noncitizens. Such
16 facilities already operate on thin margins. If public funding drops, and uncompensated care rises,
17 these hospitals will be less able to serve all patients in need.
18 244. In the absence of requested relief, State healthcare providers (including those
19 facilities owned and operated by the State and its political subdivisions) will also face increased
20 administrative costs and burdens, as they will need to devote considerable time and resources to
21 educating frontline and clinical staff regarding new patient privacy risks and rebuilding trust and
22 overcoming objections resulting from confusion and fear.
23 245. To the extent Defendants’ actions chill noncitizens and individuals in mixed-status
24 families from accessing publicly funded health insurance options for which they are eligible, this
25 will result in their being more likely to defer primary or preventive healthcare. Deferred care
26 leads to more complex medical conditions in the future that are more expensive to treat.
27
28
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1 246. This chilling effect will have dire health consequences. Not seeking emergency
2 medical care when it is needed is likely to cause serious health consequences, and even death, not
3 only for undocumented immigrants but also for their children, regardless of immigration status.
4 247. For example, those chilled from accessing federally funded emergency Medicaid for
5 prenatal care will be more likely to experience adverse health effects during pregnancy and
6 childbirth. Decreased access to prenatal care will lead to increased rates of premature births, low
7 birth weight infants, and congenital defects, all of which produce considerable harm to Plaintiffs,
8 in addition to worse health outcomes for the child and parent. The average medical cost to
9 Plaintiffs in the first year of life of a premature or low birth weight baby is up to 10 times higher
11 248. Overall, Defendants’ actions will push more people into the ranks of the uninsured,
12 straining the budgets of state, local, and private health systems and programs.
13 249. As the primary funder for all their low-income residents’ healthcare services,
14 Plaintiffs’ publicly funded healthcare programs will ultimately bear the cost of both financial
15 pressure on safety net providers and the increased public health harms.
16 250. In addition, to the extent Defendants’ actions make noncitizens and other individuals
17 more reluctant to enroll in federally-funded health care programs, Plaintiffs will incur greater
18 costs and burdens to conduct statutorily-required outreach efforts to enroll families and children
20 251. Defendants’ actions will also make noncitizens and other individuals more reluctant
21 to enroll in fully state-funded public health insurance programs, undermining the efficacy of those
22 programs.
23 252. Moreover, the States also have a quasi-sovereign interest in protecting the safety and
24 well-being of their residents. This interest is particularly strong when it comes to emergency
26 253. Defendants’ actions will undermine the progress the States have made as a result of
27 Medicaid expansion, which has helped in reducing rates of individuals without health insurance
28
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1 to historic lows. For example, in California, 96 percent of children now have private or public
2 health insurance.
3 254. While Plaintiffs do not seek to assert the States’ residents’ own interests in this
4 litigation, those interests are considerable. All residents have a right to access emergency medical
5 care. Those who already received federally funded emergency Medicaid face irreparable harm to
6 their privacy interests if Medicaid information and other PII is improperly accessed or
7 disseminated. Going forward, individuals and families will be forced to choose between those
8 privacy interests and accessing emergency healthcare services for which they are eligible under
10 CLAIMS
28
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2 Among other deficiencies, Defendants failed to consider the important privacy and public health
3 consequences of their unprecedented transfer and use of state Medicaid data. Defendants have
4 failed to consider the impact their actions will have on their ability to fulfill the Medicaid Act’s
7 government’s well-established rules and policies regarding the privacy, security, and
9 261. Although Defendants may change their policies within statutory limits, the agency
10 must “provide a reasoned explanation for the change.” Encino Motorcars, LLC v. Navarro, 579
11 U.S. 211, 221 (2016). Defendants have not even provided notice of their change in policy, much
12 less the necessary “satisfactory explanation” for their about-face on Medicaid confidentiality
14 262. Defendants’ actions are arbitrary and capricious in violation of § 706(2)(A) of the
15 APA.
28
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1 266. As set forth in paragraphs 56-66, supra, the Social Security Act provides, “[n]o
2 disclosure ... of any file, record, report, or other paper, or any information […] shall be made
3 except as the head of the applicable agency may by regulations prescribe and except as otherwise
4 provided by Federal law.” 42 U.S.C. § 1306 (a)(1) (emphasis added); see also 42 U.S.C.
