www.hemofilia.or.id
KONGRES NASIONAL VI
HIMPUNAN MASYARAKAT
HEMOFILIA INDONESIA
JAKARTA, 3-5 APRIL 2020
THE 6 NATIONAL CONGRESS
OF INDONESIAN
HEMOPHILIA SOCIETY
TH
“ROAD TO BETTER HEMOPHILIA CARE”
APRIL 3 - 5FRIDAY - SUNDAY 2020
JS LUWANSA HOTEL JAKARTA
rd th
CABANG DKI JAKARTA
DAFTAR ISI
WELCOME MESSAGE
ORGANIZING COMMITTEE
CONGRESS HIGHLIGHT
SYMPOSIUM TOPIC
PRE CONGRESS
REGISTRATION FEE
INFORMATION IHS
1
2
3
4
5
6
7
1
WELCOME
MESSAGE
The 6th Na onal Congress of the Indonesian Hemophilia Society (IHS)
3 - 5 April 2020 is a na onal mee ng of all member of our community
including mul disciplinary medical doctors, pa ents and layman,
researchers, regulators, policy makers and industry representa ves.
The event is organized by the Indonesian Hemophilia Society (IHS)
and the aim of this important mee ng is to discuss hemophilia care
in Indonesia, as well as strengthening collabora on among delegates
and par cipants. .
The main theme of the na onal congress is "Road to be er hemophilia
care." The series of events will begin with precongress sessions which is
filled with workshops for doctors and nurses. Scien fic ac vi es consist
of Plenary Sessions, Parallel Symposium, Layman Symposium and Youth,
Industrial Symposium (Break Symposium and Lunch Symposium) and
Poster Presenta on. .
We sincerely hope that the knowledges and experiences during the
congress will lead to improvement and be er hemophilia care in
Indonesia. .
On behalf of IHS, we would like to welcome you to Jakarta and be part
of our hemophilia community. .
Sincerely, .
Prof. dr. Djajadiman Gatot, Sp.A(K)
President of Indonesian Hemophilia Society
Dr. dr. Novie Amelia C, Sp.A(K)
Chair of Commitee
2
ORGANIZING
COMMITTEE
Chairperson : Dr. dr. Novie Amelia Chozie, Sp.A(K)
Vice Chair of Scien fic Division: dr. Fitri Primacak , SpA(K)
Vice Chair of Organiza on & Layman Division : Antonius Ari Sudana, S.Si
Vice Chair of Event Organizing Division : Novi Riandini, S.Kom
Secretary : Agustaman F. Wirawan, S.S
Treasurer : Fera Vinikasari, SKM
Medical Scien fic Division
dr. Findy Prasetyawa , Sp.PD
dr. Riski Muhaimin, Sp.A
dr. Ludi Dhyani M, Sp.A
dr. Rizky Kusumawardani Sp.KFR
dr. Fitri Anesterita, Sp.KFR
dr. Sri Suryo Adian , Sp.PK
Juanda Mu fa, S.Kep. Ners.
Lestari, S.Kep, Ners
Organiza on and Layman Division
Ir. Daru Indriyo
Yusnidar Patah, S.E
Adyani S. Anidyaswari, S.Psi
Fahmi Ridwan Daud
Dr. Endang Mariani, M.si
Agustaman Fajar Wirawan, S.S
Hafizh Kalamullah, S.Kom
Fund and Partnership Sec on
Prof. dr. Djajadiman Gatot, Sp.A(K)
Prof. Dr. dr. Angela BM Tulaar, Sp.KFR(K)
Prof. dr. Rahajuningsih D Se abudhy, Sp.PK(K), DSc
Dr. dr. Tubagus Djumhana A, Sp.PD-KHOM
Dr. dr. Lugyan Sukrisman, Sp.PD-KHOM
Dr. dr. Novie Amelia C, Sp.A(K)
dr. Nadia Mulansari, Sp.PD-KHOM
Transporta on Sec on
Bogar Baskoro, SKM
Reno Anggara Putra
M. Fikri Ramadhan
Accommoda on Sec on
Novi Riandini, S.Kom
Erni Herawa
Ribka Like Losung
Publica on, Documenta on and IT Sec on
Ir. Daru Indriyo
M. Gunarso, S.Kom
Malik Abdul Aziz
Food and Beverages Sec on
Dr. dr. Teny Tjitrasari, Sp.A(K)
Pipit Syafitri
Erni Herawa
Event & Exhibi on Equipment & Logis c Sec on
dr. Riski Muhaimin, Sp.A
Andi Havilland, S.Kom
Satria Kusman, A.md
Registra on Sec on
