UNIONCONF2025: 2420
‘’Resourcing’’ Community Engagement to End TB by 2030
Type selection
Type selection: Symposium
Speaker:
Sarah Bernays ---- Presentation Title: Financing Lessons from HIV Advocacy for TB Community Engagement
Short description: Insights into how HIV community engagement has been funded and what TB CE can learn to ensure financial sustainability.
Biography: Assoc Prof Sarah Bernays is a qualitative researcher with extensive experience of community engagement research in HIV and TB, including
within clinical trials, focused on co-developing and evaluating interventions with affected communities which are going to work for them. She has led the
development of a range of community advisory groups in Australia, Uganda, UK, Vietnam and Zimbabwe.
Duy Trinh ---- Presentation Title: Reflections on Funding TB Community Engagement
Short description: A critical review of the progress, challenges, and gaps in securing financial resources for TB CE over the past decade
Biography: I am tuberculosis (TB) survivor. I have 6-year experience conducting qualitative researches to understand community response infectious
diseases especially TB in Vietnam. In the last two years, I have also supported and coordinated community engagement initiatives for TB research at
Sydney Vietnam Research Institute (formerly Woolcock Institute for Medical Research Vietnam). I am currently a PhD student at University of Sydney,
School of Public Health, focusing on how to effectively operationalize Community Advisory Board for person-centred TB research and care.
Kinz Ul-Eman ---- Presentation Title: Investing in Community-Led TB Initiatives
Short description: Evidence-based case studies, such as community advisory boards, demonstrating the impact and value for money of well-funded TB CE
programs
Biography: Kinz ul Eman, CEO of Dopasi Foundation Pakistan and Chief of Party for the USAID TB LON Activity, she hold an ACCA qualification from the UK
and a Master’s in Global Health from the University of Milan, Italy. With 15 years dedicated to global health programmatic management and research, Kinz
specializes in Tuberculosis Control, steering pioneering interventions to make TB care universally accessible. Her work emphasizes community engagement,
and a steadfast commitment to rights and gender, marking her as a leader in integrating health solutions with social equity.
Madhava Sai Sivapuram ---- Presentation Title: The Imperative of Sustainable Financing for TB Community Engagement
Short description: Analyzing how shifts in global funding priorities have shaped community-driven TB interventions and what is needed for long-term
support.
Biography: Dr. Madhava Sivapuram, based out of India and independent researcher with a back ground in community engagement and advocacy and
focuses on designing as well as implementation of the Community Connect and Youth4LungHealth programmes at The Union World Conference on Lung
Health conference at The Union. He has been associated with The Union since 2019 in various capacities.
Nicola James ---- Presentation Title: Advocacy for Increased Investment in TB Community Engagement
Short description: Strategies to mobilize financial resources and position CE as a central, well-funded approach in efforts to end TB by 2030.
Biography: Nicola specialises in coordinating clinical and operational research studies with key community engagement aspects. Her research spans drug-
resistant TB, malaria, oncology, and refugee, mobile and migrant populations. She previously worked for Médecins Sans Frontières on the successful TB-
PRACTECAL clinical trial and has also worked for the London School of Hygiene and Tropical Medicine, Mahidol-Oxford Tropical Medicine Research Unit and
the International Organisation for Migration. An advocate for participatory practices, Nicola is dedicated to integrating community perspectives into
research. She holds a Master’s in Control of Infectious Diseases from the London School of Hygiene and Tropical Medicine.
Track selection
Track: Track I1: Civil society, advocacy and community engagement
2nd Track: Track I4: Communication/social media
Description
Description: Ending TB by 2030 requires bold, inclusive action with Community Engagement (CE) at its core. Sustainable funding must empower
communities, shift from control to inclusion, and ensure long-term leadership in TB responses through integrated, equitable, and community-driven
strategies.
Objectives:
1. To explore the lessons and best practices that TB CE can adopt from the financing mechanisms of CE in HIV, while identifying potential risks to
sustainability that must be addressed.
2. To critically examine the progress and persistent challenges in resourcing TB CE over the past decade.
3. To highlight evidence demonstrating ‘’cost-effectiveness’’ of community engagement initiatives in TB research and care, including through adopting
a long-term lens.
4. To critically assess strategies for effectively financing/resourcing community-driven research and initiatives for TB prevention and care.
5. To identify effective advocacy approaches to mobilize resources and support for CE as a central strategy in achieving the goal of ending TB by 2030.
Keywords
Keyword 1: Community Engagement
Keyword 2: TB Research
Keyword 3: TB Funding
Target audience
Target audience 1: Researchers
Target audience 2: Civil Society Organizations
Target audience 3: Affected Communities
Target audience 4: Sponsors
Target region: Global
Country of research
Chair 1 (Mandatory for Symposia and Satellite sessions)
Title: Mr
Gender*: Male
First name*: Madhava Sai
Last name*: Sivapuram
Affiliation*: The Union
Email address*:
[email protected]Nationality*: India
Job position*: Communication and Engagement Consultant
Age range*: 26-35
Country of residence*: India
Previously coordinated or chaired a session at a Union World Conference*: Yes
Biography*: Dr. Madhava Sivapuram, based out of India and independent researcher with a back ground in community engagement and advocacy and
focuses on designing as well as implementation of the Community Connect and Youth4LungHealth programmes at The Union World Conference on Lung
Health conference at The Union. He has been associated with The Union since 2019 in various capacities.
Chair 2 (optional)
Coordinator
Confirm submission
I have read the Suggested Language and Usage for Tuberculosis Care, Communications and Publications.: Yes
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