5 § 1306(a)(2) (applying this privacy provision to both HHS and the Social Security
6 Administration).
7 267. Far from authorizing this transfer of data, federal regulations caution that Medicaid
8 records should only be disclosed for “purposes directly connected with the administration” of the
12 269. Defendants’ actions contravene the Social Security Act and are therefore not in
14 270. Defendants’ actions also trespass federal statutes enacted to protect the privacy,
16 271. As set forth in paragraphs 67-78, supra, the Privacy Act sets strict procedural
17 requirements before an agency can create or revise a system of records and collect individuals’
19 272. By collecting and transferring personal Medicaid data, without publishing a notice
20 required by 5 U.S.C. § 552a(e), Defendants failed to comply with the Privacy Act’s informational
22 273. Additionally, Section 552a(b) of the Privacy Act further prohibits disclosure of
24 274. Disclosure from HHS systems of records to DOGE or DHS employees would not
25 meet any of the conditions enumerated in 5 U.S.C. § 552a(b), and is therefore inconsistent with
27 275. Specifically, disclosure of personal Medicaid data to agencies outside HHS for the
28 purpose of immigration enforcement is not “a purpose which is compatible with the purpose for
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1 which [the data] was collected.” Id. § 552a(a)(7). Therefore, even if CMS and DHS have
2 published a SORN describing immigration enforcement as a “routine use,” the agencies would
4 276. Defendants’ actions contravene the Privacy Act and are therefore not in accordance
6 277. As set forth in paragraphs 79-82, supra, HIPAA limits the use and disclosure of
7 individuals’ protected health information, including information transferred from CMS, which is
9 278. Upon information and belief, none of the impacted individuals consented to the
10 transfer of their Medicaid data, and CMS is neither expressly permitted nor required to transfer
11 records to DHS.
12 279. To the extent DHS provided a written request for the data, that request was not
13 sufficiently specific and limited in scope to qualify for HIPAA’s law enforcement exception.
14 280. Defendants’ actions contravene HIPAA and are therefore not in accordance with law
16 281. As set forth in paragraphs 83-90, supra, to comply with FISMA, CMS has developed,
17 documented, and implemented an agency-wide program to provide information security for the
18 information and systems that support the operations and assets of the agency, including those
19 provided or managed by another agency, contractor, or other sources. CMS was required to do so to
21 282. Upon information and belief, by transferring Plaintiff States’ Medicaid data files to
22 DHS in a rushed manner and over the objections of career staff, Defendants likely failed to
23 comply with CMS’s own policies for complying with FISMA, and for sharing and protecting
24 sensitive data in a manner that ensures the security and integrity of that data.
25 283. Defendants’ actions violate privacy and data security law and are therefore in
26 violation of the APA because they are not in accordance with law, 5 U.S.C. § 706(2)(A), in
27 excess of statutory authority, limitations, and right, 5 U.S.C. § 706(2)(C) and without observance
1
THIRD CAUSE OF ACTION
2 Violation of the APA – Rulemaking Without Proper Procedure
3 (Against HHS)
284. Plaintiffs reallege and incorporate by reference the foregoing allegations as fully set
4
forth herein.
5
285. Under the APA, an agency must provide the public with notice of a proposed rule, 5
6
U.S.C. § 553(b), and give “interested persons an opportunity to participate in the rule making
7
through submission of written data, views, or arguments.” Id. § 553(c). Agencies cannot evade
8
the APA’s requirements merely by declining to publish a rule for comment.
9
286. Upon information and belief, as alleged in the First and Second Causes of Action
10
above, HHS has abandoned or substantially amended well-established confidentiality
11
requirements that limit transfer of data via policy and regulation, which may be released only
12
under identified and limited circumstances.
13
287. HHS did so without the opportunity for notice and comment, without amending any
14
otherwise applicable Medicaid rules and agreements with the States, and without any prior notice
15
to the public whatsoever.
16
288. HHS’s rescission of the Richardson Waiver does not excuse HHS from compliance
17
with the APA as applied to this kind of substantive change in policy.
18
289. Defendants’ actions are not in accordance with law because they violate the APA’s
19
procedural requirements.
20
24 forth herein.
25 291. As explained in the prior Causes of Action above, to the extent that Defendants intend
26 to create a novel expansion of the scope of allowable sharing of Medicaid data, their conduct is
27 unlawful. Their conduct is also unconstitutional because Plaintiff States did not have clear notice
1 292. Article I of the U.S. Constitution specifically grants Congress the power “to pay the
2 Debts and provide for the common Defense and general Welfare of the United States.” U.S.
4 293. Incident to the spending power, “Congress may attach conditions on the receipt of
5 federal funds.” South Dakota v. Dole, 483 U.S. 203, 206 (1987). However, any conditions must
7 of the consequences of their participation.’” Id. at 207 (quoting Pennhurst State Sch. & Hosp. v.
9 294. There is no statute that clearly states that Medicaid funds provided by Defendants are
10 conditioned on consent for unfettered transfer of that Medicaid data to agencies other than HHS
11 for purposes of immigration enforcement, or any other purposes unrelated to the Medicaid
12 program.