dr. Raisa Cecilia
Muhammad Gunarso, S.Kom
Andi Havilland, S.Kom
Dina Watanabe, SKM
Yuliana, Am.Keb
Rita Maharani, S.IKom
Event planning Sec on
Satria Kusman, A.md
Ir. Daru Indriyo
Andi Havilland, S.Kom
Adyani S. Anidyaswari, S.Psi
Dr. Endang Mariani, M.Si
3
CONGRESS
HIGHLIGHT
08.00 - 09.00
09.00 - 12.00
12.00 - 13.00
13.00 - 14.00
14.00 - 17.00
17.00 - 18.00
18.00 - 20.00
20.00 - 22.00
HEMOPHILIA
NURSE
WORKSHOP
HEMOPHILIA
IN-DEPTH
WORKSHOP
DELEGATES
ARRIVAL
ORGANIZATION
MEETING
GENERAL ASSEMBLY
DELEGATES
DINNER
07.00 - 08.00
08.00 - 09.00
09.00 - 12.00
12.00 - 13.00
13.00 - 14.00
14.00 - 17.00
17.00 - 18.00
18.00 - 20.00
20.00 - 22.00
PRE CONGRESSTIME
07.00 - 08.00
TIME CONGRESS DAY 1
REGISTRATION
OPENING
PLENARY 1
LUNCH SYMPOSIUM 1-2
LUNCH & PRAYER
PARALLEL SYMPOSIUM 1-2-3
POSTER SESSIONS
WELCOME DINNER
CONGRESS DAY 2
PLENARY 2
BREAK SYMPOSIUM
PARALLEL SYMPOSIUM 4-5-6
LUNCH SYMPOSIUM 3
LUNCH & PRAYER
PARALLEL SYMPOSIUM 7
DELEGATES DEPARTURE
(by invitation)
4
SYMPOSIUM
TOPIC
Plenary Lectures
- Hemophilia in Indonesia : road to a be er care
- Hospital based Health Assessment Technology: low dose prophylaxis versus on-demand treatment
for children with severe hemophilia A
- Financial support for hemophilia care based on standard prac ce in Indonesia
- Health services for people with hemophilia in Indonesia: improving human resources, diagnos c
and treatment facili es na onwide
- Choosing best product for replacement therapy : what we need to know
- Ethical issues in hemophilia treatment : developing professional rela onship between HCPs, pa ent
organiza on, pharmaceu cal company and other stakeholders
PLENARY
SPEAKERS/ MODERATOR
Prof. dr. Djajadiman Gatot, Sp.A(K)
President of Indonesian Hemophilia Society
Letjen TNI (Purn) Dr. dr. Terawan Agus Putranto, Sp.Rad.(K)
Ministry of Health
Prof. Dr. dr. Fachmi Idris, M.Kes
Director of BPJS
dr. Lies Dina Liastu , Sp.JP (K), MARS, FIHA
Director of Dr. Cipto Mangunkusumo Hospital
Dr. dr. Tubagus Djumhana A, Sp.PD-KHOM
Chairman of
Indonesian Society of Hematology & Blood Transfusion
Prof. Ampaiwan Chuansumrit, MD
Director of the Interna onal Hemophilia Training Center-Bangkok,
Mahidol University, Thailand
Prof. Dr. dr. Dasril Daud, SpA(K)
Professor in Pediatrics, Hasanuddin University Makassar
Prof. Dr. dr. Budi Sampurna, SpF(K)
Chair of Ethics & Legal Commi ee of
Dr. Cipto Mangunkusumo Hospital
Susan Halimeh, MD
Director of Gerinnungs zentrum Rhein-Ruhr
and Coagula on Research Centre,
University of Duisburg-Essen, Germany
Parallel Symposium
- Prophylaxis
- Complica on in hemophilia
- Access of hemophilia care
- Laboratory diagnos c
- Diagnosis approach of bleeding
- Inhibitor in hemophilia
- Acquired bleeding disorders
- Hemophilia in primary care &
comprehensive care
- Transfusion in hemophilia
PRE CONGRESS
FRIDAY, APRIL 3 2020
5
NURSING IN HEMOPHILIA AND BLEEDING DISORDER
Room : Ballroom 2
TIME
07.30 - 08.00 Registra on
WORKSHOP08.20 - 12.00
Overview of hemophilia diagnosis and management
08.00 - 08.10 Opening
08.10 - 08.20 PRE-TEST
Course Director: Juanda Mu fa, SKep, Ners
08.20 - 08.50
Prof. dr. Djajadiman Gatot, SpA(K)
Legal and ethical aspects of clo ng factor concentrate treatment for bleeding08.50 - 09.20
Dr. Allenidekania, SKp, Msc
Emergency in haemophilia and other bleeding disorders09.20 - 09.50
Discussion09.50 - 10.15
Juanda Mu fa, SKep, Ners
Biopsychosocial aspects in management of hemophilia10.30 - 11.00
The role of nurses in hemophilia management
10.15 - 10.30 Coffee/tea break
11.00 - 11.30
Ns. Nining Caswini, M.Kep, Sp.Kep.An
Anidah, S.Kep, Ners
Discussion11.30 - 11.45
POST-TEST11.45 - 12.00
Friday Prayer12.00 - 13.30
HANDS ON SESSION13.30 - 17.00
How to administer clo ng factor concentrate13.30 - 15.00
Coffee/tea break15.00 - 15.15
Fascilitator team
Emergency in hemophilia15.15 - 17.00
Fascilitator team
Closing
6
REGISTRATION
FEE
REGISTRATION INFORMATION
REGULAR
Feb 16th – April 2nd,2020
Specialist
General doctor
Resident/Med student
IDR 2.500.000
IDR 1.000.000
IDR 750.000
ON-SITE
April 3 - 5th, 2020
Specialist
General doctor
Resident/Med student
IDR 2.750.000
IDR 1.500.000
IDR 1.000.000
WORKSHOP
(REG. UNTIL MARCH 30th, 2020)
HEMOFILIA.OR.ID
BANK ACCOUNT
INDONESIAN HEMOPHILIA SOCIETY
BANK MANDIRI
122-00-0988510-7
Nursing in Hemophilia &
Bleeding Disorder : IDR 750.000
Hemophilia in Depth Workshop for
Paediatrician & Internist
IDR 2.500.000
7
MORE INFORMATION
INDONESIAN HEMOPHILIA SOCIETY
HIMPUNAN MASYARAKAT HEMOFILIA INDONESIA
Eightyeight @Kasablanka Office Tower, Lantai 10, Unit E
Jl. Casablanca Kav. 88, Jakarta Selatan 12870 INDONESIA
www.hemofilia.or.id
ihsna onalcongress2020@gmail.com
+62 81314467212 (Sdr. Fera Vinikasari)
+62 82166676660 (Sdr. Dina Watanabe)
INFORMATION
ISH/ HMHI
HEMOFILIA.OR.ID

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E booklet nurse-konas2020

  • 1. www.hemofilia.or.id KONGRES NASIONAL VI HIMPUNAN MASYARAKAT HEMOFILIA INDONESIA JAKARTA, 3-5 APRIL 2020 THE 6 NATIONAL CONGRESS OF INDONESIAN HEMOPHILIA SOCIETY TH “ROAD TO BETTER HEMOPHILIA CARE” APRIL 3 - 5FRIDAY - SUNDAY 2020 JS LUWANSA HOTEL JAKARTA rd th CABANG DKI JAKARTA
  • 2. DAFTAR ISI WELCOME MESSAGE ORGANIZING COMMITTEE CONGRESS HIGHLIGHT SYMPOSIUM TOPIC PRE CONGRESS REGISTRATION FEE INFORMATION IHS 1 2 3 4 5 6 7
  • 3. 1 WELCOME MESSAGE The 6th Na onal Congress of the Indonesian Hemophilia Society (IHS) 3 - 5 April 2020 is a na onal mee ng of all member of our community including mul disciplinary medical doctors, pa ents and layman, researchers, regulators, policy makers and industry representa ves. The event is organized by the Indonesian Hemophilia Society (IHS) and the aim of this important mee ng is to discuss hemophilia care in Indonesia, as well as strengthening collabora on among delegates and par cipants. . The main theme of the na onal congress is "Road to be er hemophilia care." The series of events will begin with precongress sessions which is filled with workshops for doctors and nurses. Scien fic ac vi es consist of Plenary Sessions, Parallel Symposium, Layman Symposium and Youth, Industrial Symposium (Break Symposium and Lunch Symposium) and Poster Presenta on. . We sincerely hope that the knowledges and experiences during the congress will lead to improvement and be er hemophilia care in Indonesia. . On behalf of IHS, we would like to welcome you to Jakarta and be part of our hemophilia community. . Sincerely, . Prof. dr. Djajadiman Gatot, Sp.A(K) President of Indonesian Hemophilia Society Dr. dr. Novie Amelia C, Sp.A(K) Chair of Commitee