13 295. Therefore, conditioning federal Medicaid funding on unfettered access to state and
14 residents’ personal healthcare data would violate this limitation on the spending power, because,
15 inter alia, Plaintiffs did not have “clear notice” of such a condition. See Arlington Cent. Sch. Dist.
17 296. Moreover, conditions on federal grants must be related to the national program for
18 which the grant monies are provided. Dole at 207 (citing Massachusetts v. United States, 435
19 U.S. 444, 461 (1978)). Defendants’ efforts to mine sensitive and protected beneficiary data for
22 children, pregnant women, elderly adults and people with disabilities” and “provid[ing] an
25 2015). Nor is there any connection between this type of sharing of beneficiary data and the sound
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Complaint for Declaratory and Injunctive Relief
Case 3:25-cv-05536 Document 1 Filed 07/01/25 Page 54 of 59
1 297. Additionally, to the extent that Defendants are attempting to create a new Medicaid
2 data sharing condition on federal Medicaid funding, such a condition is unlawful because it was
3 issued after Plaintiffs accepted federal funds, and Defendants cannot “surpris[e] participating
4 States with post acceptance or ‘retroactive’ conditions.” Pennhurst, 451 U.S. at 25.
5 298. Pursuant to 28 U.S.C. § 2201(a), Plaintiffs are entitled to a declaration that their
6 receipt of federal Medicaid funds is not conditioned on consent to unfettered waiver of Medicaid
8 299. Plaintiffs are also entitled to a preliminary and permanent injunction barring
9 Defendants from suspending funds or otherwise taking enforcement action against Plaintiffs on
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Complaint for Declaratory and Injunctive Relief
Case 3:25-cv-05536 Document 1 Filed 07/01/25 Page 55 of 59
2 Wherefore, Plaintiffs respectfully request that the Court enter a judgment against
5 protected health information to DHS was unauthorized and contrary to the laws of
7 2. A declaration that any actions implementing the Information Silos EO are contrary to
8 the laws of the United States to the extent they are applied to interagency transfers of
10 3. Preliminarily and permanently enjoin HHS from further transferring Medicaid data
13 4. Preliminarily and permanently enjoin DOGE, DHS, or any other federal agency from
16 purposes;
21 7. Grant such additional relief as the Court deems proper and the interests of justice may
22 require.
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Complaint for Declaratory and Injunctive Relief
Case 3:25-cv-05536 Document 1 Filed 07/01/25 Page 56 of 59
2
KRISTIN K. MAYES ROB BONTA
3 Attorney General for the State of Arizona Attorney General for the State of California
NELI PALMA
4 Senior Assistant Attorney General
/s/__ Alexa G. Salas_________________ KATHLEEN BOERGERS
5 ALEXA G. SALAS* Supervising Deputy Attorney General
Assistant Attorney General MARIA F. BUXTON
6 2005 North Central Avenue KATHERINE MILTON
Phoenix, Arizona 85004 KEVIN G. REYES
7 (602) 542-3333
[email protected]
8 [email protected] /s/_Anna Rich______________________
Attorneys for the State of Arizona ANNA RICH
9 *Pro hac vice forthcoming Deputy Attorneys General
Attorneys for Plaintiff State of California
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Complaint for Declaratory and Injunctive Relief
Case 3:25-cv-05536 Document 1 Filed 07/01/25 Page 57 of 59
16
ANDREA JOY CAMPBELL AARON D. FORD
17 Attorney General for the State of Massachusetts Attorney General for the State of Nevada
18
/s/__Katherine Dirks_____________ /s/__Heidi Parry Stern_____________
19 KATHERINE DIRKS HEIDI PARRY STERN (Bar. No. 8873)
Chief State Trial Counsel Solicitor General
20 Office of the Massachusetts Attorney General Office of the Nevada Attorney General
1 Ashburton Place Boston, MA 02108 555 E. Washington Ave., Ste. 3900
21 (617) 963-2277 Las Vegas, NV 89101
[email protected] [email protected]
22 Attorneys for Plaintiff Commonwealth of Attorneys for Plaintiff State of Nevada
Massachusetts
23
14
PETER F. NERONHA CHARITY R. CLARK
15 Attorney General for the State of Rhode Island Attorney General for the State of Vermont
16
/s/_Lee Staley__________ /s/__Ryan P. Kane__________
17 LEE B. STALEY* RYAN P. KANE
Chief, Health Care Unit Deputy Solicitor General
18 150 South Main Street 109 State Street
Providence, RI 02903 Montpelier, VT 05609
19 Phone: (401) 274-4400 (802)828-3171
Fax: (401) 222-2995 [email protected]
20 [email protected] Attorneys for Plaintiff State of Vermont
Attorneys for Plaintiff State of Rhode Island
21
5 OK2025900292
CA v. HHS Medicaid Data Complaint Final 3 pm
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Complaint for Declaratory and Injunctive Relief