  • 4. 2 ORGANIZING COMMITTEE Chairperson : Dr. dr. Novie Amelia Chozie, Sp.A(K) Vice Chair of Scien fic Division: dr. Fitri Primacak , SpA(K) Vice Chair of Organiza on & Layman Division : Antonius Ari Sudana, S.Si Vice Chair of Event Organizing Division : Novi Riandini, S.Kom Secretary : Agustaman F. Wirawan, S.S Treasurer : Fera Vinikasari, SKM Medical Scien fic Division dr. Findy Prasetyawa , Sp.PD dr. Riski Muhaimin, Sp.A dr. Ludi Dhyani M, Sp.A dr. Rizky Kusumawardani Sp.KFR dr. Fitri Anesterita, Sp.KFR dr. Sri Suryo Adian , Sp.PK Juanda Mu fa, S.Kep. Ners. Lestari, S.Kep, Ners Organiza on and Layman Division Ir. Daru Indriyo Yusnidar Patah, S.E Adyani S. Anidyaswari, S.Psi Fahmi Ridwan Daud Dr. Endang Mariani, M.si Agustaman Fajar Wirawan, S.S Hafizh Kalamullah, S.Kom Fund and Partnership Sec on Prof. dr. Djajadiman Gatot, Sp.A(K) Prof. Dr. dr. Angela BM Tulaar, Sp.KFR(K) Prof. dr. Rahajuningsih D Se abudhy, Sp.PK(K), DSc Dr. dr. Tubagus Djumhana A, Sp.PD-KHOM Dr. dr. Lugyan Sukrisman, Sp.PD-KHOM Dr. dr. Novie Amelia C, Sp.A(K) dr. Nadia Mulansari, Sp.PD-KHOM Transporta on Sec on Bogar Baskoro, SKM Reno Anggara Putra M. Fikri Ramadhan Accommoda on Sec on Novi Riandini, S.Kom Erni Herawa Ribka Like Losung Publica on, Documenta on and IT Sec on Ir. Daru Indriyo M. Gunarso, S.Kom Malik Abdul Aziz Food and Beverages Sec on Dr. dr. Teny Tjitrasari, Sp.A(K) Pipit Syafitri Erni Herawa Event & Exhibi on Equipment & Logis c Sec on dr. Riski Muhaimin, Sp.A Andi Havilland, S.Kom Satria Kusman, A.md Registra on Sec on dr. Raisa Cecilia Muhammad Gunarso, S.Kom Andi Havilland, S.Kom Dina Watanabe, SKM Yuliana, Am.Keb Rita Maharani, S.IKom Event planning Sec on Satria Kusman, A.md Ir. Daru Indriyo Andi Havilland, S.Kom Adyani S. Anidyaswari, S.Psi Dr. Endang Mariani, M.Si
  • 5. 3 CONGRESS HIGHLIGHT 08.00 - 09.00 09.00 - 12.00 12.00 - 13.00 13.00 - 14.00 14.00 - 17.00 17.00 - 18.00 18.00 - 20.00 20.00 - 22.00 HEMOPHILIA NURSE WORKSHOP HEMOPHILIA IN-DEPTH WORKSHOP DELEGATES ARRIVAL ORGANIZATION MEETING GENERAL ASSEMBLY DELEGATES DINNER 07.00 - 08.00 08.00 - 09.00 09.00 - 12.00 12.00 - 13.00 13.00 - 14.00 14.00 - 17.00 17.00 - 18.00 18.00 - 20.00 20.00 - 22.00 PRE CONGRESSTIME 07.00 - 08.00 TIME CONGRESS DAY 1 REGISTRATION OPENING PLENARY 1 LUNCH SYMPOSIUM 1-2 LUNCH & PRAYER PARALLEL SYMPOSIUM 1-2-3 POSTER SESSIONS WELCOME DINNER CONGRESS DAY 2 PLENARY 2 BREAK SYMPOSIUM PARALLEL SYMPOSIUM 4-5-6 LUNCH SYMPOSIUM 3 LUNCH & PRAYER PARALLEL SYMPOSIUM 7 DELEGATES DEPARTURE (by invitation)
  • 6. 4 SYMPOSIUM TOPIC Plenary Lectures - Hemophilia in Indonesia : road to a be er care - Hospital based Health Assessment Technology: low dose prophylaxis versus on-demand treatment for children with severe hemophilia A - Financial support for hemophilia care based on standard prac ce in Indonesia - Health services for people with hemophilia in Indonesia: improving human resources, diagnos c and treatment facili es na onwide - Choosing best product for replacement therapy : what we need to know - Ethical issues in hemophilia treatment : developing professional rela onship between HCPs, pa ent organiza on, pharmaceu cal company and other stakeholders PLENARY SPEAKERS/ MODERATOR Prof. dr. Djajadiman Gatot, Sp.A(K) President of Indonesian Hemophilia Society Letjen TNI (Purn) Dr. dr. Terawan Agus Putranto, Sp.Rad.(K) Ministry of Health Prof. Dr. dr. Fachmi Idris, M.Kes Director of BPJS dr. Lies Dina Liastu , Sp.JP (K), MARS, FIHA Director of Dr. Cipto Mangunkusumo Hospital Dr. dr. Tubagus Djumhana A, Sp.PD-KHOM Chairman of Indonesian Society of Hematology & Blood Transfusion Prof. Ampaiwan Chuansumrit, MD Director of the Interna onal Hemophilia Training Center-Bangkok, Mahidol University, Thailand Prof. Dr. dr. Dasril Daud, SpA(K) Professor in Pediatrics, Hasanuddin University Makassar Prof. Dr. dr. Budi Sampurna, SpF(K) Chair of Ethics & Legal Commi ee of Dr. Cipto Mangunkusumo Hospital Susan Halimeh, MD Director of Gerinnungs zentrum Rhein-Ruhr and Coagula on Research Centre, University of Duisburg-Essen, Germany Parallel Symposium - Prophylaxis - Complica on in hemophilia - Access of hemophilia care - Laboratory diagnos c - Diagnosis approach of bleeding - Inhibitor in hemophilia - Acquired bleeding disorders - Hemophilia in primary care & comprehensive care - Transfusion in hemophilia
  • 7. PRE CONGRESS FRIDAY, APRIL 3 2020 5 NURSING IN HEMOPHILIA AND BLEEDING DISORDER Room : Ballroom 2 TIME 07.30 - 08.00 Registra on WORKSHOP08.20 - 12.00 Overview of hemophilia diagnosis and management 08.00 - 08.10 Opening 08.10 - 08.20 PRE-TEST Course Director: Juanda Mu fa, SKep, Ners 08.20 - 08.50 Prof. dr. Djajadiman Gatot, SpA(K) Legal and ethical aspects of clo ng factor concentrate treatment for bleeding08.50 - 09.20 Dr. Allenidekania, SKp, Msc Emergency in haemophilia and other bleeding disorders09.20 - 09.50 Discussion09.50 - 10.15 Juanda Mu fa, SKep, Ners Biopsychosocial aspects in management of hemophilia10.30 - 11.00 The role of nurses in hemophilia management 10.15 - 10.30 Coffee/tea break 11.00 - 11.30 Ns. Nining Caswini, M.Kep, Sp.Kep.An Anidah, S.Kep, Ners Discussion11.30 - 11.45 POST-TEST11.45 - 12.00 Friday Prayer12.00 - 13.30 HANDS ON SESSION13.30 - 17.00 How to administer clo ng factor concentrate13.30 - 15.00 Coffee/tea break15.00 - 15.15 Fascilitator team Emergency in hemophilia15.15 - 17.00 Fascilitator team Closing
  • 8. 6 REGISTRATION FEE REGISTRATION INFORMATION REGULAR Feb 16th – April 2nd,2020 Specialist General doctor Resident/Med student IDR 2.500.000 IDR 1.000.000 IDR 750.000 ON-SITE April 3 - 5th, 2020 Specialist General doctor Resident/Med student IDR 2.750.000 IDR 1.500.000 IDR 1.000.000 WORKSHOP (REG. UNTIL MARCH 30th, 2020) HEMOFILIA.OR.ID BANK ACCOUNT INDONESIAN HEMOPHILIA SOCIETY BANK MANDIRI 122-00-0988510-7 Nursing in Hemophilia & Bleeding Disorder : IDR 750.000 Hemophilia in Depth Workshop for Paediatrician & Internist IDR 2.500.000
  • 9. 7 MORE INFORMATION INDONESIAN HEMOPHILIA SOCIETY HIMPUNAN MASYARAKAT HEMOFILIA INDONESIA Eightyeight @Kasablanka Office Tower, Lantai 10, Unit E Jl. Casablanca Kav. 88, Jakarta Selatan 12870 INDONESIA www.hemofilia.or.id ihsna [email protected] +62 81314467212 (Sdr. Fera Vinikasari) +62 82166676660 (Sdr. Dina Watanabe) INFORMATION ISH/ HMHI